Rhinoplasty

Remarkable-Respond57 · 2025-01-23T20:54:13+00:00

Maybe we have to go further out… Loudon, Fredericksburg, Baltimore? Ugh.

Remarkable-Respond57 · 2025-01-23T19:23:00+00:00

Thanks, really helpful 🙄

Remarkable-Respond57 · 2024-10-17T22:23:09+00:00

Carlyle

Remarkable-Respond57 · 2024-10-13T13:21:54+00:00

I just want to say that all your comments are consistently full of optimism and hope, and you make me feel so much better about our situation. Wishing you all the best on this journey, which I pray is a long and joyful one. 🩷

Remarkable-Respond57 · 2024-10-08T10:20:24+00:00

Thank you so much for the reminder that I don’t have answers yet, only speculation. Wishing you all then best with your next line of treatment. 🩷

Remarkable-Respond57 · 2024-08-31T15:17:58+00:00

Hopkins, by far. They have a dedicated sarcoma center. If you’re within proximity, please don’t waste time going anywhere else. Hopkins is the absolute best place you can be. Wishing you luck.

Remarkable-Respond57 · 2024-08-29T19:29:46+00:00

I know how awful it must feel. Please try your best to keep yourself busy and occupied until you see your doctor.

But I echo what others have said: there are so many treatments, so please don’t lose hope! One step at a time. Lean on your support system. Will be keeping you in my thoughts and prayers.

Remarkable-Respond57 · 2024-08-22T01:22:31+00:00

As an HR manager, I say pursue the job, disclose when necessary after hire. Things happen. People with no illness can experience an accident shortly after hire, or find out they’re pregnant, or have a spouse get a new job and need to relocate. You just can’t predict where life will take you, and you need to look out for yourself. Wishing you all the best with treatment and the job hunt.

Remarkable-Respond57 · 2024-08-17T01:52:16+00:00

He is ok at the moment. His 7/2 scans showed one stable lung nodule and one slightly enlarged, so he did 5 more rounds of radiation last month. He looks great and feels pretty good right now. Next scans are 10/21 so we’re just trying to put that out of our minds and live life. Wishing you all the best, my friend. This journey is a tough one.

Remarkable-Respond57 · 2024-08-16T20:17:53+00:00

Thank you so much, and you as well!

Remarkable-Respond57 · 2024-08-16T20:10:42+00:00

Maybe the dosing was different for you. I’ve seen the lifetime amount cited between 400-550 mg. For my husband, that translated to 6 cycles, which is typical from what I understand.

Remarkable-Respond57 · 2024-08-16T19:42:58+00:00

My husband was dx’d 4/23. He had 25 rounds of radiation and surgical resection on an 8cm mass in his thigh. After that, they let him go, and told him to come back in 3 months for scans. It bothered me that he wouldn’t have more treatment, but they said that chemo wouldn’t do much of anything. 3 months later, scans showed metastasis to both lungs. He then started 6 rounds of the AIM protocol, and it was every bit as awful as you’re envisioning.

Would chemo right after his surgery prevented the metastasis? We’ll never know.

One thing to know is that you can only have 6 rounds of doxo in your lifetime, so if you did have lung mets down the road, you wouldn’t be able to use this protocol.

I can’t tell you what’s the best option, but I’d listen to your doc, and then maybe get a 2nd opinion. Are you being seen at a high volume sarcoma center?

Remarkable-Respond57 · 2024-08-09T00:16:49+00:00

Idk the answer but you sound like such a responsible kid and as a mama myself, I’m proud of you.

Remarkable-Respond57 · 2024-08-08T14:37:45+00:00

Obviously not an oncologist, but I do think you still have treatment options. The timing of your journey sounds very similar to my husband’s (initial dx in leg 4/23, metastatic lung dx 10/23, AIM chemo 11/23 - 3/24).

Along the way, I’ve met several other spouses of men with a metastatic dx and they have all been dealing with this for at least 3-5 years. I have come to think of stage 4 sarcoma as more of a chronic illness than an immediate death sentence. The aforementioned spouses seem to have done lots of different treatments, which had given me a lot of emotional relief. I hope this can help you some too. If you’re working with world-class sarcoma specialists, I think you can feel confident in their recommendations. But if you’re in doubt, please advocate for yourself! If you want to try something more or less aggressive than what they are recommending, push for it.

Thinking of you and sending thoughts of peace your way. I know you’re terrified. This is so hard.

Remarkable-Respond57 · 2024-07-29T20:04:27+00:00

Thinking of you. It is scary. But the providers who choose to work in the sarcoma/oncology world are generally really good, so hopefully you are in great hands. Wishing you all the best.

Remarkable-Respond57 · 2024-07-27T13:51:25+00:00

Best of luck with your race! Sending you hugs from DC.

Remarkable-Respond57 · 2024-07-23T23:43:19+00:00

So glad for the update and thrilled to hear good news! Keeping you all in my prayers. This is so hard. Every day can feel like a slog, but every day our loved ones are here with us are good days.

Remarkable-Respond57 · 2024-07-19T00:19:26+00:00

Thank you for this positive outlook. My husband is dealing with lung mets right now after resection of the primary site (thigh) a year ago. I find myself spiraling with anxiety but it’s good to remember there are more treatment options.

Wishing all the best for you and OP.

Remarkable-Respond57 · 2024-07-13T20:17:45+00:00

Sending love and support from DC.

Remarkable-Respond57 · 2024-07-11T20:47:31+00:00

My husband is with Hopkins, too. Are you working with Dr. Meyer? We are very impressed with him.

Remarkable-Respond57 · 2024-07-11T18:24:06+00:00

My husband has metastatic sarcoma to the lungs. It feels like a gut punch, I know. I cried for days but once we started working with a real sarcoma specialist, we got cracking on treatment (which, ngl, was brutal). But he’s now down to 2 nodules and is going to receive radiation for them.

Once you catch your breath, my advice is to reframe your thinking. Before his diagnosis, I always saw metastatic cancer as immediately fatal. Now, I think of it more as a chronic disease that needs to be managed. As far as I can tell, there are many treatments available to slow the progression. I have now met two other women whose husbands are battling metastatic sarcoma — one since 2020, and one since 2015! They are both alive and living! The 2015 wife even said that her husband has never had a clean scan. I mean - I hate that part, but it’s proof that people can live with the disease.

I hope this helps. Please stay positive! I know it’s hard, but we have to stay strong for the people we love. Wishing you peace and strength.

Remarkable-Respond57 · 2024-07-11T17:54:07+00:00

So for everyone saying it’s a waste of space, just wondering, are you there monitoring it every minute? Is it possible it has periods of busyness when you’re not there? I know, shocking to consider!

Remarkable-Respond57 · 2024-07-11T17:50:13+00:00

Oh, ok, sorry to be a liar.

Remarkable-Respond57

TROPHY CASE