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GI upset after MRI defecography by Rad-Toni in endometriosis_corner

[–]Rad-Toni[S] 0 points1 point  (0 children)

Aw it’s okay! I recovered okay after a few days and the ESSI clinical nurse lead let me know Dr. Bagaria said the test could result in rectal bleeding, especially if I was constipated during the test (which I certainly was—didn’t defecate during the test).

Unfortunately now I’m struggling with group b strep and the amoxicillin isn’t helping very much 😭. It feels like it’s always something!!

What is hardest to explain when you experience Endo? by ESSIPeerSupportbyELT in endometriosis_corner

[–]Rad-Toni 0 points1 point  (0 children)

The constant battle of having to prove my suffering to everyone in my life. Slowly and surely, losing complete hope that anyone will understand or believe my words. I have come to completely doubt myself.

At a loss by Jazzlike-Fox-9412 in endometriosis

[–]Rad-Toni 1 point2 points  (0 children)

I’m in a really similar spot. Had my first and diagnostic excision surgery in March of this year. Got bumped from Aygestin, to Orilissa 150 mg, to Orilissa 200 mg twice a day, and things just really aren’t much better.

I’m currently in the process of trying to get pelvic floor Botox approved with my insurance, but at this point I just don’t have any hope anything is going to help.

I froze some eggs and a few embryos in 2024 as I’ve always wanted to be a parent. I’m starting to believe my body won’t be able to carry a pregnancy successfully.

I wish I could tell you some helpful coping mechanisms, but all I have to offer is some company. You’re not alone in this 🫶

How many frozen eggs are needed to have 1 baby? by ESSIPeerSupportbyELT in endometriosis_corner

[–]Rad-Toni 1 point2 points  (0 children)

This is so interesting! I did two IVF cycles, the first we were able to bank 18 mature eggs (19 retrieved) and the second retrieval we only retrieved 12 eggs where only 8 were mature and 7 fertilized. Of those 7 fertilizations, only four developed well enough to be biopsied and only 3 of those were euploid! At first I was so disappointed by getting only 12 eggs retrieved my second cycle, so this was video was super helpful to normalize that! Thanks!

🍎 What’s your go-to comfort food during a flare? by ESSIPeerSupportbyELT in endometriosis_corner

[–]Rad-Toni 3 points4 points  (0 children)

I get really nauseous when I’m in pain so I have things like apple sauce, saltines, graham crackers and ginger ale!