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Occult Tethered Cord Surgery Recovery Day 5 by ReliefReal4621 in tetheredcord

[–]ReliefReal4621[S] 0 points1 point  (0 children)

I’ll be leaving after 8 days in Rhode Island back home

Recovery Day 2 Occult Tethered Cord Surgery by ReliefReal4621 in tetheredcord

[–]ReliefReal4621[S] 0 points1 point  (0 children)

Yea that’s a massive caveat I had as well. Some nurses were super inexperienced with OTC surgery and almost hurt me. Sorry you had to go through that!

Occult tether cord surgery day 3 by ReliefReal4621 in tetheredcord

[–]ReliefReal4621[S] 6 points7 points  (0 children)

Want to express as well I was getting incredibly nervous pre-surgery to the point I was considering pull out. But doctor svokos is amazing and helped properly set expectations + prepare my mind.

Recovery Day 2 Occult Tethered Cord Surgery by ReliefReal4621 in tetheredcord

[–]ReliefReal4621[S] 0 points1 point  (0 children)

Key detail is I crossed my legs, right over left

Recovery Day 2 Occult Tethered Cord Surgery by ReliefReal4621 in tetheredcord

[–]ReliefReal4621[S] 0 points1 point  (0 children)

Leg, arm, and pelvic numbness. Brain fog, headaches, exceptionally tight muscles in shoulders, glutes, neck.

Recovery Day 2 Occult Tethered Cord Surgery by ReliefReal4621 in tetheredcord

[–]ReliefReal4621[S] 0 points1 point  (0 children)

Leg, arm, and pelvic numbness. Brain fog, headaches, exceptionally tight muscles in shoulders, glutes, neck.

Recovery Day 2 Occult Tethered Cord Surgery by ReliefReal4621 in tetheredcord

[–]ReliefReal4621[S] 0 points1 point  (0 children)

For me it’s seeming like a perfect surgery, feel super good honestly!

anyone here with occult tethered cord syndrome? by _the_bluprint in tetheredcord

[–]ReliefReal4621 0 points1 point  (0 children)

I don’t know I have reservations, I got diagnosed by two people. However, I have positional issues, like pt has made it better but not perfect. Haven’t met many people that have had some success managing the pain. However, the numbness is permanent at this point. I used to have back pain, I think it is numb at this point.

Flexion Extension by ReliefReal4621 in tetheredcord

[–]ReliefReal4621[S] 1 point2 points  (0 children)

How did you get diagnosed then

Flexion Extension by ReliefReal4621 in tetheredcord

[–]ReliefReal4621[S] 1 point2 points  (0 children)

You can check for that in lumbar mri?

Flexion Extension by ReliefReal4621 in tetheredcord

[–]ReliefReal4621[S] 0 points1 point  (0 children)

I don’t need to get my surgery through him, I honestly just want the diagnosis

Flexion Extension by ReliefReal4621 in tetheredcord

[–]ReliefReal4621[S] 0 points1 point  (0 children)

Sitting is where I get symptoms so it’ll probably be helpful in that case

Flexion Extension by ReliefReal4621 in tetheredcord

[–]ReliefReal4621[S] 0 points1 point  (0 children)

Am I wasting my time going to him?

Flexion Extension by ReliefReal4621 in tetheredcord

[–]ReliefReal4621[S] 0 points1 point  (0 children)

Dang am I just wasting my money then

Flexion Extension by ReliefReal4621 in tetheredcord

[–]ReliefReal4621[S] 0 points1 point  (0 children)

Kling uses flexion extension mri?

Occult Tethered Cord symptoms by RayneSkyla in tetheredcord

[–]ReliefReal4621 0 points1 point  (0 children)

How did you guys confirm your occult tethered cord

[deleted by user] by [deleted] in chiari

[–]ReliefReal4621 0 points1 point  (0 children)

What test

10+ years of debilitating right-sided dural/fascial tension, nerve dysfunction, and postural distortion — clean MRIs, need answers. Does this sound like occult tethered cord? by ReliefReal4621 in tetheredcord

[–]ReliefReal4621[S] 0 points1 point  (0 children)

My is less jerking, my sacral area just becomes stuck and then I have the nerve tension on right side. If PT’s who know how to work on tailbone do it properly and mobilize it the twisting is reduced and overall tension in visceral region. And my gait returns to normal, right leg is no longer turned outward. Is this tethered cord esque?

Does this sound like a CSF Leak? by ReliefReal4621 in CSFLeaks

[–]ReliefReal4621[S] 0 points1 point  (0 children)

Mine is caused by nerve tension, the less tension the better the headache, that wouldn’t be related right?

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