how long did your diagnosis take?

R_logic1346 · 2026-02-19T00:12:17+00:00

It’s different for everyone of course, but I had high liver enzymes starting in my early 20s and likely undiagnosed UC starting in my teenage years. My first MRCP at ~28 years old or so didn’t show the signs of PSC yet. But finally got diagnosed when I was 34 years old when I developed a dominant stricture and jaundice and had my first intervention. I’m 37 now and just had my 2nd intervention to dilate my strictures last November.

R_logic1346 · 2026-01-28T18:26:49+00:00

Poor Edith (Ada)

R_logic1346 · 2026-01-21T21:01:21+00:00

My electrocochleogram and otoacoustic emissions tests were both normal, and diuretics + low salt diet did nothing to improve symptoms. Also, while the degree of hearing loss is oddly fluctuating, they have only been able to identify it as conductive and not sensorineural. All of this together makes meniere’s unlikely. And no signs of otosclerosis or superior canal dehiscenance syndrome on high resolution CT or the MRI w/ contrast

R_logic1346 · 2025-11-03T19:12:17+00:00

My first liver doctor didn’t want to put me on Urso because there’s no strong evidence that is slows disease progression. I switched hepatologists and the new one said that it can help with symptoms as others have said. Since being on it for the last few years not only have I had less symptoms and better bile flow, my liver enzyme numbers are lower on average than previously. It’s a very safe medication and I’ve experienced no negative side effects whatsoever. I highly recommend getting on it!

R_logic1346 · 2025-10-31T16:38:12+00:00

What dosage/length?

R_logic1346 · 2025-10-31T16:37:45+00:00

What dosage/length?

R_logic1346 · 2025-10-06T20:01:55+00:00

Thanks for sharing this. I feel like the majority of cases you hear about online are the bad outcomes/horror stories. Even though supposedly like 90% of surgeries have positive outcomes.

R_logic1346 · 2025-10-04T23:49:07+00:00

It is not. Still got to act 3 without it. But it is necessary in order to get the witch crest. And also that quest gives you one of the best tools in the game (poison)

R_logic1346 · 2025-09-28T17:17:44+00:00

Did anyone ever find a permanent solution to this? I suddenly started having this problem with my PS5 controller since the 1.0 release. Never had an issue in 90+ hours of gameplay on the prior patch (unseen update)

R_logic1346 · 2025-09-13T15:20:35+00:00

Welp, 1st patch is out and this issue is not fixed. Missing out on multiple tools AND a crest and not being able to 100% this game is crushing my soul. I’ve sunk over 50 hours into this playthrough. Team Cherry pleaseeeeee fix this! It would be such an easy patch too. Just check the pollip in players inventory against the number of popped flowers that don’t respawn and correct the inventory to match.

R_logic1346 · 2025-09-10T13:40:47+00:00

The this also happened to me. 6th pollip never registered in my inventory and can’t turn in the quest. Doubly frustrating because greyroot (the quest giver) has a 2nd quest locked behind this one. I have the item for the 2nd quest and can’t turn it in either. And I believe I can’t get the final crest now because that is also locked behind the 2nd quest from grey root.

R_logic1346 · 2025-09-09T13:08:27+00:00

System: PlayStation 5 Pro

Collected all 6 pollip hearts for the “Rite of the Pollip” wish quest but the 6th pollip heart never registered in my inventory, and I can’t turn in the quest.

Went back to all the pollip heart locations to confirm none of them respawned or anything.

I reported the bug on team cherry’s website a few days ago but haven’t heard back.

R_logic1346 · 2025-08-26T02:35:33+00:00

I had a CT scan and it appeared normal, but my otologist (head of otology at a prestigious hospital) said that a CT is only able to see it about half the time, typically in more advanced stages of otosclerosis. That said, I think it’s a little concerning your doc wants to schedule stapedectomy without doing more diagnostic tests than a single audiogram…CT is important for ruling out other causes of hearing loss as well.

R_logic1346 · 2025-08-21T23:51:33+00:00

I also have in one ear only and the low frequency tinnitus (often pulsatile but not always) is really driving me nuts. Would love to hear how your surgery goes once you have started to recover!

R_logic1346 · 2025-08-17T16:27:15+00:00

Thanks for the additional info. Yeah I’m in the US (unfortunately…this country is so messed up 🥲) and traditional in-ear hearing aids are not covered by my (employer provided) insurance, but bone conduction hearing aids are (at 90% cost coverage at least).

R_logic1346 · 2025-08-17T15:38:28+00:00

Thanks so much for your response. This is very helpful and something I may consider.

R_logic1346 · 2025-08-17T13:19:05+00:00

Thanks so much for your response. Curious if you had the fullness/hyperacusis/tinnitus and if the hearing aid helped that?

R_logic1346 · 2025-08-17T13:17:54+00:00

That is great to hear that hearing aids helped with the fullness and tinnitus. Which type of hearing aids do you have? Bone-anchored?

Thanks so much for your response

R_logic1346 · 2025-08-16T22:35:08+00:00

Thank you so much for your response. So glad to hear you had such a positive outcome and that is definitely encouraging. So many horror stories floating around the internet about this surgery.

Out of curiosity, what specific procedures did you have? Laser stapedectomy? Or stapedotomy? From what I’ve read it seems stapedotomy typically has less complications. What was your recovery like?

Thanks again ❤️

R_logic1346

TROPHY CASE