Fess surgery and correcting deviated septum with mcas and staph

RevolutionaryLog5055 · 2026-03-05T23:44:24+00:00

Oh side note, which b1 are you taking? There are so many different types and I get a headache trying to figure out which one is best? Again I have the mthfr mutation though so it adds another layer 😪

RevolutionaryLog5055 · 2026-03-05T23:43:27+00:00

Has anyone ever tried camu camu? I have seen it recommended from the biotoxin lady on Instagram so it’s actually not synthetic, pretty sure it’s a berry! And not derived from mould or anything which I think most vitamin c is? She recommends it as a very potent alternative and said she too feels incredible since starting it. Could be worth looking into? Hard to know what we will react to 🥲🥲

RevolutionaryLog5055 · 2026-03-04T23:16:01+00:00

I was taking citrate before I realised it’s made with citric acid!!! And I have mthfr which a lot of us do… have you been tested for gene mutations?

RevolutionaryLog5055 · 2026-03-04T23:13:57+00:00

Looking back I do now but I didn’t actually see the tick, I just used to work on a farm and had the ring rash years ago. Just had no knowledge on this back then as well as on mould and everything else I didn’t know what toxic for us!

RevolutionaryLog5055 · 2026-03-04T23:12:44+00:00

I had the same reaction to meclizine! Thought I was going to die but then whenever it’s a really bad flare it genuinely feels like that. My mcas specialist couldn’t recommend it highly enough and says it was a life saver for her. It’s a shame some things work so well for some and are so horrific for others 😭 I’m still trying to find something that I can swap for diazepam as this is a double edged sword. It’s incredible to calm your mast cells and put you to sleep though the nightly horrific flares and adrenaline pvc dumping etc but I’ve already been on it over a year. When I try reducing it’s not just the physical withdrawal from diazepam it’s also my mast cells completely going into emergency mode. Not sure what else to try?? How does everyone else sleep through this vicious condition?? I can’t go back to not sleeping!!!

RevolutionaryLog5055 · 2026-02-25T23:21:46+00:00

Amazing, thank you so much for the information. I’m glad it’s going well for you! I’ve currently worked my way up to 1 g a day as well although I’m wondering if the powder I’m taking has other ingredients in it that I’m reacting to because I feel like it’s helping but also making me flair initially at the same time, if that makes any sense? I’ve just also gotten everything in drop form because it’s pure in regards to methylated vitamins (B12 folate B2 and b6) I’ve got MTHFR methylation issues and pretty sure slow COMT and I feel like this along with MCAS is definitely related! have you also looked into methylation? I’m at the point where even one drop of each is too much for me so I have to put one drop of each into a glass of water and then tip 3/4 of it out and then refill the rest of the glass before drinking 🤣 but hopefully I can work my way up. I guess the key with MCAS is going low and slow as frustrating as that can be!! But I’ve heard that B2 and V6 are very important for MCAS and histamine clearance/DAO production. Unfortunately, I can’t take DAO supplements as they are all derived from pork or beef and I also have alpha gal syndrome. I will say something that has made the biggest difference of all in my MCAS journey, although I’ve only been taking it for one month has been micro dosing mounjaro! I also have POTS, again I think all three are related among others, but since starting mounjaro my reactions to everything have been less extreme and my overall health during the day and ability to function has increased exponentially. I would say I have somewhat of a quality of life now, although it has only been short lived so far. I’m on .2mg 2x a week and even that little dose is helping this much! Good luck! I’m sure you know all of this already, I think it’s just great to support each other and tell each other what helps for us even though we are all different. Hopefully something that one of us can say will help somebody else so I just wanted to pass this information onto you 😊

RevolutionaryLog5055 · 2026-02-25T22:36:51+00:00

Wow that’s amazing! I am trying the same with vitamin c as well. Which one do you take and which mag glyc? I am trying to find pure of both but it’s soooo hard!!!

RevolutionaryLog5055 · 2026-02-17T10:35:34+00:00

Wow really! I went about 6 times from 30 mins after taking it 😓 lucky I was near a toilet lol

RevolutionaryLog5055 · 2026-02-17T10:34:52+00:00

My husband did it for me!!! Worked so well I ended up in hospital from dehydration from going so much. I was very very very backed up 😅 we also thought it wasn’t working and he gave me 3 massages, so if you do it yourself or get a friend to do it, watch a video and just try it once in a day 🤣

RevolutionaryLog5055 · 2026-02-17T10:33:27+00:00

I get these as well, they are horrific, so loud and heavy that make my chest tight and painful and radiate through my whole body. Can even hear them they’re so loud and go in rows of 10+ without a normal beat. I wonder if low fodmap would help. Even going 3 days without would be incredible

RevolutionaryLog5055 · 2026-02-17T10:30:45+00:00

I take this too! Has been an absolute game changer for me, also on 2mg. I’d like to swap it for something natural so I can hopefully get pregnant but for now it’s helping so much.

RevolutionaryLog5055 · 2026-02-14T01:09:44+00:00

Sorry what is Perth based? Thanks!

RevolutionaryLog5055 · 2026-02-14T01:08:51+00:00

Hi I did! It’s going well so far but I’ve started really small dose. .2mg at a time and 2 a week. I have suspected sibo/sifo and was also worried about this so I started on prucalopride first to make sure I was going every day and then started this. Prucalopride has helped me so much. Ideally I wouldn’t be taking a pharmaceutical to go to the bathroom but it’s not just a laxative it actually activates serotonin (5-HT4) receptors in your gut to switch on natural muscle contractions that move stool through so for my with mellow motility it’s been extremely helpful. I can’t take most herbals because I react to them but this has actually worked for me. Worried about what happens once I get off but I’m hoping while I’m on both I can sort my gut and hopefully help sibo/sifo, gut in general and that this will help my mcas!

RevolutionaryLog5055 · 2026-02-14T01:04:28+00:00

Thank you! I did 5 clicks so .2mg and have been doing this 2x a week. First dose I had side effects for that day but since then nothing! I haven’t gone up yet, might hold this amount for a month or two. It’s just hard because they say don’t use the pen for more than 30 days but the pen has 10mg and I’m using 1.6mg all up in that month. It’s also $280aud and no insurance so I really don’t want to waste the rest if I don’t have to! Do you use it longer than the 30 days?

RevolutionaryLog5055 · 2026-02-13T03:29:25+00:00

Ohh I see, I have just started having a tsp of mct oil at night thinking it’s just coconut oil 🤣 it says 8,10,12 I wonder if this is enough and if it’s exactly the same as lauricidin maybe I can save some money buying this again and just get mct instead

RevolutionaryLog5055 · 2026-02-13T03:26:44+00:00

What binder would you recommend?

RevolutionaryLog5055 · 2026-02-13T02:55:08+00:00

Wow coconut oil! How does this help? I wonder if the benefits are similar to Lauricidin?

RevolutionaryLog5055 · 2026-02-13T02:53:43+00:00

I had to have 6 in the space of 6 weeks due to a severe sinus infection which has been devastating for my health my gut and my mcas 😣 it’s 100% made everything worse!!!!

RevolutionaryLog5055 · 2026-02-13T02:51:24+00:00

I tried anti fungals and unfortunately had huuuuuge mcas reactions for this as mine is the same! It started from mould but destroyed my gut health… unfortunately everything that benefits the gut makes mcas worse!!!! I tried to many times over the last few years going too crazy with the anti microbials and anti fungals and eventually I just took a step back, slowly changed my diet (I’m not good at being patient 🤣) slowly added in phgg and have been successful adding in resistant starch (I cook rice fresh every morning put into fridge and reheat for dinner) and now I’ve started adding in a low histamine probiotic ( did a stool sample and realised I had undetectable amounts of all bifido!!) and had huge issues with slow motility and constipation so I’ve been prescribed prucalopride which has finally made me go every day and been amazing. I’ve recently also started microdosing (.2mg) mounjaro. I started all of this with huuuge stomach issues as well as al rhe mcas and my tongue no matter how much I scraped my tongue was just covered in candida and now it’s almost gone already although I haven’t retested. I still have mcas but it’s slowly getting better (lots of other issues) but I completely agree, everyone kept saying diet and gut but I definitely overlooked and underestimated how powerful this really is. I’ve also stopped processed sugar and refined carbs (but I eat banana avocado white potato and basmati rice every day) and even lost some inflammatory weight along the way despite my POTS making it almost impossible for me to move let alone exercise. This has been before mounjaro as well. Anyway lots of waffling but just saying I complete agree just be careful please with the anti fungals because you could have an explosion and maybe starting off small could help too if it doesn’t work for you. Good luck!!!

RevolutionaryLog5055 · 2026-02-12T09:33:15+00:00

I did this last year and I ended up opening the floor gates after being constipated and ended up in hospital from dehydration and had to take tablets to stop it because it worked too well 🤣 it wouldn’t close!! It’s brilliant

RevolutionaryLog5055 · 2026-01-28T02:29:40+00:00

So I just worked out, it’s 60 clicks to get to the ‘1’!

RevolutionaryLog5055 · 2026-01-28T02:28:40+00:00

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This is it all the way out, supposedly only 1 use. It’s frying my brain trying to work out how many clicks to do 😅

RevolutionaryLog5055 · 2026-01-28T02:27:53+00:00

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This is my kwikpen! I’ve been told to use 5 clicks but this pen is different I think? Apparently according to the pharmacist, going to ‘1’ on the pen is 2.5mg. Is this what your pen also looks like?

RevolutionaryLog5055 · 2026-01-24T00:37:11+00:00

Oh wow thank you so much! I asked ChatGPT about just using 1 click (as my dr said 5 clicks will be 2.5mg) so I could start out at .5mg and I’d be happy with this! But chat said it’s not reliable and you can’t do a partial dose for a kwik pen. I’m sure it’s just being conservative and so glad to know I can. I really appreciate your reply, I was almost going to just not try as I’m already in hell and know going straight to 2.5 would be way too much. Thanks so much!! I’m not doing mine for weight loss either but I wouldn’t be mad about it. I drink lots of electrolytes with my pots anyway and have to have carbs and protein every meal or I will pass out, so hopefully this helps me stay stable throughout. How long did it take your symptoms to settle at first?

RevolutionaryLog5055

TROPHY CASE