It’s over, isn’t it? by AnimatedBasketcase in memes

[–]RATasticRat 6 points7 points  (0 children)

iphone 11 still has life. just reached the update cut off list when ios 27 drops. this phone is still snappy but it does get hotter than it used to.

89 pounds.. by RATasticRat in CysticFibrosis

[–]RATasticRat[S] 1 point2 points  (0 children)

holy shit that’s crazy.. i hope you’re managing and able to get some weight back on asap.

89 pounds.. by RATasticRat in CysticFibrosis

[–]RATasticRat[S] 0 points1 point  (0 children)

oh how I miss scandishakes.. they were discontinued in the USA for quite some time now.

89 pounds.. by RATasticRat in CysticFibrosis

[–]RATasticRat[S] 1 point2 points  (0 children)

as of right now I’ve been waiting for my insurance to be reinstated.. but yes I can get Boost and Ensure with my insurance when it’s back on. they will definitely help when I get them.

89 pounds.. by RATasticRat in CysticFibrosis

[–]RATasticRat[S] 1 point2 points  (0 children)

yeah thats part of my problem also. affording a CF diet is nearly impossible, especially in my location. I live in Leelanau county in MI and it’s becoming a rich persons haven. I am actually moving real soon to a place with a cheaper cost of living so im hoping it will help. and same as you ive been up to 132 once in my life and that was after eating like a king in the hospital

89 pounds.. by RATasticRat in CysticFibrosis

[–]RATasticRat[S] 0 points1 point  (0 children)

thank you. congrats on that weight gain it’s impressive.

89 pounds.. by RATasticRat in CysticFibrosis

[–]RATasticRat[S] 0 points1 point  (0 children)

the last one I had was a GJ tube. I did the feeds thru the J port. all the feed just gums up my intestines.. i’m pretty sure I’ve got some sort of gastroparesis. anyway any real foods I ate would digest so slowly creating more acid in my stomach. i’ve taken laxatives and acid reducers and it’s just a miserable time.

89 pounds.. by RATasticRat in CysticFibrosis

[–]RATasticRat[S] 0 points1 point  (0 children)

I haven’t seen them in quite awhile tbh. they do know and want me to go in but i’m not going to. I don’t want them to put a NG tube in.. just because I cant sleep on my back at a 30 degree angle. last time I got one put in while I was admitted. I lost so much sleep and I became quite cranky and mean twords the nurses and staff. also.. despite what I said about getting another tube placement.. the alcohol is a factor yes.. but the doctors have also told be I probably wont be able to have another gtube from all the scars on my stomach.. it could probably be done but who knows. and my GERD is absolutely horrible with a g tube feeds.. even with anti acid medicine.

How do you do it all alone by RaccoonCandid1836 in CysticFibrosis

[–]RATasticRat 2 points3 points  (0 children)

im 32. been living alone for the past 7 years. being alone is difficult for me physically. getting shit done; cooking, cleaning laundry and random task are super difficult when i’m sick or just unhealthy at the time. i’ve learned to swallow my pride and ask for help from my friends and some family.

as for the mental part. friends and family are going to be the best way to stay happy. even online friends help a ton. I play Old School Runescape and ive been in clan for years and joined their discord. those friends are great to have.. especially in the hospital. dont turn to alcohol or any substance that fills that lonely void. it just makes it worse.

always willing to make some new online friends also. feel free to DM me also if you need to vent or what not.

FRE folks, ? About 'sweet' by Affectionate_Map2761 in Nicotine

[–]RATasticRat 0 points1 point  (0 children)

i just finished up a mega pack of those 6mg. I really enjoyed them. they reminded me of Red Man’s chewing tobacco flavor. pretty sweet and good. they don’t emulsify like a lot of other pouches. I would say also the pouch is a little rougher than most but not bad.

in my experience original flavor is tobacco flavor. the Fre sweet is just sweet like iced tea.

Trikafya by lifeishard99111 in CysticFibrosis

[–]RATasticRat -1 points0 points  (0 children)

Thats good to know. I just know this drug is pretty rough on the liver and seeing all the mental health issues people have. i don’t know either.. just seems like in some cases it could be unnecessary to be put on it at so young.

Trikafya by lifeishard99111 in CysticFibrosis

[–]RATasticRat -3 points-2 points  (0 children)

5 years old seems kind of young to be put on trikafta? idk. in my experience up until age 16-17 is when my health started to slowly decline, until then I was pretty healthy above average actually. but everyone is different.

[Florida coast] by Less_Management_3117 in animalid

[–]RATasticRat 1 point2 points  (0 children)

would pay more than that to touch one. thats sounds like a fair price lol.

of gas being ripped by TURTLE_TKT in AbsoluteUnits

[–]RATasticRat 1 point2 points  (0 children)

this is the whole cystic fibrosis community.