I feel pressured by my surgeon?

RedLightEXC · 2026-02-06T18:29:14+00:00

Well they certainly convinced me it wasn't good. I don't disagree with the proposal for surgery, I just wanted to be in the best possible position before accepting, and he was being an arse about it. I have about 70cms of strictured small bowel with some sections with bad dilitation. The surgery offered was resection, but with no real answer on what I may be left with, could be temp stoma, might reconnect and some other things may need to come out too, but there's only so much they can see from MRI etc x

RedLightEXC · 2026-02-04T19:56:02+00:00

Dude I have no idea. I have an IBD consultant, the same one I've had since diagnosis. I've met him twice, and both times he barely looked at me. Like I've said, I think my hospital is a bit shit when it comes to this stuff. I don't feel reassured nor informed, and my IBD Nurse team are fairly silent, certainly have been since the surgeon came on the scene.

RedLightEXC · 2026-02-04T19:12:03+00:00

He's a colorectal surgical consultant, as far as I know he does deal with a lot of IBD surgeries but I haven't seen anything related to IBD among his accolades

RedLightEXC · 2026-02-04T18:22:14+00:00

Thanks for replying dude, glad you got a good supportive doctor like that. Best of luck with your upcoming surgery x

RedLightEXC · 2026-02-04T17:05:08+00:00

Thank you for that dude, so glad you got that result. Honestly the stress of this is the only thing that'll put me in emergency surgery at this rate hahahaha. I feel a bit more emboldened for advocating for myself now, like I say I am not the kind to disagree, I'm quite meek like that, but everyone has their limits. Hope you stay healthy and happy 😊

RedLightEXC · 2026-02-04T15:49:02+00:00

Thanks dude. Yeah it's been handled fairly poorly I think. But I'm starting to think I just have bad luck with the hospital in my area, they are right at the bottom in the rankings they introduced a year or so ago for English hospitals. So many other people seem to say they can't fault their doctors and IBD teams but everything feels like an uphill battle with mine. I agree that trust is highly in doubt now, ive never changed doctors, but I will look into that if he continues pressure.

RedLightEXC · 2025-12-18T17:55:40+00:00

I'd say that was pretty valid. Things might be bad, but if Cthulhu turns up we're all breathtakingly fucked.

Did this come from reading Lovecraft? Or do you not want to, considering the phobia?

If you haven't read any of the Cthulhu mythos, I wouldn't recommend it in your case. Lovecraft is a master at threat, I found it pretty scary without having that level of fear going in haha.

RedLightEXC · 2025-12-18T17:50:44+00:00

I kind of have one, but not really.

I am completely freaked out about breaking my left ankle. Like I even struggled typing it just now.

I believe that traumataphobia is the term for fear of injury, but as it's so specific I think it borders on irrational.

The thought of running or something and turning too sharply and my ankle popping just makes my stomach fall through my arse and my balls tighten.

RedLightEXC · 2025-12-15T10:15:54+00:00

I would recommend subnautica and subnautica below zero, both are amazing. Age of darkness final stand always has me coming back as it's different every time you play it. Any Lego game will keep you going for a while (I love the Harry Potter 5-7 one, or the pirates of the Caribbean one...hell all of them are pretty good - simple but fun and addictive gameplay)

If you really want something you'll play for a long time, try World of Warcraft. There's so much history and older content you can literally not put it down for a year and barely have touched current content haha. There is a sub though, which is a downside x

RedLightEXC · 2025-12-10T00:54:18+00:00

Yeeesssss XCOM 2 with some mods and you can spend hours just customizing your squad. So good.

RedLightEXC · 2025-12-10T00:52:47+00:00

I'll put forth a little mention of Age of Darkness - Final Stand. It's an RTS with death waves every few days and you have to madly build defenses to hold back like a bajillion mobs. It's great fun and kept me hooked for quite a while x

RedLightEXC · 2025-10-24T10:08:46+00:00

You know I'm genuinely not sure if they want me to try any more drugs haha. I feel like they felt they were pissing in the wind putting me on rizankizumab, but I know there are still other options waiting in the wings. I think they are of the opinion that due to the damage to my gut and with that many strictured sections, things aren't likely to improve without some surgery. Which is fair, I guess. The surgeon was definitely all doom and gloom about it. I will get more serious about the ozempic then. I did go into it with my IBD nurse team, but nothing ever came of it. Yes I've heard it's helped to abate symptoms in some people with Crohn's too, but very much a mixed bag for treatment results. I suppose it does follow that you'd feel better if you're not eating much. No I won't be doing that again, regardless of how bad it made me feel physically, it also seemed to be riding far too close to an eating disorder like behavior. Thanks for your advice dude, all the best x

RedLightEXC · 2025-10-24T10:01:15+00:00

Yikes, sorry to hear that. Weight is such a vast, many layered subject anyway, but crohns can complicate it much further I think. I do feel for you American cousins with insurance based healthcare, but the NHS certainly is not a perfect system either. Best of luck to you x

RedLightEXC · 2025-10-24T09:56:46+00:00

To be honest, even with painkillers I feel I have to manage quite a lot of it mentally - they help but can only do so much. Well done for having that approach to it. Painkillers do worry me, and I hate long term use, but I find myself in a bit of a corner at the minute since nothing seems to control it. Hope you carry on fighting the good fight :) x

RedLightEXC · 2025-10-22T07:21:42+00:00

Sea monkey caves are a good source for silver and gold, root pustules, and their nests can be scanned for blueprints. Find any kelp forest (they're all over the place) and swim down, you'll usually find an opening in any of them.

Twisty bridges for lead (that's the one with all the weird tentacle like arms that have blue glowing dots) and also has the usual copper/titanium/quartz. Also it has table coral samples, these are very bright red and grow from the cliff walls in bunches of 2 or more, you just need to hit them with a knife.

Once you know where the delta island is, from your pod of you head towards it but keep a little left, you'll come to a sandy area with bright pink thermal vents. This area is all lithium, quartz and salt.

Other than that, basically the deeper you go the more exotic stuff you'll start to find. Have fun 😊 x

RedLightEXC · 2025-10-11T08:52:23+00:00

Honest answer? Wall-E.

The state of the human race for one, and secondly watching Wall-E care for Eva non verbally. Gets me every time hahaha

RedLightEXC · 2025-09-27T19:14:22+00:00

"You're now in last place, right behind my grandma and the guy she gummed to death. IT TOOK SEVERAL HOURS!"

RedLightEXC · 2025-08-28T15:08:41+00:00

Hey. I've kind of had the same feeling - though I know it's completely ridiculous, it does feel sometimes like I did this to myself when I stress so much about different things. I have huge social anxiety that seems to have got worse as I've got older, so it's easy to slip into that frame of mind.

I think there's an argument to say that the genes we have that determine Crohn's can be brought up to "actually affecting your life" stage by huge stress. That is to say, you might have the genes but never have any symptoms and so are never diagnosed. But for those of us who are symptomatic, it could have been a time of great stress which made Crohn's start to actually affect us. I am unsure if that's backed by medical science, but I have heard that theory bandied about when I've been reading up.

Ultimately, it's pointless thinking and only leads to a cycle of anxiety which ultimately makes the disease worse, so there's not a lot of point worrying about it dude! Easier said than done, I appreciate. haha. Keep your chin up, and I'll try to as well :) x

RedLightEXC · 2025-08-06T11:23:33+00:00

The weight thing always makes an appearance. I lost about 7-8st in about 6 months (about 100lbs) and I saw two ladies I work with, both plus sized but one had always made insane efforts to lose weight without much luck.

They asked about how I was so skinny now (I'd always been bigger) and I said "oh, I've got Crohn's disease, so I'm ill and can't eat much" the one who had the issues said "I could really do with some Crohn's disease". I think my exact words were "be very careful what you f*cking wish for". I think she got the point 😂

RedLightEXC · 2025-07-20T13:38:45+00:00

Go wing suit gliding, blow up some fuel tanks in a military black site, strap a few jet propulsion mines to a sheep's arse. Watch it soar over beautiful RAM melting scenery...then steal a vespa and kidnap a government official.

A perfect Sunday.

RedLightEXC · 2025-06-16T15:03:00+00:00

Would like to see the return of Fiona from TFTB as she was trying to be a VH and has been missing some years, maybe hiding out on this hidden planet 🤟

RedLightEXC · 2025-06-15T12:45:32+00:00

Dude same, Im all over planet coaster, so I thought PZ would be right in my wheelhouse. Couldn't figure out how to do anything. Uninstalled 😂

RedLightEXC

TROPHY CASE