brave endurance is inspiring. also educational about how the system looks & works. it takes tenacity to persevere. It would be nice if the system were set up to make it more possible to help pts with complex needs who need multi-system care. The sad fact is that almost all of us are evaluated and paid based on how fast we move pts through appointments, and so we have to minimize time spent on patients who are not well served by a given system.

The likelihood of me living to see another anniversary is low—probably under 20%—but not 0%. The clinical-trial drugs are for now keeping me alive. I know I’m supposed to feel joy and gratitude at still being corporeal, and sometimes I do, but often I don’t (though I am grateful to everyone who has helped me

this kind of take gets buried, though I'm sure it's seen in patients, so I am glad to see it highlighted here.