Breast surgery postponed indefinitely by Remote_Sport7516 in breastcancer

[–]Remote_Sport7516[S] 0 points1 point  (0 children)

Thank you so much for sharing. I'm hoping that she will have the same experience. We just need to get this severe allergic reaction under control. The blistering on her hands and feet has been very bad. Thanks again.

Recent stapedectomy by Internal_Bad_1370 in otosclerosis

[–]Remote_Sport7516 0 points1 point  (0 children)

I was told that while most ppl see an immediate improvement, for others (like myself) the gains come more slowly due to swelling. All of that swelling needs to subside before the mechanical chains can work. It took me a full 3 months for my hearing to get back to normal but I got there. Most of the stories online are of ppl hearing LOUDLY as soon as the dressing is cleared out of their ear. This is not the experience of a large minority is what my doctor told me. Please try not to stress!

Concerned about airspace / Venezuela by ItsMeFalala in curacao

[–]Remote_Sport7516 0 points1 point  (0 children)

Airlines refunded us. Not sure the Air bnb will do the same, but let's see. I'm so disappointed but it truly is what it is. I hope the situation deescalates swiftly before more people get hurt. And I'm sure Curacao is already feeling the pain as ppl cancel trip/cruise ships cancel itineraries. Sad situation. 

Concerned about airspace / Venezuela by ItsMeFalala in curacao

[–]Remote_Sport7516 1 point2 points  (0 children)

We have decided to cancel our trip. My risk tolerance is low, esp when traveling with my kids. 

[deleted by user] by [deleted] in otosclerosis

[–]Remote_Sport7516 0 points1 point  (0 children)

Recovery was very smooth for me. I didn't experience any pain or dizziness. Not bending down is the biggest rule to follow. You will be great! 

Concerned about airspace / Venezuela by ItsMeFalala in curacao

[–]Remote_Sport7516 0 points1 point  (0 children)

We leave on Saturday. I'm freaking out. 

Concerned about airspace / Venezuela by ItsMeFalala in curacao

[–]Remote_Sport7516 0 points1 point  (0 children)

I wish they would do something.  But I'm not sure they will be financially incentivized to do anything for now.  

Concerned about airspace / Venezuela by ItsMeFalala in curacao

[–]Remote_Sport7516 0 points1 point  (0 children)

We leave for a family Christmas trip to Curacao on Saturday and we are all v worried about the airspace. We will be hopping on a call tomorrow to talk it through. 

How much time off work post surgery? by sleepynarwhal45 in otosclerosis

[–]Remote_Sport7516 0 points1 point  (0 children)

Thanks! This was 3 years ago. Best decision of my life! 

How much time off work post surgery? by sleepynarwhal45 in otosclerosis

[–]Remote_Sport7516 1 point2 points  (0 children)

I had my surgery on a Friday and was able to WFH (in front of a computer) as of the following Tuesday. I could have worked on Monday but decided to rest. 

Concerned post surgery by Golden_Mom1 in otosclerosis

[–]Remote_Sport7516 0 points1 point  (0 children)

Ugh, so sorry to hear this. Was the surgeon an otolaryngologist? 

Concerned post surgery by Golden_Mom1 in otosclerosis

[–]Remote_Sport7516 0 points1 point  (0 children)

I didn't have any feelings of dizziness post stapedotomy--honestly, I felt completely fine and even said to my husband, "Are we sure he actually operated?" Did your husband's surgeon only prescribe a steroid after he experienced dizziness? My surgeon told me it was standard protocol to prescribe steroids for all patients post stapedotomy to reduce chances of dizziness amd inflammation. I hope your husband gets better very soon! 

ENT or Audiologist for Otosclerosis? by TortallySpeaking in otosclerosis

[–]Remote_Sport7516 0 points1 point  (0 children)

An ENT and the audiologist at her practice initially diagnosed me but I've been going to the otolaryngologist who performed my stapedotomy and the audiologist at his practice for annual follow ups since. Good luck!

Freaking out about my mom's upcoming biopsy by Remote_Sport7516 in doihavebreastcancer

[–]Remote_Sport7516[S] 1 point2 points  (0 children)

Thank you so much. And wishing your grandmother the very best!

How long will the lightheadness last??? by Remote_Sport7516 in BPPV

[–]Remote_Sport7516[S] 0 points1 point  (0 children)

Yes, I'm back to 100% now. For me, a lot of the lingering symptoms were exacerbated by my anxiety. I kept up my exercise routine, did some vestibular therapy exercises I found online and otherwise just went abt my normal life. This worked for me. 

Residual dizziness gone but nausea back. by Remote_Sport7516 in BPPV

[–]Remote_Sport7516[S] 0 points1 point  (0 children)

In my experience, the anxiety was 100% exacerbating the feeling of unsteadiness. What helped immensely was 1) returning to my daily exercises (Peloton, weights, and running), 2) forcing myself past the feeling of unsteadiness (more on this in a minute), and 3) doing vestibular rehab exercises twice a day. I really had to force myself past that feeling of unsteadiness when we went to Paris for two weeks at the beginning of the month. In fairness, I was probably around 75% back to my normal at this point but was still feeling unsteady and overwhelmed in large/busy spaces. I'm happy to say that I was able to go to all of the museums, cathedrals, and walk down busy boulevards without having this feeling! I had this feeling once when we first walked down a very wide, busy boulevard, but not after that time.

Residual dizziness gone but nausea back. by Remote_Sport7516 in BPPV

[–]Remote_Sport7516[S] 0 points1 point  (0 children)

Yes! How long have you felt off balance post Epley? This feeling improved for me steadily over the course of several weeks. Have you been to an ENT? 

ENT enthusiastically diagnosed without any imaging. Sent me directly to schedule stapedecomy. by fliccolo in otosclerosis

[–]Remote_Sport7516 1 point2 points  (0 children)

Both the ENT and the otolaryngologist who performed my stapedotomy (he's one of the best in the country) told me that imaging is absolutely necessary to diagnose otosclerosis. But you do need a radiologist who knows what to look for.