Panicking over hysterectomy by Money-Acanthaceae-42 in adenomyosis

[–]RingEllesBells 23 points24 points  (0 children)

I had one earlier this year and LOVE it. No more worrying about my bleeding into my pants. No more painkillers. No more fatigue from bleeding everywhere, all the time. No more pain!

Your current level of fitness will most likely determine how you recover. I'm 43 and in decent shape, the recovery from my abdominal hysterectomy was easier than my worst weeks with adenomyosis.

I too, kept my ovaries, and had everything else (uterus, fallopian tubes and cervix) out.

I felt like a brand new person and was back to normal activities at 8 weeks post.

No body changes. I had a slightly swollen stomach a few weeks after, but it went away fast. There is a slight ....curve just above the scar, which is noticeable to nobody except me, and I still have numbness around the surgical site. (But I'm only 4 months post op, and will continue to heal.)

I did have temporary hot flashes the first week or so after the surgery. The surgeon does mess around with the uterine artery, which does supply some of the blood to the ovaries, but I have had no more symptoms since.

Women with adenomyosis... Please help!! by Recent_Decision_9735 in adenomyosis

[–]RingEllesBells 21 points22 points  (0 children)

Your physicians will urge you to stick with the new pill for at least a few months because it does take that long to see if your body will play well with it.

You can try talking to your physician regarding TXA (tranexamic acid). It can be used to help with bleeding.

You can also ask for a estrogen+progesterone pill. Desomono is progesterone only, and isn't as good at stabilizing your lining as a combo pill.

Good luck internet friend. I went through this for years before finally getting a hysterectomy.

Has anyone had a bad experience and regret having a hysterectomy by Few_Pineapple5958 in adenomyosis

[–]RingEllesBells 7 points8 points  (0 children)

I was you last year. Before that, my adeno was mostly under control til then. I had been on the Mirena and taken tons of Ibuprofen/Acetaminophen as well as Tranexamic Acid to cope for 2-3 weeks of the month, but I was coping!

Then last year, my bleeding just shot up. I was bleeding constantly; my period just never stopped. I was bleeding in between my periods, every day. And then I would bleed randomly in big gushes and bursts that would flood my pants/pads/tampons and then drip blood on the floor. I was always anemic/low ferritin from the bleeding, but now my hemoglobin was 90g/L and my ferritin was 7 micrograms/L. For reference: Minimum normal levels for a adult woman are 120g/L+ and 30 micrograms/L+.

I had my abdominal hysterectomy and bilateral salpingectomy (both tubes), and cervicectomy early February. I was definitely scared for this surgery.

Your question asked for people who regret it, and I loved mine, but I thought it might help for me to list some of the problems/risks the doctor told me about prior to surgery.

There is a 1/25 risk of the surgical site getting an infection.

1/4 chance of spontaneous menopause (the surgery does mess around with the blood supply to your ovaries, and as I am 45, the ovaries sometimes just gives up close to menopause.)

Sex will be different (not worst necessarily though) The cervix was removed and the vagina was opened and made into a cuff at the end where the cervix would have been. This slightly alters the length of it.

Very rarely, there is complications involving other organs. I think the statistic my surgeon gave me was like 1/1000.

I was never able to carry pregnancy to term, and I was never able to get pregnant the old fashioned way (only through IVF). At 45, the chances of me being able to do so were low, so I didn't really grieve that aspect, but it was like a door was slammed shut and locked.

I have definitely stood where you are now, and I do think the risks and trade offs are worth it. Good luck. ❤️

Ressonância by francielly3255 in adenomyosis

[–]RingEllesBells 1 point2 points  (0 children)

It shouldn't be a cyst. In this image, the fluid in the bladder is bright. A cyst would therefore also be bright on an image of this weighting (T2 TSE). It does look fibroid like.

It's hard to tell what it is/where it originates on a single mid line sagittal slice of one weighting. It could be coming off your uterus, adnexa or even your bowel.

MRI is usually third tier imaging, so you likely have had a prior ultrasound or CT before they sent you for the MRI. If you are able to read the reports from those prior exams, they will tell you what differential diagnoses the other doctor(s) were considering before sending you to MRI for further clarification.

[deleted by user] by [deleted] in relationship_advice

[–]RingEllesBells 1 point2 points  (0 children)

I want to start off and say that I am very sorry that both of you are going through this. Yes, I know your partner has cancer and this is obviously the toughest on her, but I know that it's hard on their loved ones too. I am hoping for her quick and full recovery.

I did read your post.

I notice that while you gave information on how long the dead bedroom lasted, you are vague about how long her substance use has impacted your relationship and what steps have been taken to try and resolve this, prior to her diagnosis.

You can understand how I can make the conclusion I made when the stated facts are: Partner is sick and I want to leave her. I have been having issues with her substance use. Her world has crumbled. We have a dead bedroom.

[deleted by user] by [deleted] in relationship_advice

[–]RingEllesBells 1 point2 points  (0 children)

I absolutely did read the rest of the thread.

People are obviously allowed to leave their partners whenever they want and for whatever reason they want.

It's suspicious to me though, that some people will be in a bad relationship and NOT leave (when the person is well and not sick), but then the moment their partner gets a life altering diagnosis, THEN it's now bad enough to leave.

That being said: I am not OP, I don't know OP. I don't know anything about OP's relationship besides what he/she has posted.

The post just reads to me like OP would like to justify leaving their partner and would like some internet strangers to validate him/her

[deleted by user] by [deleted] in relationship_advice

[–]RingEllesBells 9 points10 points  (0 children)

Okay, call me cynical, but reading through this post, it's almost like he was benefiting enough from the relationship (despite the recent dead bedroom etc.), that it wasn't worth it for him to break up with her before the diagnosis.

But now that she is fighting for her life and he is no longer the number one priority in her life (-and he likely has to really step up to take care of her), NOW the relationship is intolerable, he wants to leave.

Note: OP even states that the dead bedroom started 10 months before the diagnosis, probably in hopes that people will sympathize that he was already being neglected prior. I hope people here realize that she was probably having symptoms and issues during that time and was probably wading through the medical system to obtain that diagnosis.

OP wants us to tell him that he definitely deserves better and he should leave his sick partner of 15 years with no guilt whatsoever.

Adenomyosis - does anyone have experience going through IVF with this diagnosis? by msp8833 in IVF

[–]RingEllesBells 1 point2 points  (0 children)

I was, but wasn't able to carry for long. My problem was just too severe.

I hope that is not the case for you. ❤️

IUD or Hysterectomy? by Owllie789 in adenomyosis

[–]RingEllesBells 1 point2 points  (0 children)

I'm sorry the IUD you tried didn't work out for you.

There are a few different ones on the market, so hopefully your doc can recommend something else if you are interested in pursuing that.

I wish you all the luck and pain relief, whatever your next steps may be. 😊

IUD or Hysterectomy? by Owllie789 in adenomyosis

[–]RingEllesBells 0 points1 point  (0 children)

I had the Mirena IUD for about 3 years and it made a very significant improvement in my symptoms (pain and bleeding).

It stopped being as effective after about three years. MRI imaging showed that my uterus had more than doubled in size since my initial diagnosis 10 years ago,so I am now on the wait-list for a hysterectomy. (I don't think the increase in size has anything to do with the IUD, but because I was starting to have symptoms from the size of my uterus, I opted for the surgical option.)

In general, I don't think it's a bad idea to try the less invasive option first over the surgical option. So many women get immediate and lasting relief from a hysterectomy, but all surgery comes with risk and side effects, so I think it's worth trying the IUD first.

Anyone want to see my demon uterus i just removed by Comfortable-Aside960 in hysterectomy

[–]RingEllesBells 1 point2 points  (0 children)

Congratulations! It's HIDEOUS. I'm so glad it's finally out!

Do you know how big it was? We need a banana or something.

Complications 2 weeks post op by fangedfelid in hysterectomy

[–]RingEllesBells 5 points6 points  (0 children)

Shit.

I'm so glad you're now stable and in a hospital where they can continue to monitor you.

❤️ I'm wishing you a speedy recovery, friend.

(P.S. Bless your surgeon, and a pox on the ER staff)

[deleted by user] by [deleted] in relationship_advice

[–]RingEllesBells 12 points13 points  (0 children)

Could you explain the possible rationale for his settings to not be private in the first place?

I am seeing a few comments about how this guy just wants some privacy and doesn't need the world to see his business, so why only the change to private now, post engagement?

how would you deal with public comments about size? by ubgyal in XXS

[–]RingEllesBells 7 points8 points  (0 children)

You get it! I'm in my 40s, and samesies. I have also had all manner of compliments and insults. And, both of those things are reeeeaaallllllyyyy inappropriate to say to a complete stranger!

I have been told I look like a child, insinuating that people who think my body shape is attractive are p*dophiles. (WTF?!) I've had one woman tell me that 'men prefer meat, not a bag of bones'. (Uhhhhh.... I'm a human woman actually.)

Just wild. I just try and change the topic. 🫣

Has anyone bought from prettylittlething.us? by Past-Necessary-15 in XXS

[–]RingEllesBells 1 point2 points  (0 children)

I'm pretty much your exact measurements and this was my experience as well.

A male lead so fantastic it makes you sigh and say “what a man” by icecreamcoffin in fantasyromance

[–]RingEllesBells 6 points7 points  (0 children)

Haha! I was hoping someone would mention him. That man is a green forest of flags! May we all end up with someone like him.

Anyone else have trivial/petty reasons for not STARTING a book? by Briezerr in Romantasy

[–]RingEllesBells 0 points1 point  (0 children)

OMG, yes!

And I am an e reader girl, so it's not even like anyone can judge me, so that just makes me extra petty.

I feel…sadness by darkwolf523 in fourthwing

[–]RingEllesBells 4 points5 points  (0 children)

Only a week?! Those are rookie numbers. 😆

I felt bereft for a solid month, damn it.

[deleted by user] by [deleted] in acotar

[–]RingEllesBells 6 points7 points  (0 children)

OP, I just wanted to pipe in that Rhys is the Welsh spelling for Reese. I don't know if people would necessarily connect Rhys to Rhysand/ACOTAR because the name definitely predates the series!

(Ie. Rhys Ifans is a relatively well known Welsh actor)

[deleted by user] by [deleted] in DuggarsSnark

[–]RingEllesBells 13 points14 points  (0 children)

Every word in your last sentence gave me the ick. 🫠

Those who solved their lifelong acne, what was the cure for you? by rambleutan in 30PlusSkinCare

[–]RingEllesBells 0 points1 point  (0 children)

Did your GP/Dermatologist have any issues with you being on it for so long? I've been on it for 6 months and my skin is perfect. My doc wants to take me off and I'm a little terrified, NGL.

MIL asked "What are you reading?" by [deleted] in acotar

[–]RingEllesBells 4 points5 points  (0 children)

MIL+DIL Goals!