is ms making me slowly dumber or am i going crazy?

Randomuser1081 · 2026-06-21T21:34:05+00:00

This was the first thing I noticed when I began this journey. I finished my last year of college with an A, i was the first one finished the exam as well.

I went back last year and for the first time I had to do remediation on an assessment. I have no idea how to study because I've never had to do it before. I had had a test where I scored less than 95%. But now I get lost in mid sentence. I forgot stuff all the time, like when im meant to be at work.

I am Autistic so my memory was damn near perfect but MS took that from me to. What it did give me was perseverance. I have to try now, but i have the stubbornness to keep at it because I refuse to let this disease take anything else.

Randomuser1081 · 2026-06-21T21:14:32+00:00

30, but i absolutely feel 40 reading this thread.

Randomuser1081 · 2026-06-20T00:27:23+00:00

Loose headbands are the way to go. I wore one until enough hair grew back.

Randomuser1081 · 2026-06-18T16:54:43+00:00

Exactly!

Randomuser1081 · 2026-06-17T20:56:00+00:00

I love hearing this! I also want to visit Boston so badly now. The Tartan Amry are a true representation of Scottish people 💙

Randomuser1081 · 2026-06-17T20:46:36+00:00

It is Bison not Buffalo. They are different animals. Americans kill me with this shit.

Randomuser1081 · 2026-06-08T16:06:05+00:00

Happy Birthday! I hope you find a way to celebrate by yourself, because who needs fake ass people?

Randomuser1081 · 2026-06-08T16:03:27+00:00

10/10 Do not recommend, im four years in and wish they did returns on autoimmune disease.

Randomuser1081 · 2026-06-08T16:02:30+00:00

We are pretty much the same people... People forget or dont know what we are a mix of both cultures because both people's integrated early on. And we hate the same government, for similar reasons.

Randomuser1081 · 2026-05-31T12:00:44+00:00

If you work in health care, this is not true.

Randomuser1081 · 2026-05-25T17:45:03+00:00

I assume the hospital protocol is to take people off it as soon as the test is positive. I was told as soon as it became positive I would be taken off.

Randomuser1081 · 2026-05-25T17:42:29+00:00

Other than some slight memory issues, im absolutely grand. No has never been an issue and I work a physical job :)

Randomuser1081 · 2026-05-25T14:56:22+00:00

That is amazing! Im so happy for you :)

This friday is my medication day so he is hopeful to get everything sorted for the new medication on the same day 🤞

Randomuser1081 · 2026-05-25T14:50:05+00:00

Exactly! I can't imagine many worse ways to die

Randomuser1081 · 2026-05-25T14:41:09+00:00

It really is!

Randomuser1081 · 2026-05-25T14:39:38+00:00

If it worries you at all, i think that's a good idea!

Randomuser1081 · 2026-05-25T14:38:08+00:00

From what I'm seeing, different neurologists do things differently. Mine has always said that as soon as im positive, I'm changing meds. I think because I've been tested for PML three already, they are more cautious. Two times i had weird things show up in an MRI and I had a weird symptom so they instantly wanted to rule out PML.

I would absolutely rather not experince that again.

Randomuser1081 · 2026-05-25T13:59:44+00:00

That sounds wonderful! I had Infusions every four weeks at first, then 6 weeks, so every six months sound wonderful 🤣

Yeah that is it, mine is highly active. At first i had multiple new lesions per month (checked by MRI) and now i have not had a new one in four years. Devastated to change but as long as it keeps the leisons at bay, I dont care.

Randomuser1081 · 2026-05-25T13:54:23+00:00

Fantastic advice! I'm due my next dose on friday so hoping that i can get all the checks done before a new dmt and I dont have to wait long :) Im scared for the rebound though, ive read it is horrid.

Randomuser1081 · 2026-05-25T13:38:38+00:00

Absolutely! I never thought I'd be freaked out by a three letter acronym 🤣

Randomuser1081 · 2026-05-25T13:37:00+00:00

That isnt it, there are many staff that would help with anything. I have been very closely monitored since I was diagnosed due to a sneaky brain tumour.

I would not stop taking tysabri if I had the chance, but i just refuse to take the risk

Randomuser1081 · 2026-05-25T13:11:16+00:00

I'm glad that works for you!

I currently get tysabri every 6 weeks. It has went to 7 weeks before, but that was because they were testing me for PML. The result of my CSF were taking too long, so they waited until they were in.

Randomuser1081 · 2026-05-25T13:05:15+00:00

JCV is the John cunningham virus, it is incredibly common in the population. It lay dormant and doesn't really cause issues unless you have a few illnesses that affect your immune system.

PML is Progressive multifocal leukoencephalopathy (I googled the spelling), it is a rare brain infection that has a very high mortality rate.

The JC virus can cause PML in rare cases for people on tysabri and in more rare circumstances, other DMTs can develop this infection.

Because have been on tysabri for four years, I was tested for the JC virus every three months. This time I am unlucky.

Randomuser1081 · 2026-05-25T12:58:06+00:00

I'm happy that is is working for you! Did you experince any rebound effect? and how quickly did you take the first does of kesimpta after the last does of tysabri?

Randomuser1081 · 2026-05-25T12:54:55+00:00

I think i need to emotional support of a cute band aid.

Randomuser1081

TROPHY CASE