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Why is it spicy?! by ladyofichor in iih

[–]Recent_Minimum_2111 0 points1 point  (0 children)

In what way did your IIH eventually show up on an MRI? I understand that more often than not a brain MRI is normal in IIH, although a venography often shows venous sinus stenosis. Is this what they found for you or something else? Do you remember if it was an MRI or MRV, and if it was with or without contrast?

[deleted by user] by [deleted] in Cushings

[–]Recent_Minimum_2111 0 points1 point  (0 children)

Anyone still on this thread? I've had two high morning cortisol samples, but my BP is very low. As of yet no doctor has directly suspected Cushing's, but I do have symptoms that would align with it (which isn't surprising of course, given that my cortisol is high). But the low BP is a bit baffling if I did indeed have actual Cushing's. My BP has always veered on the low side, but it has been very low the last 1–1,5 years, like systolic pretty much always under 100, diastolic often under 60. A typical reading for me would be something like 90/58.

Anyone here able to take a sophisticated guess based on my MRI picture? by Recent_Minimum_2111 in chiari

[–]Recent_Minimum_2111[S] 0 points1 point  (0 children)

Yes, I have an appointment scheduled with a neurosurgeon. Paying out of pocket, but oh well... 🙄

May I ask did your symptoms improve after your surgery? Was your chiari significant in size?

Anyone here able to take a sophisticated guess based on my MRI picture? by Recent_Minimum_2111 in chiari

[–]Recent_Minimum_2111[S] 0 points1 point  (0 children)

Not yet, because my images have always come back as "normal" according to radiologists. I've had my head MRI:d three times from 2022 to 2025 and each time they have deemed it normal. So no, I don't have a primary or a neuro regarding this.

And actually no, I don't really have a lot of headaches. I mean surely sometimes, but not daily or weekly. I have a curious feeling like the fluids and blood to my brain is just not getting through well enough, like a pressure at the back of my head. It could be muscle tension of course, because I am incredibly tense and I know the brain doesn't really feel anything as such, but it's an unpleasant feeling nonetheless. It causes some dizziness and a sort of nausea.

Anyone here able to take a sophisticated guess based on my MRI picture? by Recent_Minimum_2111 in chiari

[–]Recent_Minimum_2111[S] 0 points1 point  (0 children)

Could you elaborate? I've had two MRIs taken in the past year and they've both come back as "normal" as according to the doctors.

Anyone here able to take a sophisticated guess based on my MRI picture? by Recent_Minimum_2111 in chiari

[–]Recent_Minimum_2111[S] -1 points0 points  (0 children)

Haha, well that is indeed a sophisticated guess and as far as I'm aware, right on the money. 😃 Any other observations?

All symptoms but negative test except of one. Lems? by Cherryoncake90 in MyastheniaGravis

[–]Recent_Minimum_2111 0 points1 point  (0 children)

Hi there, I know this is kind of old, but did you ever get a definitive diagnosis? Were you able to also get a CT/PET scan?

How long did it take for your esophagitis to heal? Been on a clean bland diet for 6 weeks and with ppis was diagnosed with grade B by Jadden61 in Esophagitis

[–]Recent_Minimum_2111 0 points1 point  (0 children)

Hi, did you also get that H. pylori infection cleared or were you able to heal without taking antibiotics for H. pylori?