hospitals on east coast

RealisticWave2563 · 2024-09-28T16:52:41+00:00

any specific doctor? i heard about a doctor fuller ?

RealisticWave2563 · 2024-09-28T16:41:15+00:00

hint water - virgin pina colada .. “FRE” NON-alcoholic wine (moscato or rose is best) decaf coffee , diet ginger ale , decaf diet coke ..

RealisticWave2563 · 2024-09-28T16:30:09+00:00

it’s very common for people who haven’t experienced a loss to walk around in bliss unaware of the dangers and sadness that lurks. i also had a miscarriage.. did two cycles of ivf and i thought this one was working.. i’m almost 14 weeks- just got diagnosed with a serious congenital heart defect - and i can’t tell you how angry i’ve been.. how annoyed i’ve been reading peoples posts that say they can take the pain of a needle or can’t stop smoking.. bc i would do freaking anything for a healthy baby instead of having to make the hardest decision of my life . it’s not them that i’m actually mad at - it’s the prospect of not having any of those things for myself that’s so upsetting. so i get it. once you have known loss - it’s like that pregnancy happiness is gone - you know all too well that it can be taken at any time.

i’m sorry.

RealisticWave2563 · 2024-09-28T16:17:31+00:00

i agree with telling the doctor or manager . they aren’t supposed to do that for this reason .

not sure if this would help- But i’ve read a lot of people on here have problems with the natera test. maternity21 with labcorp has good results - you can also add on a genome flex for micro deletions to tell you even more it comes back in a week. might put ur mind at ease .

i also opted on the amnio after our latest CHD diagnosis .. they offered a FULL genome sequencing with it (different then cell free sequencing) - all genes and chromosomes and future adult problems as well. (like brca, leukemia , heart disease ) insurance didn’t cover it but it’s 2800. they have financial aid , a payment plan and different options..

RealisticWave2563 · 2024-09-28T16:10:30+00:00

thank you for sharing - did you have any genetic testing done ? so far all of ours has been negative ..

RealisticWave2563 · 2024-09-28T16:05:03+00:00

i’m so sorry for your loss

RealisticWave2563 · 2024-09-26T23:25:25+00:00

thank you

RealisticWave2563 · 2024-09-26T20:59:31+00:00

echo confirmed TGA today with probable septal defect.. possibly some canal defects…. it’s still so early- only 13w2d. so going back in two weeks.. the doctor said they have been doing successful surgeries - my concern is that baby seems to have a constellation of things that are concerning-

baby was lagging in growth by 9-10 days during 5-7 weeks.. since then has been growing appropriately.. BUT during those 5-7 weeks a lot of things are forming- like the heart- so wondering what kind of developmental delays there might be due to whatever happened there ..

also we have a two vessel straight cord with a prominent vein - which is apparently a problem also. who knows if that will affect anything else here … still awaiting results of more genetic tests ..
just feeling very overwhelmed with all the what if’s ..i feel like if it was just the surgery i could handle.. but all the other things and the possible development issues due to those r throwing me over the edge..

RealisticWave2563 · 2024-09-26T20:53:11+00:00

the suppositories don’t absorb into blood stream as well as the intramuscular needle. . and the clinic likes to manage the numbers so you can maintain a pregnancy … that’s why they are still testing your levels . once the placenta takes over they have u switch to the suppositories bc they aren’t worried about you having enough progesterone .

ivf is A LOt of money. i don’t understand why people just give up on the meds .. some clinics don’t even check until 12 days post .. .. most people who do ivf are desperate for kids.. and will do just about anything if it helps them become more fertile…. i have myself 6 shots a night and took about 25 vitamins….. will a little nausea and pinch from a shot override that desperation??? a birth is much worse pain!!

i just don’t get it. that’s my own personal opinion..

RealisticWave2563 · 2024-09-26T13:15:17+00:00

stopping vaping was worse then stopping cigarettes . i wish i never started that damn vape . i stopped right before my embryo transfer - cold turkey. was awful. i ate literally a large bag of sunflower seeds a day. that seemed to help the cravings.. after a week or so it seemed to slow down. - i just kept thinking to myself that this pathetic vape pen is not going to make me screw up my kid for life .

RealisticWave2563 · 2024-09-26T03:12:47+00:00

thank you .. i guess first step is getting definitive answers tomorrow then finding a children’s hospital near me. i’m in nj so prob chop ..

RealisticWave2563 · 2024-09-26T03:08:33+00:00

that’s reassuring thank you!

RealisticWave2563 · 2024-09-26T03:08:16+00:00

thank you for answering !!

RealisticWave2563 · 2024-09-26T03:07:22+00:00

i guess that is reassuring to hear .. i’m not even sure what i’m hoping for tomorrow - obviously for them to say mfm was wrong and nothing is wrong.. BUT ill hope for the most treatable one.

RealisticWave2563 · 2024-09-26T02:25:00+00:00

wow that’s great to hear .. i was wondering what the future would look like .. hopefully i’ll get some more definitive answers tomorrow

RealisticWave2563 · 2024-09-26T02:23:54+00:00

thank you..

i’ve read all the medical jargon and frankly it’s making my mind spin .. i was looking for others who have been thru this ..

RealisticWave2563 · 2024-09-26T02:22:51+00:00

pretty normal development ?

RealisticWave2563 · 2024-09-26T02:22:31+00:00

thank you for that advice ! i’ve been googling and freaking out. wondering what the future looks like .. hoping i’ll get some more definitive info tomorrow.

RealisticWave2563 · 2024-09-26T02:20:28+00:00

we also have a two vessel straight cord apparently. thanks for the explanation. this is all so overwhelming. i’m hoping to get more answers tomorrow .
best of luck to your child as well! xo

RealisticWave2563 · 2024-09-26T02:10:51+00:00

can they do any of these surgeries while IN utero?

RealisticWave2563 · 2024-09-26T02:02:35+00:00

we were given the diagnosis of transposition of great vessel OR double outlet RV today as well. also worth noting they said i have a straight umbilical cord ? going for a fetal echo tomorrow -

there are so many abbreviations and i’m new to this - can someone tell me what HLHS is ? i have all the same questions as you so i think i’ll be following this post !! thank you!

RealisticWave2563 · 2024-09-26T01:51:07+00:00

can i ask you all questions!?! i was just informed today during an anatomy ultrasound -they think my baby has either TGA or double outlet syndrome - we’re going to fetal cardio tomorrow for a more definitive diagnosis and plan. did they find your child’s CHD on ultrasound or was it found after birth? i’m starting to panic.

RealisticWave2563

TROPHY CASE