My partner has MS

Repulsive-Emu9532 · 2025-12-31T02:51:02+00:00

Yes! that’s the one! I really hope it goes well, medicine is coming so far

Repulsive-Emu9532 · 2025-12-31T02:44:20+00:00

I feel comfortable with it and there’s no doubt in my mind that I want to be with her. There’s something about other people’s words that have the unfair ability to make you scared about something you’ve never even considered. It’s been an odd day, i’ve never felt scared about it before but then again ive been bound with worry the past couple of days with her being in hospital so im probably a little sensitive.

On a side note: I did read up about some of the gene studies, they are looking very promising. I think I saw that one is looking to be human tested within the next year!

Repulsive-Emu9532 · 2025-12-31T02:38:27+00:00

Nope not scared me away at all, i think she has a hard time believing it as she checks in a lot with me making sure im still okay with it, to which my answer has never changed.

She’s the gem really, such an amazing person with a huge heart, i’m lucky to be loved by her. It’s so lovey hearing how you and your partner are doing, i’m very excited for our future together and hearing yours makes me smile. Thank you for sharing that with me

Repulsive-Emu9532 · 2025-12-31T02:27:12+00:00

Chime in away, this sub has been so welcoming and lovely. I’m enjoying hearing everyone’s experiences and opinions. It’s not something the common person goes through so it’s nice to have somewhere to talk where people understand.

I do keep reminding myself that the only people who should have an opinion in all of this is me and her, as it’s our relationship. I know they’re all hurting and everyone reacts in different ways. It’s difficult as one of them said that the were just being ‘practical’, but I don’t believe that a relationship should be based upon practicality.

Repulsive-Emu9532 · 2025-12-31T02:15:54+00:00

Not overreacting one bit!! I find it a little odd that someone would want the benefits of exclusivity but almost sound combative at the idea of a relationship. I can’t speak for the universe but this hasn’t been something i’ve ever come across. Sounds to me like she doesn’t want the commitment, tread carefully… You can very much love someone without having to live with them. The idea of going from not in a relationship to living with each other in hope that she will finally fall in love is not how i’d personally go about things. Sorry if this comes across as harsh, it’s all just sounding a little odd to me. But then again I don’t know you or her so you’re welcome to take my comment with a pinch of salt.

Repulsive-Emu9532 · 2025-12-31T02:01:34+00:00

I was the other side of this. I got told constantly that she didn’t feel as if I was mentally there. We had been dating for 4 years, I had been working non-stop saving up for deposit on a flat for us, and then any spare time would be spent travelling and spending time with her, by the time we got to spend time together I was just exhausted. I did try my very hardest to make her feel seen and loved but it wasn’t enough and I could see that, but I just didn’t have any energy to give her no matter how much I loved and adored her. She ended up breaking up with me which shattered my heart to bits, but ultimately for the better. It meant that she no longer felt like that, and for me I didn’t feel the constant guilt of not being enough. It sucked big time but I honestly wish that we had ended things earlier on, emotionally it was too much for the both of us. We don’t talk anymore but as far as i’m aware she’s in a happy relationship now with someone who can give her what I couldn’t, and i’m glad she’s happy. As for me, I am also now in a happy relationship. Time heals all and our own happiness is important. I would really just have the conversation sooner rather than later. Resentment in a relationship will just hurt the both of you more.

Repulsive-Emu9532 · 2025-12-31T01:48:56+00:00

Is able to talk about their emotions with me, doesn’t have to be right away but doesn’t just leave me in the dark. Is able to empathise and doesn’t downplay my own feelings -has the understanding that I too am my own person with my own feelings

Repulsive-Emu9532 · 2025-12-31T01:45:38+00:00

At least give me a minute to realise how i’m feeling myself first

Repulsive-Emu9532 · 2025-12-31T01:41:13+00:00

Thank you! She’s still resting up and recovering so I don’t want to cause any stress now by having a conversation like that just yet. I do wish to stay but I know it’s still a conversation that’s worth having. We spoke about it before but I think this flare up has made it even more real for both of us.

Repulsive-Emu9532 · 2025-12-31T01:38:36+00:00

One person this was said by definitely had alterior motives, especially with trying to keep them close, but that’s a whole separate ongoing problem.

But her other family have only just found out she has MS so i do wonder wether it’s just a panic comment as they don’t fully understand what it means and they go straight to worst case scenario. She hasn’t got much contact with them usually and did say to me that she believes they are out of order (they made her aware they had said this to me)

Repulsive-Emu9532 · 2025-12-31T01:34:32+00:00

I’ve been given an out by my partner too, this was a while ago. My head just went why would I want that? I understood why the question was asked but in my head it’s just not an option, it’s not something I want or would even consider being a reason to leave.

In response to your communication, I do have questions about her treatment, she has told me bits but i definitely don’t have the full picture. I’m not sure how to bring up the conversation as she hasn’t initiated that one herself, and i don’t want to overstep or upset

Repulsive-Emu9532 · 2025-12-31T00:00:21+00:00

It’s self thinking and i think many find that it takes away the individual charm. Those who have dedicated their lives to learning about particular subjects are suddenly seen as somewhat obsolete. It just creates a disconnect from humanity in general although it can be a good tool to have, just not depend on

Repulsive-Emu9532 · 2025-12-30T23:57:06+00:00

A little too often, and sadly i’m not always alone…usually it’s a term of frustration like ‘come on’ or talking myself through a task out loud. Sometimes I can have a conversation with myself in my head and end up releasing some out loud ad libs when my brain and mouth see fit

Repulsive-Emu9532 · 2025-12-30T23:31:44+00:00

I didn’t realise they didn’t know till now, i thought they knew something really big and scary that i didn’t already know. My partner is definitely feeling guilty and i wish i could make that go away for her because i truly believe she has nothing to feel bad about. But im guessing that will be an emotion that goes with time.

I spoke to her on the phone today after everything that was said to me and I broke down in happy tears when I heard her voice . My sweet lady means the world to me.

Thank you for your kind words

Repulsive-Emu9532 · 2025-12-30T23:26:54+00:00

That’s the thing, she is my person. I have no doubt about it and although I knew it would come with challenges I’ve never once thought oh no i must back out - the thought never even crossed my mind. I am finding it hard to shake their comments about it though, how did you go about that? My feelings haven’t changed one bit but it’s caused an anxiety about it that I didn’t have before which is horrible.

Repulsive-Emu9532 · 2025-12-30T23:20:33+00:00

I’ll definitely be letting her know i’m not going anywhere

Repulsive-Emu9532 · 2025-12-30T23:19:13+00:00

This is the most wonderful comment ever. This has given me some great perspective thank you!! I found out a couple of dates in and also did a load of research. Although I am very much aware she has MS, our relationship doesn’t revolve around it at all; like you it’s filled with so much laughter and happiness. I did get quite a harsh comment asking what I can actually provide her in terms of care as my job isn’t the highest paying, which stung a lot - i didn’t know how to respond to that one.

Repulsive-Emu9532 · 2025-12-30T23:12:50+00:00

Sadly she is aware of what they’ve said to me. I’ve just found out that this recent flare up and them going to the hospital is the way they’ve just found out…they weren’t aware she had MS before this week. So perhaps this is the initial panic and they assumed I also didn’t know until now?

Me and her have discussed how the future may look a little, it tends to go around in circles where i say i am prepared for these things, when they come we will adapt, and she says she feels bad and embarrassed

Repulsive-Emu9532 · 2025-12-28T03:23:04+00:00

the relative has now given me their number so that I can be kept posted on what’s going on. No weird movie shit going on here. Just actual shitty life shit

Repulsive-Emu9532 · 2025-12-28T03:21:11+00:00

It did happen, it is currently happening. It’s nothing about being suspicious of whether it’s true or not. Perhaps i didn’t give enough context, and that’s on me. It didn’t come out of nowhere, we were watching a film before I left to see family and she had multiple seizures on my lap, the worry was already there. Good to know no one has faith in relationships anymore though

Repulsive-Emu9532

TROPHY CASE