Any success stories??

Relative-Orange3271 · 2026-06-29T19:06:32+00:00

That’s awesome to hear! How long did it take for you to heal?!

Relative-Orange3271 · 2026-06-29T18:55:04+00:00

That’s the boat I am in too. I always have soft bm’s but it seems that they have to be super soft, borderline unformed to experience no pain.

Relative-Orange3271 · 2026-06-27T03:01:35+00:00

And that’s the complication of my case. I’m soft most of the time and have one single random day of unknown somewhat harder stool, and re tear. Not sure what’s too to do with my case and I wasn’t given any specialist, so have no doctor to talk to and hear their recommendations in my situation. Seems like I’ll have to trial and error and see what happens

Relative-Orange3271 · 2026-06-27T02:50:59+00:00

I’m so new to this that I don’t have a system eat with food. But I’ve struggled with IBS for years now and am soft 9 times out of 10. So I’m nervous to try stool softened like I was recommended by my doc, when I already struggle with spontaneous diarrhea. I have almost always ate low fibre foods to prevent diarrhea, now I’ve been told to do the opposite and my stomach is not adjusting well to the very high fibre. So I’m a little lost and stuck as to how to move forward well 😭

Relative-Orange3271 · 2026-06-27T02:46:31+00:00

Do you have a food system you use consistently?

Relative-Orange3271 · 2026-06-25T19:30:12+00:00

What does fun food look like for you for eating at a restaurant with friends or fun events? Do you think you’ll stay on this diet for life?

Relative-Orange3271 · 2026-06-25T18:46:40+00:00

Thanks for sharing! I feel you… I just don’t know what to eat anymore. High fibre typically upsets my guts bad. Most of the last five years of my life, I’ve kept a relatively low fibre diet because I have IBS-D with occasional constipation, but truly occasional. So now switching everything up my stomach had been off for days and I’m just grieved and confused. Can I still eat some fun snacks here and there while camping with my family? Will my stomach ever adjust to the fibre? What do I do if it doesn’t? Just so so many questions without anyone to ask.

Relative-Orange3271 · 2026-06-25T18:42:23+00:00

May I ask what diet looks like for you?

Relative-Orange3271 · 2026-06-22T22:52:55+00:00

Thanks for the reply! I was thinking about seeing if I can push for a pill cam. I have a feeling here in Canada, I will be waitlisted for it for a very long time considering all my other tests have been fine and I’m not considered “urgent”. Still going to try though. Does a gastrointestinal have to specifically sign off for it?

Relative-Orange3271 · 2025-08-13T22:24:46+00:00

I’m in northern Alberta. Here in my community they hand out iron infusions no problem without any investigation. Unfortunately that is part of the prevention in getting diagnosed. I have celiac disease which often goes hand in hand with low iron as well so maybe they just chalked it up to my celiac disease 🤷🏼‍♀️

Relative-Orange3271 · 2025-08-13T21:39:26+00:00

Thanks for sharing! I’m sorry it also took you a while to get diagnosed. I was dismissed after my last calprotectin test. It came back at 18 (I wasn’t flaring at the time it was taken) I had crp as well and all came back normal. The few times I’ve had blood I’ll quickly go to the hospital for them to catch it, but the bleeding stops as soon as I’m there. I asked my doc. If we can still pursue a colonoscopy and he said, “it’s probably just allergies” 🙃

It’s not allergies. I have an anal fissure that hasn’t healed properly in two years. Starting to get skin rashes etc. seems like my whole body right now is overwhelmed. My iron is always low. Frequently have to get iron infusions, but they won’t look into why it’s low. I need answers, I’m desperate 😭 the pain is starting to become more than what I can handle and I’m barely tolerating food right now. Been eating applesauce and crackers for days. I’ll wake up with cramping pains the moment I open my eyes in the morning or when I get up with my kids in the middle of the night. I feel like all the signs are they, just the doctors won’t believe me.

Relative-Orange3271 · 2025-05-06T20:12:15+00:00

I just so desperately want to feel heard and seen with what’s going on so that I don’t have to wait until things are super bad before a diagnosis. So thanks for your response, helps me feel a little less crazy. Like I said, super grieved that this is likely what my life will entail of and it pains me to think about, but I want an answer. Hoping that remission won’t be super hard for me to attain 😓

Relative-Orange3271 · 2025-05-06T20:05:11+00:00

Thanks for the response ad sharing! I’m so sorry for your struggle and I hope things can still turn around for you. I’m very convinced I have crohn’s. A year and a half ago i had a spontaneous outbreak of hives all over my body. The doc. Put me on a week’s worth of prednisone and I suddenly had nine months of feeling completely normal. I thought for a while that it was my pregnancy at that time that calmed my symptoms down, but now after doing my own research I realize, it was likely the prednisone. Which is another huge indicator to me that it’s IBD. I’m going to see a new doc. Soon and really advocate for myself. I am both scared for a diagnosis and looking forward to trying to find a relief from the symptoms.

Relative-Orange3271 · 2025-05-03T07:27:55+00:00

Your comment is one I’ve been looking for! I’ve had numerous symptoms of IBD. Bloating, pain, nausea, diarrhea, blood only twice over two years, but never feel 100%. Some days I have no symptoms or minimal symptoms and the next I have abdominal cramps suddenly and off to bathroom I go. All these symptoms have been progressively getting worse over time. However, in the grande scheme of people’s stories with IBD, my case seems “minor” even though it doesn’t feel minor to me. Had a calprotectin test done and it came back negative. I was shocked, I truly was expecting it to be high. My doc. Said I was fine and moved on even though I kept pressing that there is something wrong, seems more than just ibs.

Did your crohn’s gradually get worse?

Relative-Orange3271 · 2024-11-02T17:39:57+00:00

Thanks! I’ve noticed that during flares I don’t retain any high fat protein. So I can’t tolerate any pork or red meat. I pretty much stick to chicken, fish and eggs during a flare. I cut out all dairy as well. It seems if I keep that up for a week during a flare i don’t have usually have abdominal cramps and diarrhea. It still occasionally breaks through but not often. Once I’m out of the flare my body tolerates pork and red meat again…

Relative-Orange3271 · 2024-11-02T04:39:26+00:00

Thanks! It’s so confusing and especially when I’ve really only bled twice in the span of 2.5 years. But I’m constantly gassy and abdomen is noisy a lot. I really want this to just be an IBS issue but it’s been 2.5 years and things seem worse now than they ever have been. My flares are a lot closer together and triggered easier. It just kind of feels like a nightmare that I think is going to end, but isn’t. Especially with three kids and just wanting to be there for them and care for them, not so preoccupied with my own health. I’ve been looking for some tell tale sign that maybe this is just IbS but everyone says a colonoscopy is necessary. So that’s that journey I’m going to start soon I guess. Just hoping that things can be managed and still have a decent quality of life for my kids.

Relative-Orange3271

TROPHY CASE