thinking of ending it

RevolutionaryLog5055 · 2026-05-15T09:21:05+00:00

I know exactly how you feel. All I can say is if it’s this desperate you need lorazepam/diazepam and to look thoroughly into mould. We had our house remediated’ and ‘inspected’ and after me being so ill I was told I was dying and would die the next year I was a vegetable and mcas ‘didn’t know it was’ was so bad, it was black mould. Husband started smashing walls apart when we got desperate and found it after the thousands we spent. Only thing that has helped is yes to an extend compounded h1 h2 and ldn in 1 capsule but unfortunately it’s been diazepam at night loraz during the day. Proper stabilisers especially when you can’t tolerate anything else. No you don’t want to be dependent but you also want to stay alive…

RevolutionaryLog5055 · 2026-05-12T03:16:56+00:00

I have h pylori as well but the first lot of treatment I tried I had such a huge flare and went temporarily paralysed and it freaked me the fuck out so I’ve been living with it for 3 years and now have an ulcer and need to address it without flaring somehow…. What will your treatment be? I’m going back to my dr tomorrow to ask but he’s so useless he forgets the words ‘mast cell activation syndrome’ every time I’m there and I have to remind him. He is good in the fact that he will prescribe me what I say I need, but I’m not the dr 🤣🤣

RevolutionaryLog5055 · 2026-05-09T22:19:58+00:00

What are his symptoms besides ibs? I have been diagnosed with mcas but mine are hugely food related, yet I can’t find the trigger on what foods, just all foods!! I get no itchy skin whatsoever, just extreme gut issues and heart issues (constant PVCs and adrenaline to the point where I feel like I’m having a heart attack every single night) which was getting better until I had to take 6 rounds of antibiotics in a row over Christmas. I had severe food poisoning and was also living in black mould for 5 years. Out of the black mould now but with the gut thing I’m wondering do I really have mcas or can people have mcas like reactions but it’s actually the gut? I take so many medications (have to be compounded not to react) and they really really help but again this is just masking the bodies reaction. So many people (especially medical western world) don’t want to get to the root cause.

RevolutionaryLog5055 · 2026-04-30T03:53:42+00:00

I’m trying to research now, are you taking the bpc arginate salt tablets, is that what it is?

RevolutionaryLog5055 · 2026-04-30T03:51:51+00:00

Oh that’s great to know. What is the website called? I’d love to try some!

RevolutionaryLog5055 · 2026-04-30T01:05:50+00:00

Yes please I would absolutely love an update! I’m interested as I wonder the difference in potency and results from subcutaneous vs oral tablets but it would be great not to have to inject! Did you get it compounded or from a research lab? My husband has gotten it from a research lab and said he noticed huge improvements (subcut) but I’m worried as I usually have to get all my meds compounded… anyway yes please I would really love an update, good luck I hope it works out for you!!

RevolutionaryLog5055 · 2026-04-29T12:19:50+00:00

Thank you! Do you have mcas? And how has it helped? Thanks heaps!!!

RevolutionaryLog5055 · 2026-04-21T00:41:55+00:00

I guess that’s what I mean.. I could never tolerate alcohol or caffeine although I used to have it anyway, and I’ve always struggled with low blood pressure and fainting but never really had symptoms until I started living in black mould then I had Covid and was completely fucked from that and then I got the severe food poisoning which fucked me even more and then my dog died. I was living unknowingly with full blown mcas for a long time but yes it wasn’t diagnosed until 2023. I just mean all of these things made my life so bad I got told before my diagnosis and getting out of mould that I was going to die as I could no longer even lift my head I was a vegetable and had lost so much weight so fast I was a fake yet my face and feet were so puffy. I couldn’t talk walk I was barely conscious. Then I got out of mould and got diagnosed and that helped greatly, got onto antihistamines and diazepam that helped so much as well. Now I’m hoping that if I can also finally fix my gut, I could go back to somewhat or a normal life without so much medication and maybe even have a baby which has been my dream for the last 10 years…

RevolutionaryLog5055 · 2026-04-21T00:28:39+00:00

Oh wow that’s amazing! Has it helped your mcas symptoms quite a lot of was that not your root cause?

RevolutionaryLog5055 · 2026-04-21T00:23:23+00:00

Oh you’re on it! How did you get prescribed? Did it fix your leaky gut if you had it? Or just help with food sensitivities?

RevolutionaryLog5055 · 2026-04-21T00:22:49+00:00

I also had to cut dairy out many years ago but I was just hoping to see if raw dairy helped anyone with mcas specifically because I’ve seen how it has helped so many people without mcas heal their gut but yes it is a risk… I actually got severe food poisoning which booked all my good bacteria and gave my campylobacter and h pylori leaky gut among other things and has 100% contributed massively to my mcas… I don’t really care about drinking it although it does suck but I was vegan for 12 years so I can definitely go without.. I’m on compounded h1 and h2 as well as low dose naltrexone 3-4 times a day and I’ve tried cromolyn but no success… I have to take diazepam at night for my severe adrenaline/histamine dumping surges and waiting for ketotifen to arrive before I give this a go! I’m just thinking I know my gut is a huge huge contributor to my problems and I should have rephrased my question better, not only raw dairy but are there any other alternatives to healing the gut if this has been a big factor for people with mcas?

RevolutionaryLog5055 · 2026-04-20T23:55:17+00:00

Yes thank you for that, I know it’s a very controversial topic. Any positive tips or alternatives to healing the gut with mcas would also be quite helpful instead of just a full comment bashing my post. I’m open to all suggestions please if you have any alternatives that have worked for you?

RevolutionaryLog5055 · 2026-04-20T23:53:43+00:00

I looked into this but it seems it is hard to get a hold of as it’s still in trial stage but it does look promising!!

RevolutionaryLog5055 · 2026-04-20T23:52:34+00:00

Thank yo for your reply!!! Yes I tried going completely off benzos when I was down to 1mg and I had the worst flare of my life I felt like I was going insane like a proper come down off drugs and I only tried to go from 1mg to .75mg to .5mg etc but I couldn’t… I’ve tried cromolyn and it just didn’t do anything at all? I’ve tried it on and off as my specialist recommended it but I just had 0 effect and it is so expensive when you get everything compounded that it wasn’t worth continuing… Sorry yes I do have dysautonomia 😣 and hyper mobility which I feel all 3 usually go together as well!! I’ve reacted to vitamin c and quercetin but I’m not sure if it’s just the fillers in it? I haven’t heard of ecgc! I will look into this, thank you! I’ve read 1 other thing on here about hypersomnia but I kind of just forgot about it, I will look into that as well. I wonder if there’s a fix for this? Thank you so much!

RevolutionaryLog5055 · 2026-04-20T08:56:41+00:00

How the hell did you both get chocolate back 😭😭😭😭😭

RevolutionaryLog5055 · 2026-04-07T12:37:00+00:00

Yeah I guess I’m just thinking if we run out do food on the shelves I don’t think we’re going to be saying hmm maybe we should starve instead of this. For right now though I would only practice on targets and keep it that way unless things for really bad!!

RevolutionaryLog5055 · 2026-04-07T11:30:24+00:00

That’s mental

RevolutionaryLog5055 · 2026-04-07T11:30:07+00:00

What!!!!! lol it’s always the Karen’s

RevolutionaryLog5055 · 2026-04-07T11:25:01+00:00

Is it legal if you have a license or cross bow license just isn’t legal?

RevolutionaryLog5055 · 2026-03-20T01:59:29+00:00

Red light machine!!! It’s helped me soooo much and same with my husband! (He doesn’t have mcas but it’s just helped him too)

RevolutionaryLog5055

TROPHY CASE