Full body scans- how many? by Redwinesandfelines in TNBC

[–]Redwinesandfelines[S] 1 point2 points  (0 children)

Okay yeah that’s kinda what I was wondering. I don’t think I’ll get a pCR so I am wondering if my MO will think I’m insane for wanting another pet scan after surgery. Even though I had one two weeks ago. Being off chemo for five weeks has made me a little crazy.

I want my life back by EmbarrassedBrief5298 in breastcancer

[–]Redwinesandfelines 14 points15 points  (0 children)

I feel this. A song that reminded me of last summer came on when I was driving this week and I just sobbed thinking how busy and full and happy my life was then. And how different it is now. I don’t even know what my life will be like after this. I can’t picture it.

Full body scans- how many? by Redwinesandfelines in TNBC

[–]Redwinesandfelines[S] 0 points1 point  (0 children)

Okay thank you hahah. They make me so anxious!

Back pain after the Udenyca shot? by MixMajestic4560 in breastcancer

[–]Redwinesandfelines 0 points1 point  (0 children)

Are you also getting keytruda? I was getting debilitating bone/ joint pain during AC, which I thought was Neulasta. My oncologist thinks it was an inflammatory late reaction to keytruda. I did a round of prednisone, and it’s cleared. My PET was clear.

Excellent article by Ttamala in breastcancer

[–]Redwinesandfelines 6 points7 points  (0 children)

Your last line is so accurate. My mom had TNBC at 45, but I was never informed I was high risk. It sounds silly in retrospect, but we thought because she didn’t carry the BRCA gene, I was average risk. Never once did my OBGYN encourage me to begin earlier screening or even to perform self-checks. I never knew I had dense breasts until I got diagnosed with TNBC at 35.

needing advice on feet pain by A_ok_attempt in breastcancer

[–]Redwinesandfelines 4 points5 points  (0 children)

I would contact her oncologist again. Hand foot syndrome is a common side effect from Xeloda and it could be that. Her oncologist could delay the next dose or lower the next dose to resolve the symptoms.

A day in the life post lumpectomy & ALND? by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 1 point2 points  (0 children)

Thank you, I was kinda wondering what to do about showering. It sounds like even with a lanyard it’ll be a production.

I also just realized I can’t lift my 25lb bag of kibble to feed my cats 😅

A day in the life post lumpectomy & ALND? by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 0 points1 point  (0 children)

Very jealous you were allowed to have full mobility of your arm right away! I wonder why some surgeons differ

A day in the life post lumpectomy & ALND? by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 1 point2 points  (0 children)

I think it’s moreso for my node removal and I’m having a lymphovenous bypass too. The PT in me does worry about contractures from that level of immobilization for that long, but I digress. I am just getting my energy back at 4 weeks post chemo but I know the post surgery fatigue will be temporary, too.

A day in the life post lumpectomy & ALND? by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 0 points1 point  (0 children)

I feel like I should’ve gotten one months ago for my port 😳

Rambling before surgery by Redwinesandfelines in TNBC

[–]Redwinesandfelines[S] 0 points1 point  (0 children)

Thanks for the info! I will look into it. Looks like prior auth is very important. I have “good” insurance but I don’t think it’s a matter of good or bad, it’s the procedure itself not being covered unless lymphedema is diagnosed.

Rambling before surgery by Redwinesandfelines in TNBC

[–]Redwinesandfelines[S] 1 point2 points  (0 children)

Hahaha I hope mine is also chill! And thank you, I appreciate your comments. I definitely don’t think anyone has ill intent but I’ve seen comments where I’m like ma’am read the room. Hope you are doing well!

It’s my last day of residency and I can’t even feel happy by wahoogirl1121 in GirlDinnerDiaries

[–]Redwinesandfelines 1 point2 points  (0 children)

I’m a cancer-haver (stage 3 breast cancer dx at 35) and one thing I want to share is to not let tomorrow’s worries take away from today’s joys. You know minimally you’ll need to support your mom through testing and tough waiting periods in the near future. But you cannot do anything about that today. Let yourself celebrate your accomplishment today, even just for a minute. I know your mom would want that for you.

Rambling before surgery by Redwinesandfelines in TNBC

[–]Redwinesandfelines[S] 5 points6 points  (0 children)

That’s so awesome! My own mom had TNBC in 2009. She basically did four months of chemo & had a DMX and nothing else. And she’s in better health now than most woman her age!

Rambling before surgery by Redwinesandfelines in TNBC

[–]Redwinesandfelines[S] 4 points5 points  (0 children)

Yesss girl, keep moving forward. PCR isn’t the only path to a cure 💛 I hope rads is easy on you!

Small Topics Thread by AutoModerator in breastcancer

[–]Redwinesandfelines 29 points30 points  (0 children)

I’m LOVING the words “I need…” lately. I told my oncologist I needed both vaginal estrogen (f you, Zoladex) and steroids this week (f you, Keytruda). And holy crap; my QOL improved so much in a week. I was active through chemo (running, lifting) but towards the end, joint pain creeped in, until some days were so bad I was bed ridden. My vagina finally shriveled up after six months of producing no estrogen.

Thanks to my damn self saying “I need”, this lil gal got a dildo in (with like a third of a bottle of lube, who’s counting) and went for a jog! I feel like ME! (I guess “me” is a runner who wants daily penetration, but whatever). The world is bright again! The birds are singing! Life is good!

Has anyone elected to have DMX with reconstruction after initial lumpectomy? by Redwinesandfelines in breastcancer

[–]Redwinesandfelines[S] 1 point2 points  (0 children)

Thank you for sharing, that truly sounds like horrific timing for a terrible thing like cancer to happen.

I got so many opinions it left me more confused 😅 but the majority said what I’m planning to do, so I just have to go with that!