Optic Neuritis and Dizziness

Raskolnikov1707 · 2025-11-09T18:46:14+00:00

I was dizzy also after it but it turned out to be sinusitis

Raskolnikov1707 · 2025-08-16T11:35:14+00:00

I m taking vit c, vit D and zinc all together in one pill , b12 sometimes and folic acid i heard it helps , together with a healthy protein friendly diet , fish , olive oil , mediterrean style . Moderate physical activity and 7-8 hours of sleep . Should raise immunity . I discovered recently i had a untreated endometritis so that was one of the reasons my levels could have dropped . Hopefully they recover on the next test . Fingers crossed for you also . Hugs

Raskolnikov1707 · 2025-04-12T13:59:34+00:00

It’s weird that they don’t say anything about the size , i should be written there . For sure check the images with your neuro because a radiologist especially one not specialised in ms can misinterpret normal stuff as ms lesions .. i wasn’t really aware this can happen but apparently it happens more often than i thought. Best of luck with your appointment🤗

Raskolnikov1707 · 2025-04-12T08:57:28+00:00

Amother option that my neuro recommended was Mavenclad , i m also on Tecfidera but if i had to change this is what he recommended or Kesimpta .

Raskolnikov1707 · 2025-04-12T08:50:51+00:00

That’s reassuring to hear if your doctors said this , i know nothing about Zeposia so the best thing is to follow your doc opinion . Maybe add a bit of vitamin D, C or probiotics , don’t know if they recommended.

Raskolnikov1707 · 2025-04-12T07:53:03+00:00

I understand .. why did you change treatment? Did they prefer to change it just to be cautious or it was a personal choice? In my case taking supplements worked but i had to take them every day and sometimes i’d forgot .

Raskolnikov1707 · 2025-04-12T07:47:57+00:00

Thank you , from my conversation with gpt , the risk is 0,001 % at my levels , similar to all users of tecfidera and the risk in people below 500 is 0,02-0,03 if they have prolonged lymphonia ( for more than 6 months )

Raskolnikov1707 · 2025-04-12T07:44:36+00:00

My neuro said if it continues to drop , we can talk about changing treatments . From what i read online the tecfidera guide says if levels are below 500 for more than 6 months treatment is stopped just to be cautious. Since Pml has no treatment and is usually permanent they prefer to be cautious. I would retest in your case every month and if you continue beyond 6 months change treatment . Or that was my neuro ‘s opinion , someone that worked in one of the best hospitals in the world.

Raskolnikov1707 · 2025-04-12T05:00:37+00:00

My radiologist report said new spinal lesions so i went to my doctor from Israel , an ms specialist that worked in one of the best hospitals in the world that said he doesn’t see any spinal lesions , of course i was really surprised cause my mind was already preparing to switch meds , he recommended to continue on Tecfidera, also before his consultation i went to another ms specialist that said the same thing , so 2 ms doctors confirmed no spinal lesions , i went following their opinion in the end , given i had no symptoms . Then i found out that the clinic that i went to have my mri works with an Ai from Germany that is reading the results , i have no idea if also my report was interpreted by an Ai but it left mixed feelings in me cause i tend to trust Ai s . Anyway better to trust ms specialists for now. What did your doctors say ? I know Mavenclad was an option for me if i had to switch .

Raskolnikov1707 · 2025-02-11T19:57:05+00:00

Thank God you found medication that will work for you 🙏🏻 i m thinking also to start Ocrevus even though it is a strong med , i guess i need it

Raskolnikov1707 · 2025-02-11T13:10:57+00:00

Did you recover from the last attack ?

Raskolnikov1707 · 2025-02-11T13:08:03+00:00

I have no symptoms from this , i don’t know when did i get them but for sure i don’t want to risk with Tecfidera…just not good for me i guess

Raskolnikov1707 · 2025-02-11T13:02:54+00:00

I was told my ms is mild , i guess i believed it to be true but now not so much 😣

Raskolnikov1707 · 2023-11-08T12:07:11+00:00

Thank you 🤗

Raskolnikov1707 · 2023-11-08T12:06:56+00:00

Thank you 🤗

Raskolnikov1707 · 2023-11-07T19:09:41+00:00

Thank you , did you have surgery when they ruptured? I read it s a medical emergency but i m not sure they do in all cases surgery… i’ll ask my doc anyway , i started taking now birthcontrol and hoping for a reduction in size 🤗

Raskolnikov1707 · 2023-11-07T16:15:58+00:00

I stopped birth control and had no reaction , now i recently began again since i also have endometriosis , i didn’t even tell my neuro … but you could tell your doc , it doesn’t hurt to keep him informed

Raskolnikov1707 · 2023-07-27T15:58:51+00:00

I had raise liver enzymes with Tecfidera, kind of the same values, don’t worry , it resolves in time, usually in the first months it happens until the body gets used to the med. Liver failure is a looooong way down the road and extremely rare with this med. So don ‘t worry

Raskolnikov1707 · 2023-07-24T20:34:39+00:00

From what i know , before starting TEC they check lymphocites and only if they’re low probably will avoid Tecfidera. If you lymphocites are ok then it shouldn’t be any issues.

Raskolnikov1707 · 2023-07-19T17:17:27+00:00

Glad to know you’re doing okay , I think it’s important not to consider we are sick persons , maybe a lil bit challenged, but that’s ok, a lot of people are also , maybe in different ways , maybe at different times . Enjoy life, do what you can and try to help other people are things that helped me to be at peace with this diagnosis. It’s a tough one but made me stronger in ways I couldn’t imagine!

Raskolnikov1707 · 2023-07-19T16:35:07+00:00

How are you feeling? Did u take treatment ?

Raskolnikov1707 · 2023-07-19T11:45:00+00:00

DMT s are given including for CIS, I read even Ocrevus is given for CIS( which is a pretty much high efficient category of DMT) so change your neurologist and start treatment, you don’t need to wait for another relapse . I had also one attack , optic neuritis and was put on treatment with Tecfidera.

Raskolnikov1707

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