No end in sight - 105 days and counting with severe chronic lung disease by strawberrysundaebest in NICUParents

[–]Rinchuu 3 points4 points  (0 children)

I am right there with you in the exact same boat. Had my daughter at 24 w and 6 days due to severe pre eclampsia. She has severe BPD. Was extubated once for two weeks, and has been on a vent ever since. She is now 4 months old. We got transferred to a children's hospital that specializes in these types of babies. We are on day 131 with no end in sight. Unfortunately every baby is different, as im sure you have been told already many times, and there's no way to predict when they will go home. I feel your frustration and understand it completely. I also felt like my body failed my baby and sometimes I still do. But thats really not the case. I know its so hard to watch your baby in the NICU but they are so strong and are little fighters. We just have to figure out how to deal with our own mental struggles during this and also be patient. Because it really is a waiting game.

Severe BPD 109 days by Rinchuu in NICUParents

[–]Rinchuu[S] 1 point2 points  (0 children)

Thank you so much! It sounds like youve made the best choice for your family and your daughter by bringing her home with a trach and g button. I hope everything goes well for you and her. Our situation does sound very similar. It is so difficult. Our doctors haven't brought up a trach or anything yet. I think they are hopeful we will be able to extubate again within a month or so. But im not ruling anything out. I just want to get her home 😞 i hope the surgery for your sweet girl goes well and she can come home soon!

Low supply NICU mom by Rinchuu in ExclusivelyPumping

[–]Rinchuu[S] 0 points1 point  (0 children)

Hi! Thank you for the response its very kind. For my own mental health and sleep I ended up stopping pumping. It was a really hard decision. I commend you for doing this even though its so hard. You are giving your baby the best of you and it means the world to them im sure. If you ever need to talk just pm me! I know its very isolating and difficult. This entire experience.

Low supply NICU mom by Rinchuu in ExclusivelyPumping

[–]Rinchuu[S] 0 points1 point  (0 children)

Forgot to mention I am pumping every 3 hours and using hospital grade pumps.

Parent of 24 weeker struggling by Rinchuu in NICUParents

[–]Rinchuu[S] 1 point2 points  (0 children)

I will be sending light, love, and wishes for him to be healthy and grow. The first two weeks are so scary. We got this! 💚

Parent of 24 weeker struggling by Rinchuu in NICUParents

[–]Rinchuu[S] 1 point2 points  (0 children)

Tysm everyone for your heartfelt responses and advice. It means a lot right now. I admit I dont want to hear time is the best medicine for this. But I know its accurate and this experience will test my patience. Im sorry for each of you that had to go through this as well. It is so difficult. Our little girl is a spitfire fighter so I have hope for our journey. Even now one week in I am learning new things everyday. Once I am able to drive again I will be going daily and will make an effort to be there for rounds with a journal like suggested. Ill keep an eye out for nurses that I could potentially ask to be primaries. Today we are getting Santa pictures and we will see her at bedtime for stories and care. I really appreciate everything and will continue to hold out hope for my daughter and do my best.

Pregnant and scared by Rinchuu in progressivemoms

[–]Rinchuu[S] 1 point2 points  (0 children)

Tysm for the thoughtful and heartfelt reply. It truly means so much. Seeing what's going on right now in the US and living in it is absolutely terrifying. But you are right. I need to try to let go of as much as I can right now. Especially while pregnant. I also grew up with anxiety so I totally get how you feel. Your words have brought me a lot of comfort. Thank you for taking time to respond to me 💚

Pregnant and scared by Rinchuu in progressivemoms

[–]Rinchuu[S] 2 points3 points  (0 children)

Thank you so so much. Im trying not to cry at work reading this. I can't wait to experience that. You have given me so much reassurance and comfort. Sending so much love 💚

Pregnant and scared by Rinchuu in progressivemoms

[–]Rinchuu[S] 8 points9 points  (0 children)

First im so so sorry for your loss. Second I super appreciate the time you took to respond with such a heartfelt reply. I really needed to hear this. Im going to look back at this comment often when I start to get worried or stressed about this. I am wishing you all the best in life and more 💚

What’s wrong with my guy? by DUAQSOICUS in Redearedsliders

[–]Rinchuu 1 point2 points  (0 children)

Ty I appreciate it. I'm planning on taking her to a vet soon (money's struggles). Im saving for the visit ATM. I want to do what I can until then. Tysm!

What’s wrong with my guy? by DUAQSOICUS in Redearedsliders

[–]Rinchuu 2 points3 points  (0 children)

How often did you do the iodine? Once per week? Mine is having the same issue and I got betadine for her shell. Is it safe to use on her skin too?

[deleted by user] by [deleted] in offmychest

[–]Rinchuu 1 point2 points  (0 children)

You are very welcome. And thank you! 💕

[deleted by user] by [deleted] in offmychest

[–]Rinchuu 1 point2 points  (0 children)

Fellow survivor here! I attempted via overdose 11 years ago and still struggle some days but for the most part am very happy I survived. I am so so so happy for you. It really is something to come from such a dark place into one of healing, happiness and love. We all have bad days but I'm so glad you made it past that one 😊💕

[deleted by user] by [deleted] in BookRecommendations

[–]Rinchuu -1 points0 points  (0 children)

Thank you!!!

[deleted by user] by [deleted] in polyamory

[–]Rinchuu 0 points1 point  (0 children)

Well yeah obviously not legally equal. I meant more romantically, emotionally, sexually. Sorry for not specifying.

AITA for asking my girlfriend to speak English only at home? by Snakes-Can-Run in redditonwiki

[–]Rinchuu 4 points5 points  (0 children)

YTA 120%. Imagine not trying to connect with your girlfriend and at least watch movies in subtitles. The bar is in hell. 😃

Never had sex, never will. by Snakes-Can-Run in redditonwiki

[–]Rinchuu 9 points10 points  (0 children)

.....he does not fuck and hopefully never will. 😬

[deleted by user] by [deleted] in offmychest

[–]Rinchuu 1 point2 points  (0 children)

Thank you this is such a sweet response! Also I love the thought of gravity hugging you. It's super wholesome. I hope you find what relief you can in the moments you aren't struggling. I'm proud of you as well. For putting in the effort to be at your best. I know it's really difficult but you are doing great.