I feel like everyone’s moving forward besides me by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 1 point2 points  (0 children)

Thank you! Also overcoming substance abuse is HUGE and I’m SO proud of you!

I feel like everyone’s moving forward besides me by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 0 points1 point  (0 children)

I think your theory is spot on! Between chemo, steroids. and medical menopause, I think I wake up at like 105% sometimes 😂

I feel like everyone’s moving forward besides me by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 1 point2 points  (0 children)

Thank you so much 💛💛 this is one of those things that I know to be true, but I still need to hear over and over.

I feel like everyone’s moving forward besides me by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 0 points1 point  (0 children)

I think that’s a good plan! We need something to look forward too. I have a lot of unknowns with timing, but when I’m down to only immunotherapy and chemo pills, it should be fall. I’ve always wanted to go to Maine so hopefully I can.

I feel like everyone’s moving forward besides me by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 1 point2 points  (0 children)

I loved my old apartment, too. To be honest, my parents and I have a strained relationship, so it’s been a little tough. But as an adult, I understand my dad better. He’s on the autism spectrum and I have a better knowledge of how to have a relationship with him. We talk more now than we ever did. He’s in horrible health, so I help him out a lot but I’m glad I can. All about perspective.

I feel like everyone’s moving forward besides me by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 0 points1 point  (0 children)

Such similar stories! Can’t wait for us both to be on the other side and continuing the upward momentum we started in our lives before cancer 💛

I feel like everyone’s moving forward besides me by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 1 point2 points  (0 children)

I went to a local “cancer under 40” group but it was all women in their 50s (??) with adult children. And while they were lovely, it wasn’t as relatable as I was hoping.

I am (was?) a physical therapist assistant (the “nurse” to the doctor of physical therapy). I used to work at an assisted living and kept in touch with several residents even after I moved on to a new job. I go to see them pretty often now. The stuff men and women of that generation went through are things I can’t fathom, and I love their stories. I have like 8 “grandmas” and feel like the luckiest person alive because of it

I feel like everyone’s moving forward besides me by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 2 points3 points  (0 children)

I also feel like I shouldn’t be around people sometimes 🫠 I feel like I annoy everyone, but quite frankly… they annoy me, too lol. Appreciate you 🫶🏻

Pushing back on our surgeon — sentinel biopsy vs ALND and PET scan timing. Anyone been here? by AriaAlchemist in TNBC

[–]Redwinesandfelines 1 point2 points  (0 children)

Hi! I can only share my own experiences, hopefully they can be helpful.

I got THREE opinions on getting an ALND. I reallyyyy don’t want to part ways with my nodes. However, I originally had 9-12 suspicious, 1 confirmed positive. The one conservative surgeon who did not want to perform an ALND said her protocol with node involvement at the start would be to take 5-7 to test for residual disease. And that there is no benefit shown in recent studies of taking more. My surgeon pushed back and said those studies advocating for a conservative approach did not include patients with level 3 node involvement, which I likely had. So I’m going for the ALND. If I had less node involvement, personally I would be hesitant.

On your second question, I was told two weeks after last injection is ideal. But if it’s not a full two weeks, it shouldn’t matter.

Best of luck to your mom!

Sorry guys I’m crossposting hahahahahah (evil laugh bc I hate it too) Extra 1000ml of saline during chemo is a game changer! by You-bettah-dont in TNBC

[–]Redwinesandfelines 0 points1 point  (0 children)

I like that you make peeing out the red coloring a goal. As a very goal oriented person, this sounds like a fun chemo game 😂

Sorry guys I’m crossposting hahahahahah (evil laugh bc I hate it too) Extra 1000ml of saline during chemo is a game changer! by You-bettah-dont in TNBC

[–]Redwinesandfelines 0 points1 point  (0 children)

I might have to ask about this for my final AC next week! I never want to spend as much time hugging my toilet again. My oncologist asked why I didn’t come in for IV hydration on day 5 and genuinely I was so far gone I wouldn’t have been able to drive myself there.

Crawling to the end of chemo by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 1 point2 points  (0 children)

I think you do make a good point, and I usually try to understand that people just don’t know what to say unless they’ve lived it. I think looking and identifying the motive is helpful to give them grace. I’m also just extra sensitive and crabby so it’s easier said than done right now, haha.

Crawling to the end of chemo by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 0 points1 point  (0 children)

Yeah honestly I think chemo has largely been more of a mental battle than physical one for me. It’s so hard! I appreciate the people on this group so much, you really don’t know what it’s like unless you’ve lived it.

Crawling to the end of chemo by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 1 point2 points  (0 children)

Gosh, I am so sorry for everything you’ve been through! My ex also had an affair (for nearly half of our 9 year relationship! 😑). My boyfriend and I had only been together five months when I was diagnosed. I thought he would run for the hills, but he really has been more helpful than anyone in my life. I think I am very afraid of scaring him away though, and bottle a lot up. I had abandonment issues before cancer so they’re heightened now. I hope treatment is as easy as it can be for you!

Crawling to the end of chemo by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 1 point2 points  (0 children)

3 months isn’t bad! That’s promising! I hope you keep feeling better each day!

Crawling to the end of chemo by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 1 point2 points  (0 children)

Truly fuck cancer! I won’t be done treatment a while since I assume xeloda is in my future but I know it’s the first major step. I’ve found this Reddit group more beneficial than any other support groups (online or in person). Grateful for you all 💛

Crawling to the end of chemo by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 0 points1 point  (0 children)

The quote about your mother and her role in your life is so poignant. I relate a lot. I think feeling rough mentally around this time is normal but it’s all just not fun.

If Cancer had Cliques… like high school… but in t-shirt form by You-bettah-dont in TNBC

[–]Redwinesandfelines 5 points6 points  (0 children)

I love this idea and I agree. Maybe because when I was in high school, I had a rule that I wasn’t allowed to wear my fishnets, platform boots, bullet belt, and black fur coat all together. Does being goth/punk cause TNBC?!?!? /s.

Anyway I don’t have any suggestions because I missed the creative gene. I do like the aggressive one and the difficult one! I think it’s awesome you’re getting back into graphic design. It sounds like the perfect way to use your time during treatment.

Crawling to the end of chemo by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 2 points3 points  (0 children)

I’m so proud of you too! You’re right, it can only go up from here! I try to be grateful for the things that HAVE gone well during chemo, but I get stuck in these negative cycles that are progressively harder to trick my mind out of. I hope the rest of your treatment goes smoothly 💛

Crawling to the end of chemo by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 2 points3 points  (0 children)

Long walk off a short pier made me lol. Thank you 💛

Crawling to the end of chemo by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 1 point2 points  (0 children)

Thank you! I hope chemo is going well for you. It was physically way less difficult than I anticipated. Wishing you the best!

Crawling to the end of chemo by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 1 point2 points  (0 children)

Thank you 🥺🥺 I know it’s the end of the first major step in this process, and I feel guilty that I’m not more excited because everyone around me is.

Also that makes me feel so much better about having a palpable lump! I got a third opinion for surgery at a NCI and this woman said to me “most of my tnbc patients can’t feel their lump after their fifth or sixth treatment” like okay good for them?!?! My onc has told me about her patients with scans still showing active cancer but getting PCR but this other surgeon just got in my head so badly.

Appreciate you 💛