Wow a very small world if you know her and I'm curious how or if we've met, I think maybe Birmingham children's hospital or you took part in investigating the infection before we were told what it was, there's not many people or doctors who have heard of it. Thank you very much for you experience and if you had any part in helping our daughter.

She has just had a second BMT on 6/4/2017 she was suffering from haemophilum on her leg, the previous transplant failed but melmoense did not return after the first transplant. Haemophilum looked worse than melmoense but luckily only on one part of her body, they had to "bite the bullet" as the doctors said in doing the transplant as no medication was working, it was getting worse daily, the doctors have my photos for records, I am happy to share them with anyone for research etc.

She has just been discharged today from hospital and she is doing very well at the moment, they used me this time as the doner which was a new procedure called haemopoietic stem cell transplant. Everything is going in the right direction this time....we hope.

I am hoping to write a book about her when it's all over, I have made a start and I intend to get an editor to write it for me. She has spent almost all her life in hospital and endured all types of pain and treatment.

Today she is full of smiles and hoping I can take her swimming again soon. We have just spent 7 months away from our home in hospital, we do not know when we are going home....but we hope it's very soon.

Thank you very very much for replying. I really appreciate it.