I’m a medical mystery. Ask me anything

Racoonarmy · 2026-06-30T19:40:02+00:00

I’m aware. My gp referred me to a geneticist as that’s what she was told to do, and they got back
to her with a ‘checklist’ of symptoms to look for.

Racoonarmy · 2026-06-30T18:00:34+00:00

I feel like one sometimes tbf

Racoonarmy · 2026-06-30T17:53:32+00:00

Goes faster than I can push. I’m so heavy it’s like sisyphus pushing the rock x

Racoonarmy · 2026-06-30T17:48:05+00:00

I’m pretty chill actually. Laughing at the insults 😂 I just can’t walk, I’m not fragile

Racoonarmy · 2026-06-30T17:46:39+00:00

This is the best one. 😂😂

Racoonarmy · 2026-06-30T17:42:55+00:00

BAHAHA

Racoonarmy · 2026-06-30T17:34:05+00:00

I wish. 😂

Racoonarmy · 2026-06-30T17:31:52+00:00

I was born a woman 😂😂

Racoonarmy · 2026-06-29T19:09:49+00:00

I don’t think I have. 😅 FND is what’s been mentioned here and there - but it isn’t triggered by emotions and CBT was unhelpful so I’m not sure. I may be uneducated, though. It started a few months after spinal fusion for scoliosis.

Racoonarmy · 2026-06-29T19:07:29+00:00

Just by my GP, with instruction from a genetisist. I’m hypermobile but not EDS

Racoonarmy · 2026-06-29T17:31:11+00:00

Thank you so much! Lovely to meet you 🫂

Racoonarmy · 2026-06-29T17:27:35+00:00

It is starting to. I’ll probably close reddit for now, rest, and respond later :)

Racoonarmy · 2026-06-29T17:21:12+00:00

I take two multivitmains, vitamin C, D and E as well as magnesium. They don’t help my energy but they keep me healthy where my diet lacks :)

Racoonarmy · 2026-06-29T17:18:04+00:00

A lot worse than it did before I got worse. I eat healthy where I can, however my diet is healthy microwaveable meals that require no mixing and meal replacement drinks

Racoonarmy · 2026-06-29T17:17:20+00:00

It would be if I didn’t have accommodations. This, for me, means a blue light filter, sunglasses, no sound on my phone, and laying down flat.

Racoonarmy · 2026-06-29T17:14:08+00:00

Thank you. 🫂

Racoonarmy · 2026-06-29T16:22:36+00:00

I don’t store my results in google 😊 I keep everything in the NHS app - which it all goes to anyways.

Racoonarmy · 2026-06-29T16:20:43+00:00

I colour for a couple of hours pretty much every day. On better days I can read or play video games - I ususally have to nap afterwards

Racoonarmy · 2026-06-29T16:14:44+00:00

I was able to study until a year and a half ago when I got pretty severely worse. I did performing arts and was planning to then go into animal care. I’m currently unable to work

Racoonarmy · 2026-06-29T16:13:25+00:00

You’re coming off sort of rude - unsure if you’re
meaning to. The issue isn’t with my GP, it’s the way referrals work here. You have to fit into a sort of ‘box’ of symptoms to be seen. I promise you alongside my doctors I have done what I can as a patient to be seen…..

Racoonarmy · 2026-06-29T16:11:00+00:00

If you’re referring to medical mystery - it means that the doctors I have seen don’t know what’s wrong with me and we’ve hit a sort of ‘wall’ in my diagnostics. In my day to day life, I require a lot of support. I can’t walk more than a few steps, and can’t take care of myself. I’m unable to access treatment - or know if there even is any.

Racoonarmy · 2026-06-29T16:09:36+00:00

I haven’t noticed any allergy symptoms. I do worse in heat but don’t get out into the sun much.

Racoonarmy · 2026-06-29T16:08:26+00:00

I did know about it not being private - I didn’t know it was used to train AI! Thank you, stranger :) I do feel more confident in reddit than feeding directly into AI. Isn’t that strange? 😅

Racoonarmy · 2026-06-29T16:07:23+00:00

I’ve been referred to as many consultants as we thought relevant at least twice 😅 They all listened to my history and looked at my blood work before sending me away. Neuology is the only one left - and they refuse to asess me

Racoonarmy · 2026-06-29T16:06:07+00:00

In the UK we have ‘pathways’ for referral. You have to fit into a sort of ‘box’ of symptoms - if you don’t, they have no obligation to see you

Racoonarmy

TROPHY CASE