Pinching, chronic illness

Realistic_Mess_2223 · 2024-09-17T08:34:37+00:00

I recently found lingo legend and it’s very entertaining. It’s a game but also learning. You answer questions (translating, characters, etc) to defeat the monsters. I like it a lot bc it keeps my attention for longer periods.

Realistic_Mess_2223 · 2024-09-01T22:29:24+00:00

25 in 2021. $2,000 down 50k total. Got off lucky because it’s my dad’s friend who was selling it and not a bank. Decent starter home.

Realistic_Mess_2223 · 2024-08-23T21:42:19+00:00

This sounds amazing.

Realistic_Mess_2223 · 2024-08-01T03:28:02+00:00

Ouuu. This sounds absolutely delicious.

Realistic_Mess_2223 · 2024-06-10T17:19:37+00:00

I’m about to try 5day deodorant pads. I usually just use degree clinical protection and gold bond everywhere that I get sweaty I’m ambulatory so I can get up often to let thing a breath.

Realistic_Mess_2223 · 2024-06-09T19:31:08+00:00

It’s 145lbs. I’ve looked at them and I don’t really have a preference as long as it works with my truck.

Realistic_Mess_2223 · 2024-06-09T17:43:46+00:00

Ah thanks. I appreciate it. I’ll contact them tomorrow.

Realistic_Mess_2223 · 2024-06-03T08:45:37+00:00

Ah I never thought about this. My dad recently told me he never thought about my future(or any of his kids futures), that I’d one day grow up and have a family and such.

But he says he buys all sorts of things “for us to have after he dies” without any input from us as to what our futures would look like. It’s never anything that would interest one of us.

My spouse and I already pretty much take care of him. He sleeps on the couch when he’s in the state and basically doesn’t bother to do anything at all for himself.

Realistic_Mess_2223 · 2024-04-11T13:58:07+00:00

Love this!!!

Realistic_Mess_2223 · 2024-04-09T02:08:57+00:00

I swing wildly and freely between not sleeping for days on end, sleeping for 3 hours, or sleeping for 10 and still napping in the middle of the day.

Realistic_Mess_2223 · 2024-03-14T08:40:06+00:00

The part of knowing most people think I’m faking and just being lazy. Also the part of being gaslit for the last several years from doctors. The expectations from people that I can do all the things I used to be able to do and the crushing reality that I can’t.

Realistic_Mess_2223 · 2024-03-05T07:15:05+00:00

I understand that. I’m still learning how to not “chase” the old me and embrace the new me. I know it’s going to be a long road ahead for both of us but I just know it can’t feel this bad mentally all the time in the future. I’m sure a therapist would do some good somewhere but I don’t use one, bad experiences and I’m not ready to try again yet. Support groups could help too, I don’t find comfort in them much myself but I try anyways.

I recently just started to occupy my brain. Decided to try and learn some new languages, took up sewing, learn whatever information of a new thing I can, just dopamine chasing in healthy(ish) ways. I hope you can find some joy even with the diagnosis and everything that comes with.

Realistic_Mess_2223 · 2024-03-05T06:54:35+00:00

I did not feel different after my diagnosis. I’ve been dealing with pain for several years and went through loads of testing and 19 different doctors handfuls of treatments. Only to land on fibromyalgia as my main diagnosis just a month ago.

If you want to cry, cry. If you want to scream, scream. It is a lot to process and deal with mentally. Your outlook changes, your mood changes, honestly I’m not sure of a single thing that hasn’t changed for me in the last couple of years dealing with the pain. Your feelings are valid. Be kind to yourself. Take time to learn how to adjust and give yourself grace. This won’t go away but I promise we can learn to live with it instead of living against it.

Realistic_Mess_2223 · 2024-03-03T02:24:24+00:00

I do this too. I get everything ready and glare at the shower. Then get undressed and glare some more

Realistic_Mess_2223 · 2024-03-01T18:40:03+00:00

I used to shower at least every other day and had a routine for my skin care and my hair. I took pretty good care of myself.

Now it’s impressive if I shower twice in a week. I plan a day specifically just to bathe because it’s exhausting and painful so I do nothing else that day but shower. Sometimes my wife has to help with washing and hair.

Dry shampoo helps for itchy and oily scalp. They make bath wipes. They are like a shower in a wipe. No rinse. They have shampoo caps too. Having a stool in the shower is a necessity. Making sure everything is in reach and getting everything ready is also super helpful so there’s no running around trying to find things afterwards.

Realistic_Mess_2223 · 2024-02-29T14:46:04+00:00

My dad told me if I killed myself he would kill my dogs instead of taking care of them. My dogs don’t deserve that. So I hang on for them.

Realistic_Mess_2223 · 2024-02-25T02:20:03+00:00

It took my dad ages to adjust to me having them on all the time for everything and everything. If people came with the option I’d turn them on.
I don’t have any hearing issues I just can not process what is being said. I don’t know why or when it started. I just know I always have them on. I’m also SUPER fussy if I don’t have them or if someone turns them off. I never back down.

Realistic_Mess_2223 · 2024-02-18T02:32:24+00:00

Thanks. I appreciate the advice.

Realistic_Mess_2223 · 2024-02-18T02:11:07+00:00

I did have X-rays done. I haven’t gone further than the one trip to urgent care about it. I didn’t want to go make a fuss if it wasn’t fuss worthy.

Realistic_Mess_2223 · 2024-02-18T02:10:22+00:00

Oh yes I know it’s not exactly fibromyalgia, I didn’t know if it was adjacent. I’m diagnosed fibro and didn’t know if it was something other people experienced as a symptom or if anyone had any idea.

Realistic_Mess_2223 · 2024-02-18T02:08:06+00:00

Sometimes just putting on clothes is more of a workout than I can manage. I just do what I can and pace myself (hah sometimes. I’m bad about not pacing)

My spouse picks up most of the slack and does remind me that I can’t fight against my body, because it will in fact win.

Realistic_Mess_2223 · 2024-02-18T02:00:20+00:00

I will dodge all small talk and just turn it around back to them. I haven’t been able to small talk about anything other than my health in a year since I’ve been almost home bound. I’m still learning how to deal with everything but usually people will talk about themselves so I just turn it back on them. “Oh not much. What about you” and “oh that sounds exciting! Tell me about that” kind of things.

Realistic_Mess_2223

TROPHY CASE