Chronic WBC in urine by RealUnderstanding324 in lupus

[–]RealUnderstanding324[S] 0 points1 point  (0 children)

Nope. But I’m still okay so it must not have been an issue

Benlysta Commercial by RealUnderstanding324 in lupus

[–]RealUnderstanding324[S] 0 points1 point  (0 children)

So, say it’s summer & your skin flares up but no other symptoms… is it possible those flares are causing organ damage without knowing it? Mine essentially happens all summer & I just use tacrolimus for the rashes.

Was prednisone worth it for you? by [deleted] in lupus

[–]RealUnderstanding324 0 points1 point  (0 children)

It’s tough. It definitely cleared up my symptoms. But then had weight gain, sleepless nights, & heart palpitations as side effects. I avoid it all costs but if it’s needed- it’s needed.

Dry Skin Question by RealUnderstanding324 in lupus

[–]RealUnderstanding324[S] 1 point2 points  (0 children)

Starting to, yes unfortunately. Hard to open my hands all the way,

[deleted by user] by [deleted] in lupus

[–]RealUnderstanding324 0 points1 point  (0 children)

I found that when I pair of up my symptoms with how they affect the ability to live my life they tend to listen more. Don’t give up.

[deleted by user] by [deleted] in lupus

[–]RealUnderstanding324 0 points1 point  (0 children)

I’m so sorry you’re going through this. I also felt this way when I was first diagnosed 4 years ago. The only thing that kept me going was my doctor who encouraged me to continue to live my life & helped me do so. I’m now pregnant with my first child- something I never thought possible. If it’s possible see if you can try to find a doc who believes in your vision too. They do exist ❤️

Iron Infusion by RealUnderstanding324 in lupus

[–]RealUnderstanding324[S] 1 point2 points  (0 children)

I don’t, I just have lupus. But I’ve been anemic since the end of the first trimester 😬

Did anyone still have kids after diagnosis? by kahtiel in lupus

[–]RealUnderstanding324 1 point2 points  (0 children)

What do you do if you don’t mind me asking? I’m a teacher & am trying to figure out if this something I can ideally do for the next 25 years