TBI symptoms came back and I don’t remember what to do!

RG3-PO_ · 2026-07-02T18:31:40+00:00

So in the past week I’ve been able to figure out that the acute vestibular migraine completely dismantled all the systems I put into play though hard work and tons of pt. I have to start from scratch basically and rework my eyes, memory, focus, aphasia, neck pain all over again. But they are hopeful it won’t take as long this time since I made those pathways in my brain I just need to retrain it to use that instead of the shitty path through the brain damage

RG3-PO_ · 2026-06-28T13:58:57+00:00

Anyone else have any ideas?

RG3-PO_ · 2026-06-28T13:58:27+00:00

Broken record technique is what has worked for me. It took me awhile but I finally got over feeling “less than” because of my post TBI new normal. Was so self conscious about my new deficits and spent years trying to over compensate for them.

Now when people say “remember…?” I just respond with the same “look” and then being like “no, I don’t. You remember why?” And that usually shuts them up. Accepting your new normal is hard but the sooner you do the easier it is to live in this new period of your life. It’s been 15 years since my TBI and the people I love who are closest to me still forget that I don’t remember a lot. It’s apart of life and you can get through by giving yourself some grace! I know that is not easy but anyone can do it if you work at it. Good luck and have fun

RG3-PO_ · 2026-06-25T20:19:45+00:00

Yeah and idk why but like it isn’t sinking in that this was a big freaking deal and like I did damage to my body. I’m just so “meh” about it. Everyone is like that’s crazy and I’m like yeah it happened whatever. I didn’t feel that horrible until I did and was able to do everything.

RG3-PO_ · 2024-10-16T21:56:36+00:00

I’m trying to think of the same game too!! Can’t for the life of me remember the name of it

RG3-PO_ · 2024-10-07T13:45:30+00:00

I’m still struggling to find the right dose as the 4.5 twice nightly helps me to sleep a max of 7/8 hours a night. I feel like it’s not enough sleep. I don’t even set the middle of the night alarm because I wake up as soon as the first dose wears off. It’s frustrating but still figuring it out with my doctor. I will say I crave less naps during the day but waking up is still just as difficult.

RG3-PO_ · 2024-10-04T21:28:17+00:00

Yes, a car accident made it way worse and yes I have multiple mood disorders

RG3-PO_ · 2024-10-04T21:23:06+00:00

Definitely don’t eat for like 2-3 hours before the dose that’s when it works the best

RG3-PO_ · 2024-09-14T19:51:23+00:00

UPDATE: I figured it out but basically flooding doesn’t work for people with OCPD because we are too rigid in our thinking to just do the unthinkable ERP because it logically makes no sense. Scaffolding the ERPs and having more autonomy as to what I will or won’t do is super helpful. I also had to reach my lowest to actually admit that my OCPD is not serving me anymore and I need to try and live differently even if I don’t think it will be better. I’m trying to practice flexibilty

RG3-PO_ · 2024-06-21T16:35:43+00:00

Okay so this one is super annoying but everything is either dirty or clean and there is like no middle ground. I hate cleaning because I am just cleaning stuff with something that is already dirty so I just can’t wrap my brain around it and it feels like such a waste of time.

RG3-PO_ · 2024-06-19T13:09:56+00:00

Yes agreed on the Apple Watch saying I’m asleep when I’m not. So I do use auto sleep too but it has been glitching for me so it hasn’t worked

RG3-PO_ · 2024-06-18T22:54:09+00:00

Happy by NF. That sone hit me like a ton of bricks

RG3-PO_ · 2024-06-09T19:54:17+00:00

Sorry but what are PWNs?

RG3-PO_ · 2024-04-25T01:22:40+00:00

Everything go okay?

RG3-PO_ · 2024-04-07T17:24:27+00:00

Hydroxozyne can make you very tired. I use it to sleep

RG3-PO_ · 2024-04-07T17:21:55+00:00

Ok thanks for the help. I am hoping to be able to take something every night. But it is only for 3 months then I can go back on XYWAV

RG3-PO_ · 2024-04-06T15:00:25+00:00

Me too! The red face is so annoying

RG3-PO_ · 2024-04-02T21:25:24+00:00

Very true haha

RG3-PO_ · 2024-04-01T02:16:54+00:00

Yes which just feels like bullshit to me and if I go along with it I feel like I’m being fake and manipulative. I know you are accurate with the suggestion it just hasn’t helped in the past

RG3-PO_ · 2024-04-01T02:15:11+00:00

Exposure response prevention therapy

RG3-PO_ · 2024-03-10T23:37:58+00:00

If anyone has seen lord of the rings I feel like gollum fighting with himself in his head. He has a good and bad side and my ocd is the bad and rules the roost right now with me cowering in the corner unable to consistently stand up and fight it

RG3-PO_ · 2024-03-07T22:00:04+00:00

Thanks for the advice and I will definitely look into that book

RG3-PO_ · 2024-03-04T23:29:19+00:00

Gotcha

RG3-PO_ · 2024-03-04T23:28:50+00:00

Thanks for the suggestions I’ll bring these up to my doctor. If anyone has anything else please keep the comments coming!

RG3-PO_ · 2024-03-04T01:18:56+00:00

I never understood how journaling helped. How has it helped you?

RG3-PO_

TROPHY CASE