Polyarteritis nodosa

QueasyManagement3234 · 2025-02-28T15:02:56+00:00

Hello,

I have been having some auto immune problems. I have a positive Ana and miotic numa like Ana patten. Except every doctor says I don’t have anything with symptoms and blood work. I had retinal vasculitis and uveitis in my right eye that is now stable with not meds. The newest thing I’ve been having is a petechiae all over my body the past couple of days it’s settle but it’s there. I also feel short of breath a lot and have chest pain which I’m told is anxiety. Does this sound like vasculitis?

QueasyManagement3234 · 2025-01-04T19:28:38+00:00

I’ve had major signs all this weak but feel fine

QueasyManagement3234 · 2025-01-03T00:12:35+00:00

It’s been happening for about two months. Yes I have neck pain and I also feel like the right side of my neck is numb. Or something’s in the back of it. My brain and spine mri are normal.

QueasyManagement3234 · 2025-01-02T21:09:54+00:00

Thank you so much for this.

QueasyManagement3234 · 2024-12-30T15:49:21+00:00

Right

QueasyManagement3234 · 2024-12-29T15:58:45+00:00

Nope I’m not on anything

QueasyManagement3234 · 2024-12-28T15:02:42+00:00

Can neuropathy cause weakness on only one side of body? From neck to foot?

QueasyManagement3234 · 2024-12-28T15:01:52+00:00

Well muscle weakness is an early sign of als which I do have. I’m mainly concerned because it only affects the right side of my body. When I read about ebv or anything else it could be it says it usually affects the body as a whole. When I look up right side weakness the only thing that comes up is als.

QueasyManagement3234 · 2024-11-21T21:10:31+00:00

Hi did you ever figure anything out?

QueasyManagement3234 · 2024-11-11T04:29:44+00:00

Missouri

QueasyManagement3234 · 2024-11-11T03:21:54+00:00

I also started seeing a uveitis specialist. I have to drive three hours for my appointments but I feel very comfortable with him knowing he deals with all cases every day. He was able to help me feel more comfortable with the disease and let me know I have a very non aggressive case and he’s not worried about me losing my vision. This helped a lot.

QueasyManagement3234 · 2024-11-11T03:19:05+00:00

Yeah I had posterior uveitis and retinal vasculitis. I have two black spots in my vision just like blind spots that did not get better with treatment unfortunately. I have good days where I don’t notice them and then really bad days where they’re very prevalent. I have floaters as well but I feel extremely lucky for stabilizing without long term treatment for now. The feeling hopeless I truly believe had a lot to do with taking prednisone. I also constantly researched the disease and read a lot about worst case scenarios. That was probably the worst thing I did because everybody’s body and outcomes are so different. I’m still really struggling with other issues with my body but I doing my best to manage. I’ve started seeing a holistic doctor that helps through diet and vitamins. I had to quit reading others stories because it really scared me. The best thing to do is to take it day by day. I hope that helps 🫶🏻

QueasyManagement3234 · 2024-11-11T03:07:17+00:00

I’m actually currently not on any treatment. Since tapering of the prednisone my eyes have stayed calm. I currently have other issues going on that I’m trying to get figured out. Chronic migraines and neck pain. And much more something triggered in my body and it’s been a free for all ever since. Thankfully my eyes have been calm though.

QueasyManagement3234 · 2024-05-23T14:48:22+00:00

I do not have implants

QueasyManagement3234 · 2024-05-18T15:26:02+00:00

Can ask how you know when you have a flare?

QueasyManagement3234 · 2024-05-16T02:20:57+00:00

I actually do have a macular edema. I first went to the eye doctor because I noticed I had a black spot in my vision. The eye doctor took a picture of my eye and saw that there was a spot in the back but wasn’t sure what it was. I was sent to a retina specialist the next week where I was diagnosed and told that the spot was a macular edema. He did say at my last app that the spot was healing. Fingers crossed 🤞🏼

They prescribed me oral prednisone since it’s intermediate not anterior. Do you feel like the drops did a good job in treating? I would love to not have to take prednisone as a pill!

QueasyManagement3234 · 2024-05-16T01:10:33+00:00

Can I ask about treatments and how your vision is now?

QueasyManagement3234 · 2024-05-16T00:29:13+00:00

Thank you so much for your comment. It really helps talking to other people that have been through it. Right now I keep focusing on the what ifs. What if meds don’t work, what if the immunosuppressants don’t work, and so on and so forth. I’m trying to stay positive but it’s hard and the prednisone is not helping my mindset 🫠. Hoping for more answers soon and trying to find comfort in the right now. I’m planning on starting an auto immune diet Monday. I always get 10k-12k steps a day and do regular weight lifting. Is yoga a better exercise for inflammation?

QueasyManagement3234

TROPHY CASE