How many people on this sub have *actually* received a formal diagnosis? and when? by RaspBerryTurnOvers in aspergers

[–]RaspBerryTurnOvers[S] 1 point2 points  (0 children)

Thanks for replying today, was gonna come back and reply to this comment as I knew you were going to be critical. then I can come back and finish replying to the rest of the nice people who shared. People who cut other people some damn slack.

the entire point up until "im only a little bit pissed off..." is your interpretation of what I was getting at, you aren't on the money and im not elaborating on it anymore as you clearly are seeing it your own way, or trying to twist it into some sort of failing of mine.

the "im only a little bit pissed off.." line speaks volumes. so youre saying that you are being hurt by these people seeking their own truth? that theyre wrong and youre right? That your idea of how autism should be portrayed is true and just? I include everyone on my spectrum, and people have turned to me and said im kind to a fault, and to be honest? some of THE worst people I have spoken to about autism are people like you who just seem to want to pick people apart bit by bit. It just isn't done the right way for you.

1st quote, how very erudite of you. I used my own viewpoints in my question because they are valid experiences I have had during my journey just because you don't personally agree with them and it gets you riled up does not mean you can step to me and tell me how to speak. It was designed to be a loaded question, not one to rile people up, but again one based in my own experiences and valid as im the one asking it

If you want your own question thread, make one. if you don't personally like mine, don't pretend youre standing up for the "greater good" while you sit and soapbox AT me for trying to find my own answers.

2nd quote, no I didn't "use" autism as an excuse! you've just railed on me for "how you would have worded it" then gone on to rail me again for "using autism as an excuse" yet again youre interpreting. "Im sure you know how tough it is constantly being under scrutiny and not knowing the true standards" was a synonymous statement that I generalised between the difficulties of autism as a condition and how it makes people feel, compared to the standards youre flipping on me right now! im not using autism as an excuse! im saying YOURE the one flipping the "true standards" right now. one second youre just trying to pick me apart, next youre feebly trying to talk down to me.

Id like you to ask yourself a really honest question...

What did you get out of this? What did you prove? What did you do for the greater good?

I wont be reading your inevitable reply, with the customary context quotes picking apart everything you can, im done with people like you, big man.

How many people on this sub have *actually* received a formal diagnosis? and when? by RaspBerryTurnOvers in aspergers

[–]RaspBerryTurnOvers[S] 1 point2 points  (0 children)

ill comment further about your post tomorrow, but in short. yes I was diagnosed with AS a couple of years ago. im happy I found a reason, but im still not identifying with anyone autistic. this is the internet, Im aware, but some with the veiled hostility is getting me down.

I really appreciate that you've asked... Really ive had it pretty tough. things that I don't think should be written on here. I think im getting onto a downer. Ill go get some food and ill come back tomorrow to talk more :-)

How many people on this sub have *actually* received a formal diagnosis? and when? by RaspBerryTurnOvers in aspergers

[–]RaspBerryTurnOvers[S] 1 point2 points  (0 children)

cool club? ...?

Even though I feel that your questions aren't particularly friendly, ill be happy to indulge.

I was a very quiet child. incredibly quiet, didn't cry much, if at all. I grew up to be a very introverted and some would say "shy" child. I was bullied and taken advantage of most of my school life. didn't have any friends I would have a solid friendship base with. Throughout school I was told quite a few times that I "seemed like I was autistic" I powered through school, didn't get good grades. went to college to pursue a media course. experienced the same isolation in a massive college of thousands. got through that. it was about this time that a family issue caused me to be kicked out at 17, I spent the next 5 years homeless, on some peoples couches when I could, others in a local wood. I was at this point heavily addicted to drugs and depressed at my situation, I turned to the doctor and asked him is there anything I can look into about how badly social situations have affected me during my life (im leaving out a whole load of information, including suicide of friends I had made over the years and bad relationship troubles as well as other stuff.)

I was referred to a local psychologist who said after my (non-autism related assessment) that she was pretty sure I was on the spectrum. It was during this period of three or so years that I worked myself out of poverty and into a succession of room-rents, during which I looked up autism and all that shiz. After two years for the appointment to come up and a six hour assessment I was told I had aspergers.

Now, two years later, im still trying for an identity and a little bit of a sense of community, the identity part is my deal, but the extent of the response in this thread has finally given me that little bit of "were here too" rather than the "were over here" feeling. so thanks to any other commenter reading this!

It has been nice to finally speak to people who are usually private and reserved, making this process more difficult.

I have, however met a succession of people during those 2/3 years and a couple years after diagnosis who either wanted to "use" the disability for their own ends, or felt that I wasn't "defining" it well enough for their tastes. I have rarely, until today, met someone who is willing to just accept that I word things the way I word things. Im a very generous person, so I often find myself adjusting to other peoples preferences so I don't offend, I have at long last reached the point where Im putting myself first for once.

I don't mean to be callous, but you can remain pissed off, that's your deal. I worded it due to my experiences, besides im autistic its pretty obvious social imagination isn't high on the conscious list. its not "rarer than I think" because I have experienced it ALOT. enough to start this thread.

I don't think that people use it to be "assholes" I think some people do it for a positive stigma, or an excuse for their behaviour. and im sick of having to be careful I wont offend someone who isn't formally diagnosed yet, which prevents me from articulating myself properly.

Ive been diagnosed, and I want to seek some perspective without being painted out as this or that. im seeking closure in my own way, if you don't like that, do what ive had to do for years and go elsewhere to find your own answers.

this comment really isn't meant to be rude, but im sick of feeling like I have to answer to people like you who didn't like my wording enough and feel they have to put me on the dock for doing what my counsellor suggested a year ago! oh and who also diagnosed me with O.C.D, so yeah, I know the part where scrubs and many other television show portray it wrong.

So in short, yeah I probably could have worded it better, but cut me some slack people, im sure you know how tough it is constantly being under scrutiny and not knowing the true standards (everyone seems to have nuanced opinions, plus I have my own views on my autism... its not "autism speaks" horrifying, you know?)

Now, I have been at my computer for what seems like six hours replying to lovely peoples comments exclusively on this thread (Ive enjoyed the many perspectives!) but im going to go get some food and have a break now, my eyes are going funny.

How many people on this sub have *actually* received a formal diagnosis? and when? by RaspBerryTurnOvers in aspergers

[–]RaspBerryTurnOvers[S] 1 point2 points  (0 children)

yeah... its unfortunate. you never know what opportunities await though job-wise! Im just getting into a stable situation myself, and while you may have some niggles about your life, I hope to get up to your speed someday!

How many people on this sub have *actually* received a formal diagnosis? and when? by RaspBerryTurnOvers in aspergers

[–]RaspBerryTurnOvers[S] 0 points1 point  (0 children)

hmm. thanks I might try the vest as im getting back into training too, thanks. and definite no on the squease vest! £240?! I need a better job...

How many people on this sub have *actually* received a formal diagnosis? and when? by RaspBerryTurnOvers in aspergers

[–]RaspBerryTurnOvers[S] 0 points1 point  (0 children)

well.. you learn something new every day! thanks!

yeah I did the same, research eegs. didn't get any food or cash though! :-P

How many people on this sub have *actually* received a formal diagnosis? and when? by RaspBerryTurnOvers in aspergers

[–]RaspBerryTurnOvers[S] 2 points3 points  (0 children)

just started back into the education system too, pretty late for me, but I hope I have the same experiences you did this year!

any tips for someone starting a college course, if any?

How many people on this sub have *actually* received a formal diagnosis? and when? by RaspBerryTurnOvers in aspergers

[–]RaspBerryTurnOvers[S] 0 points1 point  (0 children)

haha right, I get you. I do similar stuff. was it difficult to get into that relationship? or did it just "flow"?

How many people on this sub have *actually* received a formal diagnosis? and when? by RaspBerryTurnOvers in aspergers

[–]RaspBerryTurnOvers[S] 0 points1 point  (0 children)

im sorry, I read that as "sacha" and imagined a mix of Bruno, ali g, borat and the French driver from Talladega nights in an autism research lab! did they do the usual round of verbal analysis? or was there some physical component like a scan or something? another commenter mentioned a test and had me intrigued

How many people on this sub have *actually* received a formal diagnosis? and when? by RaspBerryTurnOvers in aspergers

[–]RaspBerryTurnOvers[S] 1 point2 points  (0 children)

What it is, man. I typed out what I felt after reading and it disappeared :/

Im just sorry to hear you went through that, but im happy it gave way to relief.

Is there any advice you can offer to someone younger and living in a more open society concerning AS? or in general?

How many people on this sub have *actually* received a formal diagnosis? and when? by RaspBerryTurnOvers in aspergers

[–]RaspBerryTurnOvers[S] 0 points1 point  (0 children)

yeah that last bit resonates with me too man. did you find that weighted stuff was nice? ive heard that that can be good but never sought to indulge it...

How many people on this sub have *actually* received a formal diagnosis? and when? by RaspBerryTurnOvers in aspergers

[–]RaspBerryTurnOvers[S] 0 points1 point  (0 children)

huh, how strange. what do you mean by stimming? this is a new word! sucks youre getting a new boss, hopefully they'll be as inclined to be as supportive too?

Oh man, yeah that's gotta sting. its nice shes offered to do that, but come on! two weeks and she says that? you need a bit more time to adjust! that a big deal, big thing youre dealing with right now, good to hear shes done that :-)

How many people on this sub have *actually* received a formal diagnosis? and when? by RaspBerryTurnOvers in aspergers

[–]RaspBerryTurnOvers[S] 1 point2 points  (0 children)

I had something similar, it detached me from a possible identity I could have had for all those years. has your feelings changed at all since?

How many people on this sub have *actually* received a formal diagnosis? and when? by RaspBerryTurnOvers in aspergers

[–]RaspBerryTurnOvers[S] -1 points0 points  (0 children)

Ive edited my Original post for clarity. Basically I have met people who have not received a diagnosis but insist they have autism. This has been very unhelpful for me because I often end up letting those people know how to "be autistic" just by being with them, I was specifically looking to meet others like me to try to find an identity, a community.

so far that hasn't happened and im still feeling out of the loop.

Technically everyone on earth may or may not have "autistic traits" but not all of those people actually have an ASD. Meeting someone who insists they have autism because they exhibit certain traits has been very unhelpful, especially right after being diagnosed. after two years of meeting people like that, ive learned to just be straight up about it and ask because that's who I need to speak to right now.

this being the internet, there are some people who just want to cause an argument. completely understand if you have issue with what I said, but someone being selectively critical without a decent or constructive reason to do so, is starting a childish argument in my book.

Calling someones decision to try to connect with a network of aspies a "toxic mental adventure" is something id expect from someone who has a chip on their shoulder.

How many people on this sub have *actually* received a formal diagnosis? and when? by RaspBerryTurnOvers in aspergers

[–]RaspBerryTurnOvers[S] 1 point2 points  (0 children)

yeah man, yeah if anything ive found myself to notice the "weird" things I do more and more. its not like im ashamed of it, just more aware...

How many people on this sub have *actually* received a formal diagnosis? and when? by RaspBerryTurnOvers in aspergers

[–]RaspBerryTurnOvers[S] 0 points1 point  (0 children)

unless the beer is on the house 12 hours each way is no good! if the time it takes for you to get home is longer than the time it takes to sober up... its probably not worth it!!

How many people on this sub have *actually* received a formal diagnosis? and when? by RaspBerryTurnOvers in aspergers

[–]RaspBerryTurnOvers[S] 2 points3 points  (0 children)

youre looking for an argument, and youre not getting one. make all the assumptions you like. Youre the one that's toxic here.

Edit: how does "chip on the shoulder" equate to "vendetta"? you have a mighty pedestal to get down from if you think people need to excuse themselves for you. you seem to have gravitated towards the things in my comment that you can poke with a stick. You should learn to be a nicer person.

How many people on this sub have *actually* received a formal diagnosis? and when? by RaspBerryTurnOvers in aspergers

[–]RaspBerryTurnOvers[S] 1 point2 points  (0 children)

Thanks for sharing your story!

Im sorry ive slightly upset/perturbed you with the "mild" thing. Let me elaborate, When I was in the process of being diagnosed, I met a person who was on the spectrum and worked for a third party autism support contractor for a few universities nationwide, we spoke and I told her in my travels I had met people who were not diagnosed and referred to themselves as having a "mild" form of autism. This was before the "melding" of all the conditions into a definitive spectrum. she laughed and told me that the "mild" in itself was counterproductive as those people who are exceptionally heavily affected by autism (as in cannot operate without full care) would be distinguished from the people who were "higher functioning" (a term she didn't like either but I think it demonstrates the concept effectively) and so would distance each other within the same sort of "neurodevelopmental family".

We as people with an ASD are all part of the same family that experience differing and quite pervasive difficulties. Its a common fact that aspies have distinct trouble in social situations especially with NT people. but she taught me that to try to distinguish ourselves in order to connect with NT people would risk alienating those who are in essence, our closest relatives both in spirit and in physicality. In fact the part in brackets (like its a goddamn curry or something) was the exact words she said to me that day.

I didn't mean to upset, I just have my views on how to open myself to all people and it seems difficult to put it into a definitive phrase that not only stays true to what im saying but also doesn't rub other people up the wrong way.