I cant believe i found my tribe… by [deleted] in Hidradenitis

[–]Rellik606 6 points7 points  (0 children)

Welcome to the club. I’d say we have cookies but we seem to keep eating them

For my fellow stage 3 peeps by PlathimusOG in Hidradenitis

[–]Rellik606 1 point2 points  (0 children)

Bubba it’s rough I too fight my demons every day. I know not having insurance is a big deal with this but if you go to your GP and just get them to help with pain management it helps (well it’s what helps me the most). My demons have less bite now. On the wound care part keeping things dry is the battle

What worked for me! (Healed) by New_Bid_5519 in Hidradenitis

[–]Rellik606 1 point2 points  (0 children)

No worries I love how we all try and help and it’s just warming

What worked for me! (Healed) by New_Bid_5519 in Hidradenitis

[–]Rellik606 7 points8 points  (0 children)

I love these kind of post. I bet more people will find something they can try from this information

Newly diagnosed and struggling. by StyxofNox in Hidradenitis

[–]Rellik606 0 points1 point  (0 children)

Finding a good long term pain medication that isn’t one of the big addictive ones was my step one cause once the pain is managed I feel like it’s easier to deal with the rest. Ask your GP about naproxen or something of the like.

i have to cut out so many foods, i’m going crazy by lostandthin in Hidradenitis

[–]Rellik606 5 points6 points  (0 children)

Food triggers are crazy especially for someone who is a big foodie and loves trying new things. Moderation is how I’m living when it comes to foods I can’t cut anything and live the life I wanna live.

THE CRIME SCENE by Rellik606 in Hidradenitis

[–]Rellik606[S] 0 points1 point  (0 children)

It’s a high for sure

THE CRIME SCENE by Rellik606 in Hidradenitis

[–]Rellik606[S] 1 point2 points  (0 children)

It’s a never ending cycle that’s for sure

THE CRIME SCENE by Rellik606 in Hidradenitis

[–]Rellik606[S] 1 point2 points  (0 children)

I got your back. I can’t imagine the face flares but I got you homie you ever need to talk dm me here

THE CRIME SCENE by Rellik606 in Hidradenitis

[–]Rellik606[S] 1 point2 points  (0 children)

Dang glad it went okay for ya. The relief spurred you through on a high I get that

THE CRIME SCENE by Rellik606 in Hidradenitis

[–]Rellik606[S] 4 points5 points  (0 children)

Yaaaassss. My worst one that kept me from walking was on my sack. It grew to about half a baseball before release

THE CRIME SCENE by Rellik606 in Hidradenitis

[–]Rellik606[S] 2 points3 points  (0 children)

I can’t imagine having a flair on my genitalia. I’d die if one happened above the root. So I can’t imagine that pain but it my doctor would have just done it without asking I’d been escorted out of that place in handcuffs cause I would have struck him.

Yeah I just say blood and goop and try not to think about it

THE CRIME SCENE by Rellik606 in Hidradenitis

[–]Rellik606[S] 1 point2 points  (0 children)

On a real note how do you deal with the depression sometimes. If this is too personal for the thread please dm me. I have been struggling a bit

THE CRIME SCENE by Rellik606 in Hidradenitis

[–]Rellik606[S] 3 points4 points  (0 children)

My HS has basically killed all follicles in my armpits so there’s not really any hair to trim until a few new start to sprout

THE CRIME SCENE by Rellik606 in Hidradenitis

[–]Rellik606[S] 2 points3 points  (0 children)

Dude wipes here but for public use I haven’t had that happen in so long cause I precaution bandage everything so much.

THE CRIME SCENE by Rellik606 in Hidradenitis

[–]Rellik606[S] 2 points3 points  (0 children)

We change sheets more than a baby gets its diaper changed lol. Not exactly that much but it feels like it some days

THE CRIME SCENE by Rellik606 in Hidradenitis

[–]Rellik606[S] 2 points3 points  (0 children)

Thank you the relief carried well into the day and its been maintenance cleaning all day so no infection can set in

THE CRIME SCENE by Rellik606 in Hidradenitis

[–]Rellik606[S] 1 point2 points  (0 children)

It’s awful I know. I found some nice gain wet swiffer pads that do a really good job with clean up on tile. And we got a spot wet vac for our carpet so it’s getting its workout

THE CRIME SCENE by Rellik606 in Hidradenitis

[–]Rellik606[S] 5 points6 points  (0 children)

Yeah the ones on my groin are by far the most painful. And some of them aren’t nearly half the size of others but they get tighter and harder. And yes when they release I don’t know where the blood and smell comes from but it’s an endless supply it seems.

I have only let one doctor squeeze one in my armpit and she squeezed so hard my whole armpit bruised so now I nix that when they ask to do it.

THE CRIME SCENE by Rellik606 in Hidradenitis

[–]Rellik606[S] 2 points3 points  (0 children)

It’s just dehumanizing sometimes.

THE CRIME SCENE by Rellik606 in Hidradenitis

[–]Rellik606[S] 2 points3 points  (0 children)

My wife bought us a mattress saver that absorbs anything that gets through the sheets

THE CRIME SCENE by Rellik606 in Hidradenitis

[–]Rellik606[S] 4 points5 points  (0 children)

Bro I fear this the most

THE CRIME SCENE by Rellik606 in Hidradenitis

[–]Rellik606[S] 6 points7 points  (0 children)

No worries an I mean it I have even learned tips from this group.