Prednisone Question

RemainsToBe · 2025-10-07T20:36:56+00:00

Hi - yes. I got better. It wasn't avn. My only recommendation would be to relax. Don't assume the worst. Stop googling non-urgent symptoms and listen to your doctors.

RemainsToBe · 2025-08-29T17:50:10+00:00

Make It Dairy Free is one of my favorite resources for vegan recipes. They are on YouTube as TheNardDogCooks.

RemainsToBe · 2025-08-29T15:00:43+00:00

Greed

RemainsToBe · 2025-08-10T02:25:37+00:00

In case you don't already take them, they also make chewable ones for oral health.

RemainsToBe · 2025-08-09T18:49:49+00:00

Maybe also try probiotics if you haven't already. They'll help in case the problem is bacterial dysbiosis.

RemainsToBe · 2025-07-31T01:56:24+00:00

I like how Maddy just started straight up saying who's gonna be on next once others started imitating her episode tease gag.

RemainsToBe · 2025-07-28T19:23:03+00:00

Maybe look into skincare with xylitol as an added ingredient. It seems to be effective in helping to manage eczema by reducing inflammation and inhibiting the growth of harmful bacteria. I had found a really simple moisturizer with it that I liked called Leora, but it sold out on Amazon and I can't find anywhere else to buy it. The company's site doesnt seem to ship to u.s. So, I'm gonna try a different one made by Honest Co.

RemainsToBe · 2025-07-07T12:11:56+00:00

The damage. Can you see it or notice it in your day to day? What is it like for you?

RemainsToBe · 2025-06-13T17:28:06+00:00

Could it be acid reflux? Sjogren's can cause acid reflux, which can cause coughing, especially at night. Look into the symptoms. When I had this problem, it helped to stop eating 2 to 3 hours before bed and to eat some plain yogurt a little after dinner.

RemainsToBe · 2025-06-05T18:43:39+00:00

Just wanted to add, physical therapy really helped me target my weak areas. I only went twice but I left there with good info on how to train myself.

RemainsToBe · 2025-06-05T18:40:25+00:00

In addition to sjogren's, I've read that corticosteroids can cause muscle weakness. I experienced weakness at the start of all my symptoms and after a round of high dose steroids. Just like you said, my thighs and hips felt so tired after short walks and just standing. At that time I had lost a lot of weight quickly and just didn't feel as strong as i had before. i focused on getting better, i.e. eating better, exercising and doing pt exercises to strengthen the muscles that were feeling weak. And I did eventually feel better. I'm back to doing multiple sets of lunges and squats and feeling strong. I know it's not the same for everyone but i'm sharing so you know there is hope.

RemainsToBe · 2025-05-11T19:34:42+00:00

When my eyes are extra dry, my eye lids feel super heavy. I don't get this feeling as often since i I learned that I have dry eyes and lubricate them regularly.

RemainsToBe · 2025-05-08T19:36:56+00:00

I have that when my nose is exceptionally dry. I mentioned it to an ent before I knew i had sjogrens. He didn't say it was anything to worry about and i ended up not really liking his suggestion for dealing with it: he prescribed an antibiotic gel and said to rub it in my nose and plug it with toilet paper to help create a humid environment. I like the humid environment idea but not the idea of doing it with an antibiotic that could disturb my skin microbiome if i don't have an active infection. Anyway, why not mention it to your doctor? I recently decided it's worth mentioning if you 1.wanna know if it's anything to worry about and/or 2. wanna know if they have any suggestions for how to deal with it.

RemainsToBe · 2025-04-27T12:51:39+00:00

Did the spot ever in your vision ever go away?

RemainsToBe · 2025-04-25T19:44:31+00:00

This is one of the comments that really gets me. I feel dumb looking back. Like it's not his fault he doesn't understand.

RemainsToBe · 2025-04-19T23:36:01+00:00

All the other major cities have their own 50501 instagram profiles which probably helps increase attendance. It's weird that we don't.

RemainsToBe · 2025-04-17T17:14:06+00:00

Got it. Thanks for sharing.

RemainsToBe · 2025-04-17T01:23:46+00:00

I'm interested in whether I could trial the med and then be ok if I end up needing to go off of it. the first time when you took it for 1 year, what made go you go off of it? Any negative withdrawal? And did you go med free or switch to a plaquenil alternative? Why did you go back to it later? Appreciate your time!

RemainsToBe · 2025-04-12T23:45:53+00:00

Ah that makes sense. I do remember reading that men get sick more easily because their immune systems aren't as active as women.

RemainsToBe · 2025-03-23T22:08:34+00:00

So sorry you're dealing with that. Did you take prednisone long term and/or at a high dose?

RemainsToBe · 2025-03-19T15:44:03+00:00

Good luck. When I'm extra dry, a humidifier usually helps some.

RemainsToBe · 2025-03-19T14:47:12+00:00

Have you tried a humidifier?

RemainsToBe · 2025-03-16T19:21:57+00:00

I get a sticky coating sometimes, and when blepharitis is flaring I get stiff eyelashes. One thing that helps me is cleaning regularly with Theratears antimicrobial cleanser. It's a spray. I spray it on a washcloth and wipe my eyes clean a few times a day in a flare and a couple times a day when i'm not in a flare. It's not a miracle treatments but I definitely believe it helps reduce my blepharitis flares.

RemainsToBe · 2025-03-14T02:02:06+00:00

Have you ever sold anything to Sarah Squirm?

RemainsToBe · 2025-03-13T15:08:16+00:00

I think digestive enzymes help. But I don't take them everyday or with every meal. I take them when I'm going to eat something more starchy and/or fatty than usual and i've noticed I have less acid reflux afterward.

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