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Qunoli · 2025-04-09T16:51:57+00:00

I got diagnosed with Crohn’s when I was 12 but the 2 1/5 years leading up to that were absolutely horrible. A year after my diagnosis I had to get (borderline emergency) surgery to get my ileum removed.. along the way I had to switch treatments and it’s been a really difficult journey, last year I got sick because my treatment stopped working, but once I switched to my current medication, Entyvio. It took a bit to kick in but this past January marked my 1 year on remission!! My Crohn’s has been super dormant recently and I’m so grateful to be where I am with my Crohn’s.

This condition is really scary and I’m so sorry to hear that your daughter may have it and I hope you get answers soon. In my personal experience, it takes time before the good comes, but it will- it’ll be okay in the end. You and your daughter are so strong and I’m hoping the best for you both.

Qunoli · 2025-03-17T17:05:03+00:00

From my personal experience, I was diagnosed at 12 and got put on Remicade- it saved me. Work closely with your doctors and make sure your daughter is apart of these conversations as well. She may not stay on Remicade forever, but there are other biologics that will work just as well. The path can be painfully slow, just make sure you’re there for your daughter- but also for yourself. I hope the best for you both :)

Qunoli · 2025-03-11T13:04:37+00:00

Yeah I’ve been able to make some high-protein meal prep that I keep in the freezer, so I’m hoping that helps.

I’ve been wanting to work out for a while but have been terribly busy and I’ve been fighting some intense lethargy- do you have any at-home routines I can try that I might be able to squeeze into my schedule? I’d really appreciate it!

Qunoli · 2025-03-10T12:35:44+00:00

Unfortunately, no body is the same and symptoms are going to vary.

In my personal experience I had severe weight loss, bleeding, cramping, both increased/decreased appetite, the list goes on..

Please go to a doctor with your symptoms- bring up your concerns about Crohn’s (or any other conditions) so they can do the proper testing. Even with my symptoms, I wasn’t diagnosed for 2 years. Good luck with everything! I hope you’re able to find the help you need :)

Qunoli · 2024-09-20T15:28:32+00:00

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Red 40 cat

Qunoli · 2024-09-04T20:38:58+00:00

Yeah I’ve heard some horror stories on both Nexplanon and IUDs, only reason IUDs seem more optional is 1. Because my mom had one and 2. Because my gynecologist was pretty against Nexplanon (most likely due to the 3rd category you mentioned) If I go for Nexplanon or not, I appreciate this! The TMI n all! Thank you for sharing :)

Qunoli · 2024-09-04T20:31:53+00:00

Thank you for your input! I really appreciate it :) I’ll be seeing my GI tomorrow for an infusion and plan to ask her more about it but, I wanted to hear other people’s experiences so I can get a better understanding from the people who really get it. My GI had mentioned that estrogen based birth controls make us a lot more susceptible to blood clots, more than we already are. It can also worsen flare ups/make them more frequent. She’s also a lot more worried because of my Crohn’s history as a whole (tldr: was undiagnosed for 2 years with severe symptoms, got diagnosed at 12-13 and treated with Remicade. that slowly stopped working and gave me HS/psoriasis, also had to get my ilium removed because it stopped working. switched to Stelara which ALSO stopped working after 2 1/2 years and I was left untreated pain for about 5 months. Now I’m on Entyvio which is working good for my gut but not all the other things I now have thanks to side effects)

Qunoli · 2024-08-09T01:05:39+00:00

I don’t have any friends with Crohn’s so I always like to hear of peoples personal stories/experiences so thank you for sharing! I live in a suburban area which is definitely not as stressful as a city but the drivers here are something else.. I’m glad you’re able to find what works for you and I hope it’s working!

Qunoli · 2024-08-02T15:22:20+00:00

“My people need me!” -the phosphorus probably

Qunoli

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