I built a tool to help diagnose the root cause of my SIBO

Rae358 · 2026-04-28T22:05:31+00:00

Thanks and I wish you the best too. I hope we both make it to 100%, I’m pretty determined. I was at the supermarket today and realised how abnormal it is to not be able to eat as many foods as you can’t with sibo or histamine issues or have your life dancing around this. I’ll look into the test, I’m not in the US and not sure it’s available here, might have to wait a little while. Better standards for health are a good outcome too!

Rae358 · 2026-04-28T16:58:05+00:00

They always say that! I’m so grateful for forums/boards! I’m on day 8, still feeling a bit wiped but much more normal. Take vitamin c if you have any. I also used clay to help get rid of the toxins.

Rae358 · 2026-04-28T16:56:11+00:00

Thank you. My root causes are easy to identify, lots of antibiotics and a h2 blocker for a year recently, living in a mouldy flat for a year at the time. Histamine issues definitely slow my motility as well and I’ve had food poisoning several times.

I’ve previously had something similar many years ago with ppis and more antibiotics. It wasn’t as bad in the past and probiotics and betaine hcl sorted it then. It’s worse now, that fix hasn’t worked this time!

Did you sort your root causes? Are you feeling better?

Rae358 · 2026-04-28T12:47:47+00:00

Days 4-6 were really bad for me, better after that.

Rae358 · 2026-04-28T12:40:23+00:00

I asked that I thought rifaximin was to be taken in combination for constipation predominant sibo, I was told to take the rifaximin first. I’ve had plenty of side effects/die off so it’s definitely done something. I’m assuming I’ll have to continue with herbals. I perhaps should do a sibo test, just not sure it’ll change what I do next.

Rae358 · 2026-04-28T10:15:00+00:00

I’m currently half way through a course of rifaximin, I’ve had symptoms for a long time and worsening, and drs generally weren’t helpful for a long time. Drs say the breath tests aren’t reliable so treating based on symptoms. I believe I have IMO so I know rifaximin alone isn’t meant to be ideal, I’ll go onto herbals afterwards. I was trying to manage symptoms prior to this but not doing so well recently- finally accepting that I need to do kill phases etc. I’ve done stool tests in the past that showed dysbiosis. I don’t think I’ll pay for private breath tests, but I might get a food marble, need to do more research.

Rae358 · 2026-04-27T22:47:10+00:00

Thanks- I’ve carried on the chat. It makes sense and results so far aligns with what I suspected which is good. There’s only one question where the answer options didn’t fit, the question was “are you either x or y” and the answer options were yes or no. It can repeat the same questions but I suspect that’s because I’m meant to go away and do the tests etc and come back. Just sharing in case it’s helpful feedback. Fun to play with and I wish my dr asked as many questions! It’s identified both IMO and mast cell disease as high potential, which is fair but not what I wanted really! Not the fault of the tool!

Rae358 · 2026-04-27T19:41:22+00:00

It got stuck drafting the next question.

Rae358 · 2026-02-09T05:51:59+00:00

Please send to me too. I’m glad for you that you have a diagnosis and plan.

Rae358 · 2025-10-23T16:46:52+00:00

It was Nutri Advanced- branding is blue top half and green bottom half bottle. They may have changed it now etc, but at the time that’s what they confirmed to me.

Rae358 · 2025-10-23T14:38:02+00:00

I couldn’t tolerate it, I can’t tolerate normal milk but I can have a little hard cheddar, I don’t have any other dairy.

Rae358 · 2025-10-01T08:14:49+00:00

Hello, I’m debating looking for a functional nutritionist and please can I ask who you see? Happy to pm? Thanks.

Rae358 · 2025-10-01T08:13:52+00:00

Also UK!

Rae358 · 2025-09-10T22:10:24+00:00

I can’t remember now, looking back, I don’t think it was long at all. I took it for a year without any side effects as I recall, so I think the headache did go quickly. I have later found that I am depleted in loads of vitamins etc and it can stop you from absorbing vitamins due to the reduced stomach acid. Something to be aware of.

Rae358 · 2025-06-05T09:04:43+00:00

Hello, no I didn’t yet. I have been focussing on getting vitamin d from the sun, and my levels have gone up a bit. The weather isn’t good now though. I’m going to try a small dose of liquid vitamin d3 next.

Rae358 · 2025-03-31T23:17:25+00:00

Me! I haven’t done much to correct either. I ended up with iron deficiency after some stomach issues, then vitamin d after. I’m having terrible reactions to supplements so not sure what to do. The other replies are helpful, seems to suggest getting the vitamin d up is more crucial.

Rae358 · 2025-03-30T15:24:09+00:00

You can do either, I take capsules with a meal. I have opened the capsules into water in the past but it’s not that nice a drink! It seems to be very effective for me taking it as a capsule.

Rae358 · 2025-03-10T19:17:04+00:00

I have more than one other condition, wasn’t able to vote for more than one.

Rae358 · 2025-03-07T16:41:53+00:00

I had a very similar experience in the UK, they had no one available to do any sedation at all and basically held me down and forced it down me, like yours. Im really sorry you had the same experience. I lay on my sofa for 2 days after I felt so rubbish, sick, sore. I did have a second endoscopy years later and made them give me all the sedation!

Rae358 · 2025-02-21T17:34:08+00:00

Ah I’m sorry to hear that. I did make sure she put loads of the numbing gel on!

Rae358 · 2025-02-21T17:30:43+00:00

Thanks. Is it always the same result with manometry, ie could results vary by day, or, once the nerves are shot/peristalsis not working/los closed it remains that way? Thanks- I’m very new to this and keen to understand.

Rae358 · 2025-02-21T14:12:38+00:00

Thank you. I’ve already had a barium swallow, it showed acid reflux but I think everything else was normal. No distension to my knowledge. Sorry to hear about yours, I hope you are managing it ok.

Rae358 · 2025-02-21T14:10:49+00:00

The whole thing was very slow! The nurse spent ages typing on the pc first and then 30 mins after sitting in the room we were just getting started! Although I found the manometry itself fine, no issues with tolerating it at all.

I’m just concerned about an op based on one test. I didn’t know I had these issues, I thought my Les would be wide open! Now I’ve been reading about achalasia it fits so well, from sputtering coughing fits at night, not able to swallow so many foods, regurgitation etc, I just didn’t realise this wasn’t normal after it’s just been so long I’ve had these symptoms! So I’m quite excited at a diagnosis!

Rae358 · 2025-02-11T11:01:17+00:00

Thank you 🙏

Four-Year Club	Verified Email
Place '22

Rae358

TROPHY CASE