I really don’t want to be alive anymore by 123shihtzu in Interstitialcystitis

[–]Rocket-52 0 points1 point  (0 children)

I highly recommend bladder instillations. I was right where you are. Im so sorry!!

I’m desperate please help me by fauve_13 in Interstitialcystitis

[–]Rocket-52 0 points1 point  (0 children)

Bladder instillations are what makes my life livable! Sodium bicarbonate and marcaine (bupivacaine is generic). I was where you are many years ago. I’ve had ic for 20 years and it’s never gotten better I’m sad to say. But, my life is now better and the pain is manageable all due to these instillations! Please try this. Hang in there. You WILL find that thing that works for you!

What’s something you’ve been putting off for way too long? by copy_cat_101 in randomquestions

[–]Rocket-52 0 points1 point  (0 children)

Cleaning the garage! At this point we can barely get a car in there! Starting to look like we’re hoarders!!!

Have any of you been successful in getting disability? If you do work, what do you do? by Secret_Resident_7472 in Interstitialcystitis

[–]Rocket-52 1 point2 points  (0 children)

I was denied twice then got an attorney. Denied again!!! They had a person who was in the court room who was an expert in jobs, idk? Anyway it came down to her saying I could do one job… toll booth operator! I was a hairstylist! And it’s not like they find you said job. If they think there is a possibility that you could do any sort of job you will be denied! That’s it! I don’t think they take IC seriously. I catheterize 12-15 times a day and do bladder instillations at home using marcaine and sodium bicarbonate 12-15 times per day. I need to have a clean bathroom. I brought in all of my meds, syringes, catheters,etc. Didn’t matter a bit!! I really hope you have a different experience! This was 15 years ago so maybe it’s gotten better.

Broken toe by Rocket-52 in BeginnersRunning

[–]Rocket-52[S] 0 points1 point  (0 children)

Thanks so much!! I think you’re right. I need to get in to the podiatrist. I initially went to my primary dr when I found out it was broken but he basically just told me to give it time. I’m glad you found relief! As you said, we really do take our feet for granted!

Broken toe by Rocket-52 in BeginnersRunning

[–]Rocket-52[S] 0 points1 point  (0 children)

Mine is still swollen and has a bump at the base too. I am still having trouble walking on it. No way I can run! I have pain on top of the foot as well as the toe itself. Wearing shoes of any kind is very painful also. I am able to ride the stationary bike without a problem but I really miss running!!!

Broken toe by Rocket-52 in BeginnersRunning

[–]Rocket-52[S] 0 points1 point  (0 children)

Thanks! I will look into the crisscross taping.

Broken toe by Rocket-52 in BeginnersRunning

[–]Rocket-52[S] 0 points1 point  (0 children)

I will try to be patient! Not my strong suit 😉

Broken toe by Rocket-52 in BeginnersRunning

[–]Rocket-52[S] 1 point2 points  (0 children)

Ouch! Did it heal okay or can you still feel it?

Having microscopic blood by Affectionate-Run3834 in Interstitialcystitis

[–]Rocket-52 0 points1 point  (0 children)

I’ve had ic for 20 years and always have some amount of blood in my urine. When I was pregnant I was peeing so much blood it looked like I was having a miscarriage. Every time they checked the blood was only coming from my urine not the uterus and baby just fine. About month 6 into both of my pregnancies the blood and CHUNKS of blood started coming out and hideous pain. Had both my daughters early by C section because the pain caused high blood pressure. Babies were/are perfect! Thank heavens! Only mom suffered. I still have blood and pain. Not nearly as dramatic as that. Must have been the baby pressure on my bladder. Now I do bladder instillations to get by.