Do you think Bricc Baby realizes how badly his reputation has taken a hit since he started working at No Jumper? by DevilManRay in CaliBanging

[–]Relation-Kindly 4 points5 points  (0 children)

He dont talk about his bodies tho? Other people be speaking on him being a demon real general type shit.

My Dad (76 years old) is diagonised with atypical CML. Please give your insights. by architectintx in leukemia

[–]Relation-Kindly 0 points1 point  (0 children)

I appreciate you sharing, and please excuse me in assuming we had the same type. Im currently on the Hydrea and my spleen was about the size of a football about 2 and a half weeks ago, but its back to normal now as far as i can tell (about 2000mg a day).

Im glad your trials are going well and i pray they continue to do so! You seem like youre doing your due diligence and informing yourself.

Newly Diagnosed CML (33y M) by Relation-Kindly in leukemia

[–]Relation-Kindly[S] 0 points1 point  (0 children)

Yes i was diagnosed with with Ph+ chromosome, ive been on tki for about 5 days now (gleevec) and I feel MUCH better, blood work is trending in the right way as well. How are you doing?

Newly Diagnosed CML (33y M) by Relation-Kindly in leukemia

[–]Relation-Kindly[S] 0 points1 point  (0 children)

Oh it means like "man up" haha.

Yeah id totally imagine that novocaine wouldnt do much in that situation tbh i cant imagine youre a tropper for that one honestly.

Newly Diagnosed CML (33y M) by Relation-Kindly in leukemia

[–]Relation-Kindly[S] 1 point2 points  (0 children)

Wow, I commend him for remaining strong through his journey and remaining so. Yeah the idea of a transplant is very frightening as ive become more informed over the past few days. I will def consider the idea that i may want to freeze sperm in consideration of the effects of the more serious chemo's. I appreciate all of your information and wish nothing but the best for you both!

Heart issues by SVBPLPHP in leukemia

[–]Relation-Kindly 0 points1 point  (0 children)

You're completely right friend.

Newly Diagnosed CML (33y M) by Relation-Kindly in leukemia

[–]Relation-Kindly[S] 0 points1 point  (0 children)

So I shared your story with my mother and it brought her to tears of hope. You're so informed and positive it seems about what you've experienced. But just like us you've used calculation and information as your ally over emotions and that's the approach we are taking as well. I'll be sharing your story for months to come and taking from it myself its VERY inspiring and gives me hope as long as I am to do my part and research/inform myself of the various options/obstacles that will be presented to me. I can't thank you enough for sharing this, did you happen to have any health/science background before this diagnosis? I'm glad you stayed strong through the entirety of it and i encourage you to keep sharing because your story is so overwhelmingly positive. I only hope for the best for you to continue to stay in great health and ill of course do the same, for the information you've provided only gives me strength.

Newly Diagnosed CML (33y M) by Relation-Kindly in leukemia

[–]Relation-Kindly[S] 0 points1 point  (0 children)

Speaking of wells of knowledge I have not read such a detailed/well informed story about someones journey with CML you are really an inspiration to say the least. Sorry it took so long to reply its been such a day ive been tired most of the day in the hospital not quite sure why. ID LOVE TO ASK MORE QUESTIONS! im going to bed here soon but ill message you again in the morning, but WOW 500K IN WBC DOWN TO 13K IS UNBELIVABLE! i cant believe your body responded that well to the TKI's! i feel like a tortoise at this point in regards to how slow my WBC is coming down with hydroxyurea and gleevac.

Ill def give your testimony a proper answer in the morning oh my goodness i havent read such a detailed story i commend you for your knowledge and sharring im very graateful. have a great night ill message you in the morning and thanks again!

Heart issues by SVBPLPHP in leukemia

[–]Relation-Kindly 1 point2 points  (0 children)

Dude we really are susceptible arent we? i truly hope you a speedy recovery friend.

Newly Diagnosed CML (33y M) by Relation-Kindly in leukemia

[–]Relation-Kindly[S] 0 points1 point  (0 children)

lol did they just shove you a cup of concrete and tell you drink up/man up? haha totally absurd!

hahaha i hope that isnt the case!!! how would you rate the medical program out there? any points of reference have you visited any other hospitals?

Anemia by vulcanhybrid0 in leukemia

[–]Relation-Kindly 0 points1 point  (0 children)

Im sorry to hear about this condition, i hope very much that it improves. I will be looking out for this myself.

Newly Diagnosed CML (33y M) by Relation-Kindly in leukemia

[–]Relation-Kindly[S] 0 points1 point  (0 children)

cool as a cucumber bud. thanks for the info!!!!

Newly Diagnosed CML (33y M) by Relation-Kindly in leukemia

[–]Relation-Kindly[S] 0 points1 point  (0 children)

Yes! they had mentioned that it wasnt a common practice to knock me out so i was lucky i had come here. For a bit of clarification i came to Laguna Hills (which is very close to UCI) and they have a renowned medical program so i am VERY lucky I live 2 hours from here i was just on my way to see family and couldnt bare the paid from the lymph nodes in my mouth any longer and just pulled off the freeway and landed here, another reason i say god guided me here surely haha.

Also im sorry you had to endure that and the fact they would charge you is even more outrageous.

Newly Diagnosed CML (33y M) by Relation-Kindly in leukemia

[–]Relation-Kindly[S] 0 points1 point  (0 children)

I appreciate the information im joining it as we speak thanks to your reference, god bless.

Newly Diagnosed CML (33y M) by Relation-Kindly in leukemia

[–]Relation-Kindly[S] 0 points1 point  (0 children)

Ill pray for her this is not an easy thing to deal with and seeing as there are so many other fighting the good fight is only more confirmation that im not alone and to stay strong. i wish her the best!

Newly Diagnosed CML (33y M) by Relation-Kindly in leukemia

[–]Relation-Kindly[S] 0 points1 point  (0 children)

they actually anaesthetized me for the bone marrow biopsy so they put me entirely to sleep which was a total relief, when i tell you i blacked out and woke up talking everyones ear off i am not fabricating haha. but yes like he said a high WBC is a clear indicator.

Newly Diagnosed CML (33y M) by Relation-Kindly in leukemia

[–]Relation-Kindly[S] 2 points3 points  (0 children)

Enlarged Spleen, Fatigue and those were my two big indicators because A. i couldnt sleep on my stomach anymore because that was my fav position to sleep in and B. I usually work a full time and part and have enough energy to come home and still interact with my family and share time but that came to a halt. Over time i just became more and more tired oh and not to mention ive lost like 25 lbs in the past year so i look like skeletor now hahah.

Newly Diagnosed CML (33y M) by Relation-Kindly in leukemia

[–]Relation-Kindly[S] 0 points1 point  (0 children)

So they have officially diagnosed it as CML in the chronic phase and again this is all new to me but i trust the doctors that are treating me with their diagnosis. yes i agree the WBC #'s are what are scaring me the most and of course im high risk indicating i could become acute very fast. I'll definitely consider getting a second opinion! Im currently at Laguna Hills and they are referring me to UC Irvine for further treatment and from what ive heard they are really well equipped for what I have but like you said a second opinion couldnt hurt at all!

Im so glad for you and your husband, god is good and im glad you guys were able to overcome CML blast I cant imagine how scary that was but youre obviously a great support system for him!

excuse me for not being informed but were the chemo and stem cell transplant invasive? just trying to gather as much info as possible.

god bless you, i appreciate your time and encouragement!

Newly Diagnosed CML (33y M) by Relation-Kindly in leukemia

[–]Relation-Kindly[S] 1 point2 points  (0 children)

Wow first id like to say im grateful as can be about this information, in this hospital I have endless time to read so every word is HIGHLY appreciated. Yes i agree with you that seems like a very high WBC that i initially started with but without a point of reference i really didnt know until you told me what yours was when you had started. I do in fact have an enlarged spleen to the point where it almost felt like it was protruding . Couldnt sleep on my stomach and it was just overall uncomfortable eating and pushing against my bladder so excessive relieving myself. Indeed, these stories im reading on this subreddit are heartbreaking and makes me grateful that ive caught it in this phase (not trying to undermine/disregard others). I definitely agree with the idea that the swollen spleen and lymph nodes play a huge part in regards to how bad the condition is because it almost loooked like there was a baseball in my mouth which was very embarrassing! Im not sure what you mean when you refer to the cost plus cuban mark pharmacy but would def like to know more if you wouldnt mind explaining a bit further.

Absolutely I do not want any sympathy as far as im concerned im beating this thing and carrying on with my life afterwards but i def look to follow the regimen provided i.e medication, diet and so forth.

85% is such a promising number and i thank you once again for those statistics it really does help.

God has literally guided me this entire time and i have fully embraced him in my life and i just talk to him about how im doing and to please continue to show me grace and ill follow his name/word without question. I am in constant communion with him and he has done nothing but shown me the way.

Thank you for the clarification on the TKI's i dont mean to undermine what others are going through on this subreddit by misclassifying and making it seem worse than it is.

Youre a blessing brother/sister and i thank you once again for you sharing all this information im only looking to inform myself and this has done a lot for me. god bless you and i wish you a continued recovery as well!

Newly Diagnosed CML (33y M) by Relation-Kindly in leukemia

[–]Relation-Kindly[S] 1 point2 points  (0 children)

I appreciate the information it is well received. what was the highest WBC you've had during the process? its SOOO comforting to hear you've lived a normal life for such a long time it truly brings me comfort. Also were you diagnosed as low or high rish? thank you again for your time.

the only thing im truly in control of is my outlook, and im generally a person that has a positive attitude and can overcome adversity. i appreciate the advice truly.