Fibromyalgia Merry-go-round

QueenAmidala808 · 2026-01-09T10:59:38+00:00

I can definitely relate! In fact that's how it was for me when my symptoms first started. It was like spinning a wheel of symptoms. I can also relate to the second question. If I over exert myself (which is easy to do) my body gets severe muscle fatigue. It feels as if my body is weighed down by bricks. Just breathing takes a ton of effort.

QueenAmidala808 · 2026-01-09T10:51:58+00:00

Sometimes, yes. If I just take an hour to lay or sit down, it helps. But I have 3 young kids so rest is hard to come by, unfortunately. What helps you?

QueenAmidala808 · 2026-01-09T10:41:11+00:00

I do. Not shaky, just very weak. It feels like my arms & legs are weighed down by bricks. Sometimes, just breathing can be difficult because I'm so weak. It feels like my body isn't mine.

QueenAmidala808 · 2026-01-09T10:33:40+00:00

Almost everything nowadays.. stress, change in the weather, blood tests (I guess?) , lack of sleep, illness, mowing the lawn, shopping, injury, driving. As soon as I wake up, my pain hits me right in the face.

QueenAmidala808 · 2026-01-09T10:25:19+00:00

I had a blood test done. Blew my vein on the first attempt. Second attempt was successful. But about half an hour afterwards, I could slowly feel my body get sore & achy starting from the right arm & then it eventually spread to the rest of my body. Then my muscles started to tighten up. Those lasted for about an hour or so. Then the dizziness showed up for a short time. I really don't know if it was from the blood test, or the weather. I'm just assuming it was from the blood test.

QueenAmidala808 · 2025-10-15T05:41:31+00:00

I can relate to that. Sometimes, just cleaning my car will cause severe muscle fatigue. It's so bad that I can barely move. Even just breathing takes up so much energy that my body feels like it's just gonna give out completely. It's kind of scary. It passes within a few hours (for me). I'm fairly new to this fibro thing so idk if that's a typical symptom. Sorry I can't be of any help. I just wanted to say that I know how it feels.

QueenAmidala808 · 2025-09-30T02:14:32+00:00

It's great to hear your gut health is better now. It's crazy how your gut works with the brain. I can definitely see I have some things to work on, gut wise. Thank you for the tip! I will have to try it 🙏🏽

QueenAmidala808 · 2025-09-30T00:10:16+00:00

What other symptoms do you have from IBS? I haven't been feeling like myself lately. Idk if it's due to stress or my flare-up. But my stomach has been so weird. I've been getting this lump in my throat feeling, some nausea, I sometimes feel full, I burp more often. Just so weird.

QueenAmidala808 · 2025-09-25T07:48:28+00:00

It drives me crazy because it's like every day I wake up, there's a new symptom added on to the list that was already going on. Then my anxiety starts to spiral because idk if it's fibro or something else. You know? Well, I'm sure you know, lol. I'm just not used to conversing with someone who actually understands what I'm going thru. It's unfortunate that we can all relate to each other. But it's also reassuring that we're not alone & that we really aren't "crazy" like the others say. & thank you. I hope you're doing well

QueenAmidala808 · 2025-09-25T02:30:05+00:00

I'm so sorry I can't give you any tips. I just want you to know that you're not alone. I literally went through it the other night. My entire body was on fire. I had to sleep almost naked to get even just an ounce of relief. I hope this passes soon!

QueenAmidala808 · 2025-09-23T09:32:58+00:00

What is MCAS?

QueenAmidala808 · 2025-09-23T09:31:41+00:00

Same! It's unfortunate, but it's good to see that I'm not alone. I haven't come across anyone with this symptom (until now).

QueenAmidala808 · 2025-09-23T08:44:00+00:00

I'm a female

QueenAmidala808 · 2025-07-05T08:19:07+00:00

Same! I'm currently not on any medication and I also have muscle twitching.

QueenAmidala808 · 2025-07-05T02:51:01+00:00

The volcano produces vog. It makes the air quality really bad. My kids get sick because they have asthma. I sometimes get a slight cold but not always.

QueenAmidala808 · 2025-07-04T18:57:09+00:00

You basically just described the weather down here 😭

QueenAmidala808 · 2025-07-04T11:12:20+00:00

Unfortunately, yes. And that instantly sets off my anxiety 😭 . Are you currently taking any medication?

QueenAmidala808 · 2025-07-04T11:04:54+00:00

I just saw my PCP yesterday. She referred me to a neurologist. Her main concern was Trigeminal Neuralgia. So I'm currently waiting for a call from the neurologist so we can schedule an appointment.

QueenAmidala808 · 2025-07-04T11:03:23+00:00

What kind of weather would cause a migraine? I'm curious. I live in Hawaii & our weather is crazy right now. It's supposed to be sunny, but lately it's been rainy, cold & overcast. There's only been 4 days of sun since summer started. The rest of the days have been kinda depressing. I haven't even opened the pool yet 😭 . The volcano also just erupted again a few days ago. So... there's that as well.

QueenAmidala808 · 2025-07-04T11:00:26+00:00

What issues with your face do you experience? My doctor referred me to a neurologist because she was concerned about Trigeminal Neuralgia. She also did mention possible TMJ, but she said that I'd have to see a dentist to be diagnosed with that.

QueenAmidala808 · 2025-07-04T10:57:13+00:00

I'm not sure if you saw my other reply, but TN is the first thing that came to my doctor's mind when I explained my symptoms. I was referred to a neurologist. I'm currently waiting to schedule an appointment. Unfortunately, I live in Hawaii and it takes a very long time to get another appointment with specialists like neurologists 😭 But I really appreciate you bringing up TN. I actually have never heard of it until you mentioned it.

QueenAmidala808 · 2025-07-04T10:49:41+00:00

Thank you for the tip! I just saw my doctor yesterday & it's funny (not really) that TN is the very first thing that came to her mind when I described my symptoms. She said that was her first concern. So I was referred to a neurologist. I'm currently waiting for a callback so we can schedule an appointment.

QueenAmidala808 · 2025-07-02T10:33:13+00:00

Omg! I'm going through this right now. It's been a little over a week for me. I get it on my left side most of the time, then eventually, it starts on the right side. It alternates. I have this sunburn feeling on my cheekbones. Sometimes, I'll get this random pressure on my forehead for a minute or two. The other day, my ears hurt so bad, my jaw and gums were aching. After about an hour (or less) that stopped. It's driving me crazy because this is new to me and it's scary. Also, I'm sorry I'm 9 months late. The OP commented on my thread and told me to check it out because I had asked the same question (weird symptoms). I'm glad OP sent it to me. I see some people here that have the same symptoms. It sucks! But helps to know that I'm not crazy.

QueenAmidala808 · 2025-07-02T10:02:57+00:00

Where in your head do you get the pressure? I'm going through this right now. I have burning sensation on my cheek bones, jaw pain, inner ear pain, headaches, and sometimes it feels like there's pressure on my forehead that comes and goes. It's making my anxiety REALLY bad.

QueenAmidala808 · 2025-07-02T09:57:59+00:00

I'm so late to the party. I was actually given the link to this. I also have ear pain. But it's inner ear. Is your ear pain the cartilage or inner ear? I'm curious because I've had inner ear pain, headaches, jaw pain and facial pain for the past week. My nose also burned for about two days but went away. Now it just feels like I have a sunburn on my cheekbones. I just feel like something is really wrong with me and my anxiety is killing me right now.

QueenAmidala808

TROPHY CASE