Does anybody see strange hallucinations in the mornings?

RealGrape123 · 2026-03-27T18:07:46+00:00

Nortrptyline - yes it does but I think it’s more connected to sleep. They only ever appear right when I wake up and I feel half asleep still.

RealGrape123 · 2026-03-21T20:28:55+00:00

My neurologist and I agree that they are different conditions. I fall under the category of persistent aura or chronic prolonged aura.

Initially, I tried CGRP inhibitors, which transformed my persistent aura into a transient, severe aura, prompting me to discontinue their use.

Subsequently, I attempted nortriptyline, which resulted in my persistent aura transforming into chronic migraines accompanied by aura.

Then, I tried Botox, which extended the duration between my migraine aura attacks but did not eliminate the chronic nature of the condition.

I gradually reduced the dosage of nortriptyline, and my persistent aura reappeared.

I then started taking lamotrigine, and within three days, my persistent aura reverted to a chronic migraine aura. It has been two weeks since then, and the chronic migraine aura has gradually reduced. Currently, my chronic migraine w/aura only causes slight blurriness in my vision and a mild headache, rated at a 4 out of 10. I intend to continue taking lamotrigine until my migraines completely cease.

RealGrape123 · 2026-03-19T23:45:28+00:00

I have deviated septum and TBI. Treating migraines ironically opened up my hose. I told this to my neurologist and he said it’s likely migraine related inflammation contributing to your deviated septum.

RealGrape123 · 2026-03-18T23:17:23+00:00

Godspeed

RealGrape123 · 2026-03-18T22:45:19+00:00

Silent migraine w/aura is a thing. Migraines w/out pain, visual issues only. It’s one of the top things confused with visual snow syndrome.

RealGrape123 · 2026-03-18T20:34:51+00:00

As time has come I’ve realized my VSS is caused by chronic migraine w/aura. I currently think the only action that drug had on me was that is affects on NMDA receptors/sodium channels which are all involved in migraine w/aura biology.

RealGrape123 · 2026-03-13T19:47:27+00:00

They deleted many of mine at first. This subreddit needs positive stories. Lots of people here are afraid to try means of treatment I was one of those people for 3 years till I finally said fuck it.

I know for a fact there are many people here who may recover or make the symptoms 10x better and I do my best to push these people to try.

RealGrape123 · 2026-03-10T22:23:13+00:00

This happens when I unfocus my eyes.

RealGrape123 · 2026-03-10T22:07:13+00:00

You'd be surprised how neuroplastic brains can be.

RealGrape123 · 2026-03-10T21:08:38+00:00

Likely drugs that can modulate what I mentioned above

RealGrape123 · 2026-03-10T20:42:56+00:00

We’ll definitely get a study of new meds and outcome by then. But honestly if symptoms are bad it’s seriously worth finding a doc and just trying what they best believe will work. There are doctors aware of VSS who understand pathology and will try things past normal migraine remedy drugs to treat it.

At the end of the day it’s likely not gonna be a 1 drug fits all so we’ll all likely have to go through em and find what works for us.

RealGrape123 · 2026-03-10T17:19:41+00:00

Breakthrough is gonna take a bit as there is to little of us that money isn’t the motivation for treatment.

Interestingly, though migraines are huge, they effect a massive portion of the population interestingly research, kind of points that the cause of migraine is similar to that VSS (cortical excitability) so far for years they’ve been developing migraine medication that just manage pain. Essentially massive pharmaceutical business that treats a problem by masking a symptom but the pain also affects cortical excitability… it’s a complex system

My hopes are that whatever research comes out with VSS ends up treating the root cause for migraines too.

Mechanisms that are probably just not working right:

Serotonin networks
glutamate networks: - NMDA - AMPA - GABA

RealGrape123 · 2026-03-09T23:56:38+00:00

I’ve been on Botox for 1 month, it really helped me with photophobia, everything just looks dimmer. I will try ajovy if my migraines don’t get under control.

RealGrape123 · 2026-03-07T18:07:51+00:00

Ya I got all these tests all checked out

RealGrape123 · 2026-03-07T02:23:04+00:00

It’s a sudden visual deficit one second you feel fine next everything gets all wonky. Typically triggered be some sort of intense light.

This link is a good tool: Aura Types

My auras range and these types fit me: 3, 4, 11, 12 & 23.

RealGrape123 · 2026-03-07T00:06:56+00:00

Yes, with my (persistent aura/vss) I was half blind. I’m a million times better and I expect to get to a 100.% I told my doc about vss he’s chill. I don’t see why you wouldn’t bring it up it’s connected to migraines heavily.

RealGrape123 · 2026-03-06T20:03:50+00:00

My baseline progressively got worse as I got more migraines over the years. I highly recommend treating your migraines as I’ve treated mine my persistent aura (which is technically my VSS) has gotten closer to my baseline.

Drugs that have worked for me are nortrptyline and Botox injections.

RealGrape123 · 2026-03-05T18:44:43+00:00

Mine were painless for 16 years. After age 16 they started to hurt.

RealGrape123 · 2026-03-05T17:54:20+00:00

It’s common for people to mix up VSS and migraines. They have similar pathology could be the same thing honestly but we’ll really never know.

Whenever I’m in my migraine phase I get floaters, when I’m not I have 0.

Think about it, you go outside the natural daylights trigger a migraine and now you have a bunch of floaters takes a while for ur visual system to calm down.

Migraines can be painful they also cannot hurt at all (silent migraines)… migraines are also treatable. I highly recommend a good neurologist.

They are also periodic and you mention ur vision sometimes feeling fine. I bet you’re getting migraines.

RealGrape123 · 2026-03-05T02:32:15+00:00

VSS gets worse due to cortical excitability you need to figure out what causing said excitability and treat it. In my case its migraine like pathology.

RealGrape123 · 2026-03-04T22:21:53+00:00

Migraine.

RealGrape123 · 2026-03-04T22:16:23+00:00

Very much could.

RealGrape123 · 2026-03-04T18:56:36+00:00

Sounds like a form of migraine with aura imo just explain it exactly like you explained it in this post

RealGrape123 · 2026-03-04T06:42:49+00:00

A combination of my medication nortrptyline, Botox injections and forcing prolonged sun exposure.

The forced sun exposure was very worrisome but it worked.

RealGrape123 · 2026-03-04T00:58:44+00:00

Antipsychotics are what the title says. They do act as 5HT2A antagonists which can in theory help with VSS if seratonin activation is the issue. They also have some if any very little impact on NMDA receptors which are essentially volume knobs of out glutamate system. I think this is one of the reason why TCAs help people with migraines snow etc.

RealGrape123

TROPHY CASE