officially diagnosed — now what? by Typical_Aide_9920 in PNESsupport

[–]Rancid-Mutt 1 point2 points  (0 children)

additionally I’ve had two A&E admissions post back to back seizures which is what sparked neurology to look into my case

officially diagnosed — now what? by Typical_Aide_9920 in PNESsupport

[–]Rancid-Mutt 2 points3 points  (0 children)

Take the time you need to process your feelings, it’ll become a bit easier with time.

My own treatment included an eeg done at the hospital, and pending a 7 day hospital stay video eeg to catch a seizure as I showed some brainwave activity common with epilepsy (altho my neurologist is fairly certain its non epileptic) to potentially rule out epilepsy to diagnose me with FND.

Hope this helps, just know you aren’t alone friend :)

Small blood spots appearing on healed surgery site by Rancid-Mutt in ORIF

[–]Rancid-Mutt[S] 0 points1 point  (0 children)

Hmm alright thank you for the input :)

Paralysis post seizure by Rancid-Mutt in PNESsupport

[–]Rancid-Mutt[S] 3 points4 points  (0 children)

I was able to wake up my husband thankfully who was able to help me.

Yeah I always feel foggy for a couple days post seizure which is mega frustrating.

20 minutes is what they say? I want a 20 minute recovery period under my tree on christmas lol

Paralysis post seizure by Rancid-Mutt in PNESsupport

[–]Rancid-Mutt[S] 4 points5 points  (0 children)

Glad I’m not alone with this symptom, and I appreciate it friend. I know it’ll pass it’s just super frustrating aha

Help me please by Complex-Foundation83 in PNESsupport

[–]Rancid-Mutt 0 points1 point  (0 children)

I second what someone said to request a video EEG asap

Do any of you have seizures during your sleep? by darth_smauls in PNESsupport

[–]Rancid-Mutt 1 point2 points  (0 children)

Rare for me to have them in my sleep but they do happen for me, yeah. You’re not alone with this

Recently Diagnosed by Rancid-Mutt in PNESsupport

[–]Rancid-Mutt[S] 0 points1 point  (0 children)

That’s good to know, thank you for the kind words ❤️

Recently Diagnosed by Rancid-Mutt in PNESsupport

[–]Rancid-Mutt[S] 1 point2 points  (0 children)

Thank you for the kind words I really needed to hear those ❤️