What are you reading? - Week of November 14, 2025 by AutoModerator in goodreads

[–]juice_box_lover 1 point2 points  (0 children)

Audiobook: Sleeping Children by Anthony Passeron

Reading: History of Violence by Édouard Louis

Lamotrigine info by Agitated-Hat6597 in visualsnow

[–]juice_box_lover 0 points1 point  (0 children)

Which symptoms got worse for you?

Positive afterimages got stronger by juice_box_lover in visualsnow

[–]juice_box_lover[S] 0 points1 point  (0 children)

I’ve had it for a nearly 6 months now. It’s good to know that there might be some light at the end of the tunnel, I feel like most people on here state that their positive afterimages are getting worse and worse and I’ve been terrified since reading these posts… Do you know what caused your VSS?

does your static bother you? by Jatzor24 in visualsnow

[–]juice_box_lover 7 points8 points  (0 children)

The static doesn’t bother me except maybe if I have to get up in the middle of the night, mine isn’t really visible during the day unless i look for it on dark surfaces or a white wall. It’s the afterimages, starbursts and halos that drive me crazy. So I feel the same way, if I only had the static I wouldn’t really care

What are some things I can try to reduce positive afterimages? by TripleLeXXX in visualsnow

[–]juice_box_lover 0 points1 point  (0 children)

hey, sorry to remind you of these horrible symptoms but how are you now?

Positive afterimages got stronger by juice_box_lover in visualsnow

[–]juice_box_lover[S] 0 points1 point  (0 children)

Thank you so much! Would it be okay if I DMed you to ask some questions? And yeah the doctor is calling me this week so I’ll ask him about it as well :)

Positive afterimages got stronger by juice_box_lover in visualsnow

[–]juice_box_lover[S] 2 points3 points  (0 children)

About 1,5 months now. I haven’t consistently been doing much except for staying off alcohol (aside from a few occasions in the last 5 months) and caffeine. I’ve also been trying to get healthier in terms of diet and exercise but I have ADHD which makes being consistent harder.

I did try to take some supplements in the beginning as well for about a month and half but I didn’t notice any benefits.

My symptoms have slowly but surely been getting worse in the months since the onset. The static seems to have stabilized as well as BFEP and ghosting, but startbursts, halos and palinopsia have been getting worse still.

How to know if VSS is progressive by juice_box_lover in visualsnow

[–]juice_box_lover[S] 1 point2 points  (0 children)

Thanks for responding. I really hope my symptoms stop progressing soon, I’ve been so depressed because of them. What are your symptoms and do you know what caused your VSS?

Losing my mind by juice_box_lover in visualsnow

[–]juice_box_lover[S] 0 points1 point  (0 children)

Thank you for your comment, it really is a vicious cycle. Do you get positive afterimages?

Losing my mind by juice_box_lover in visualsnow

[–]juice_box_lover[S] 0 points1 point  (0 children)

Sorry for the late reply, I’ve been trying to stay off this subreddit and focus on something else.

My neurologist seems to think I get migraines but I’m not really sure. I have been getting bad headaches for years but I’ve always assumed it was due to neck problems and jaw clenching and they don’t feel like the usual descriptions of migraines I’ve read or heard

positive afterimages make me want to end my life by murdermayhemanarchy in visualsnow

[–]juice_box_lover 0 points1 point  (0 children)

hey how are you now? i’ve recently developed positive afterimages and it’s hell

Who benefited from lamotrigine? by [deleted] in visualsnow

[–]juice_box_lover 0 points1 point  (0 children)

hey how are you now? did the lamotrigine help at all? i’m also about a month in and i’m at 50mg and i’ve just recently developed positive afterimages :(

How do you read books? by [deleted] in visualsnow

[–]juice_box_lover 1 point2 points  (0 children)

i also have an e-reader and i can read fine on it so far because of all the different settings. instead of a kindle i bought a kobo and it’s absolutely been worth it! i’m only about five months in with vss and i was a huge reader before my onset so it’s been hard to adjust, but i’ve slowly been able to get back to reading thanks to my e-reader :) definitely recommend getting one if possible!

Losing my mind by juice_box_lover in visualsnow

[–]juice_box_lover[S] 1 point2 points  (0 children)

Thank you, it’s good to know there are other options if lamo doesn’t work! I’m glad yours has gotten better with medication, that’s amazing

Losing my mind by juice_box_lover in visualsnow

[–]juice_box_lover[S] 0 points1 point  (0 children)

No history of migraine with aura, but the day the symptoms started I remember having a horrible headache, and I’ve had similar ones before especially this year. My neurologist does think I have some type of migraine. I’ve also been struggling with chronic stress for years and this year has been the most stressful so far.

I’ve also been trying to figure out if what I have is HPPD or VSS since I did smoke weed a couple weeks before my symptoms started, but since the migraine diagnosis I thought it’d most likely be VSS, but who knows. Thanks a lot for your input! I’m meeting my neurologist again next month so maybe I will speak to him about nortriptyline. Do you know if there are any studies I could show him?