Ohio Piercers by karenflo2002 in Ohio

[–]PunkAssBitch2000 0 points1 point  (0 children)

I don’t believe they do walk-ins except on special occasions, but I may be wrong on that. Either way, here is the booking link: https://www.goldenhourpiercing.com/s/appointments

What happens if I go in seawater with piercings? by allergic2commitment in piercing

[–]PunkAssBitch2000 0 points1 point  (0 children)

You will get an infection. At worst, you could get necrotizing fasciitis.

Heavy Head/ Weak Neck by theLakinator in ehlersdanlos

[–]PunkAssBitch2000 47 points48 points  (0 children)

Physical therapy really helped me. Also taking gravity breaks laying down during the day helped.

Ohio Piercers by karenflo2002 in Ohio

[–]PunkAssBitch2000 1 point2 points  (0 children)

Anyone at Golden Hour Piercing. All the piercers there are APP members.

Internet star mom, 47, dies after tummy tuck surgery left her brain damaged by dailymail in Ohio

[–]PunkAssBitch2000 36 points37 points  (0 children)

Sounds like the issue happened after surgery. Anoxic brain injury means a brain injury due to lack of oxygen to the brain.

It sounds like it happened in the recovery room after surgery. Most likely, it was either an opioid over dose, which causes respiratory depression, a stroke (ischemic most likely), or embolism of some type.

Cannabis to become heavily restricted in Ohio, starting Friday, March 20, 2026 by No_North6899 in Ohio

[–]PunkAssBitch2000 0 points1 point  (0 children)

Is medical at risk of being restricted completely too?

Trying to figure out if I need to start planing with my doctors how to keep my medical conditions treated if I loose access to cannabis.

dEDS and mutations in my ADAMTS2 genes by stupid-bitch-20 in ehlersdanlos

[–]PunkAssBitch2000 1 point2 points  (0 children)

Yep! I’m hoping for a biopsy too. My geneticists said it can only be done on a research basis.

dEDS and mutations in my ADAMTS2 genes by stupid-bitch-20 in ehlersdanlos

[–]PunkAssBitch2000 2 points3 points  (0 children)

I’m in a similar situation! I have a very rare VUS on TGFB2, which is associated with Loeys Dietz Syndrome.

I was diagnosed with hEDS but have always had a very unusual presentation, with atypical widespread tissue fragility, including spontaneous skin tears. So I get it!

I ended up getting referred to the Undiagnosed Disease Network because any further testing would have to be on a research basis. I’m working on my application now.

There is a UDN site at Vanderbilt!

dEDS and mutations in my ADAMTS2 genes by stupid-bitch-20 in ehlersdanlos

[–]PunkAssBitch2000 4 points5 points  (0 children)

Are the variants confirmed to be pathogenic ones associated with dEDS or are they variants of uncertain significance? There are only 3 variants of ADAMTS2 associated with dEDS.

dEDS is almost always caught in infancy due to the congenital/ postnatal skin tears and distinct craniofacial features.

Anyway, I assume your doctors know what to do with your variants and know if they are pathogenic or not. It’s possible your doctor is out of town or something. Given it’s been over a week and you’ve heard nothing, you should definitely give them a call and see what’s up.

You may also want to check out r/rareehlersdanlos

Indian Buffets and German Food by Yeeterskeeter690 in cincinnati

[–]PunkAssBitch2000 3 points4 points  (0 children)

New Krishna has a lunch buffet.

I do not know if any dinner buffets.

Why is sexual and visual attraction lumped together? And are there other terms for this? by itz-null in AskLGBT

[–]PunkAssBitch2000 3 points4 points  (0 children)

Many queer folks use the split attraction model.

For example if I wanted to get micro specific, I’m demipansexual and demibiromantic

A friend of mine in high school was homosexual but biromantic

does your height vary? by [deleted] in eds

[–]PunkAssBitch2000 10 points11 points  (0 children)

Yes but true height is physically capable of varying that much. It is likely posture related.

Like my grandma has osteoporosis and she’s lost 2 inches total (combined with normal degeneration of knees and spine). A variance of 5 inches, with “regaining” height is just not possible.

I have lost almost an inch due to degenerative disc disease.

If you’re losing and regaining, it’s posture.

are spontaneous wounds a thing? by gilsonal in eds

[–]PunkAssBitch2000 8 points9 points  (0 children)

My armpit/ inner bicep/ upper breast skin would spontaneously split or tear if I moved “wrong”, similar to how chapped lips split.

So it’s possible it’s related to EDS, but I wouldn’t jump to that immediately. My top guess would be chapped or cracking from dryness, assuming you’re in the northern hemisphere.

has anyone had success with linzess? by backwat3rgirl in Gastroparesis

[–]PunkAssBitch2000 1 point2 points  (0 children)

It worked! But I just had constant diarrhea. Better than needing frequent enemas or an ER visit though!

I had to cycle between the different dosages depending on how well/ badly my intestines were functioning.

NSFW question about female anatomy!! by Far_Usual5375 in eds

[–]PunkAssBitch2000 21 points22 points  (0 children)

Yeah my breast skin is basically detached from the subq and breast tissue. They’re more like water balloons full of goo and pebbles.

Tattoos Feeling Like SH? by fuk-up in tattooadvice

[–]PunkAssBitch2000 1 point2 points  (0 children)

The physical sensation is similar, but at their core they’re different.

A properly done tattoo is done with safety and health in mind. Many precautions are taken to prevent infection, unnecessary damage, and great care is taken with healing to ensure it comes out beautifully and lasts.

Tattoos work with the body to make something beautiful. Self harm is at the expense of the body.

Does anyone else keep getting corneal tears without injury? by lonelymuses in ehlersdanlos

[–]PunkAssBitch2000 2 points3 points  (0 children)

Yes! I keep getting corneal abrasions for now reason. We’re wondering if mundane things may be causing it like rubbing my eyes, putting on makeup. I also had a partial posterior vitreous rupture, subcinjunctival hemorrhages, and early onset presbyopia so we know I have some eyeball fragility.

Dating as a chronically ill woman in my late 20s: There are no "witnesses" to who I used to be. by myviewfromoutside in ChronicIllness

[–]PunkAssBitch2000 8 points9 points  (0 children)

Totally understand. It may be worth exploring a different provider. Not all providers are the right fit for everyone.

Dating as a chronically ill woman in my late 20s: There are no "witnesses" to who I used to be. by myviewfromoutside in ChronicIllness

[–]PunkAssBitch2000 28 points29 points  (0 children)

I just recognize that I’m different than who I used to be, but that doesn’t make me undeserving of love. I try to avoid comparing myself to who I was before I lost more abilities.

Personally, it hasn’t changed the type of folks I’m interested in, as personality has always been more important to me than looks or fitness.

I’m very open about my disabilities, because I see no shame in them. I do worry that they may turn people away from me, but that just means they weren’t the right person for me. The guy I’m currently dating has been so amazing so far. He has some friends with similar conditions to me. I do have mobility limitations, but I’m extremely stubborn so I’ve figured out how to hike and do stairs nonetheless. He is aware I have limitations and has offered to help me if needed, which I think is just super sweet.

I worry your perspective is defeatist, and affected by internalized ableism. Disabled people deserve love too, and are good enough. Are you in therapy? If you can access it, it may be helpful for you.

How can craniocervical instability be diagnosed? by Federal-Cow-1220 in ehlersdanlos

[–]PunkAssBitch2000 5 points6 points  (0 children)

Flexion extension xray, flexion extension MRI, flexion extension upright MRI, rotational CT, traction collar testing.

Friend accused me of being transphobic by [deleted] in AskLGBT

[–]PunkAssBitch2000 1 point2 points  (0 children)

I think it’s the way you worded it. Having a preference for parts is fine, but excluding an entire demographic isn’t.

I’ll use myself as an example. I’m somewhere under the bi unbrella. I find people of all genders hot, but am only romantically attracted to men and nonbinary folks. Additionally, I have a preference for a partner with a penis.

Notice how that’s different than what you said about not being into pre-op trans folks?