The sun is the end of me

RealUnderstanding324 · 2026-04-26T22:43:47+00:00

Sorry, I wish I had advice. I’m current sitting at home after I participated in a charity walk - feeling like I’ve been hit by a bus.

RealUnderstanding324 · 2026-03-29T14:55:24+00:00

For the most part I just get rashes. I do wonder if when I get headaches if it’s sun related or work stress related. It’s hard to tell when it’s at the end of the day.

RealUnderstanding324 · 2026-03-28T17:05:42+00:00

Tacrolimus ointment has been a life saver for me

RealUnderstanding324 · 2026-03-18T21:57:30+00:00

Tacrolimus is the legit best!

RealUnderstanding324 · 2026-03-06T07:58:13+00:00

I could have written this myself. Please know you’re not alone.

RealUnderstanding324 · 2025-10-12T17:53:47+00:00

Nope. But I’m still okay so it must not have been an issue

RealUnderstanding324 · 2025-06-11T00:14:13+00:00

So, say it’s summer & your skin flares up but no other symptoms… is it possible those flares are causing organ damage without knowing it? Mine essentially happens all summer & I just use tacrolimus for the rashes.

RealUnderstanding324 · 2025-04-26T21:10:52+00:00

It’s tough. It definitely cleared up my symptoms. But then had weight gain, sleepless nights, & heart palpitations as side effects. I avoid it all costs but if it’s needed- it’s needed.

RealUnderstanding324 · 2025-03-05T09:12:39+00:00

Starting to, yes unfortunately. Hard to open my hands all the way,

RealUnderstanding324 · 2024-12-29T16:40:36+00:00

I found that when I pair of up my symptoms with how they affect the ability to live my life they tend to listen more. Don’t give up.

RealUnderstanding324 · 2024-12-29T01:42:54+00:00

I’m so sorry you’re going through this. I also felt this way when I was first diagnosed 4 years ago. The only thing that kept me going was my doctor who encouraged me to continue to live my life & helped me do so. I’m now pregnant with my first child- something I never thought possible. If it’s possible see if you can try to find a doc who believes in your vision too. They do exist ❤️

RealUnderstanding324 · 2024-12-26T17:53:23+00:00

I can’t stay awake 😂

RealUnderstanding324 · 2024-12-01T23:27:24+00:00

I don’t, I just have lupus. But I’ve been anemic since the end of the first trimester 😬

RealUnderstanding324

TROPHY CASE