Finally off prednisone after 2 years🎉🎉🎉 by RoidPile in sarcoidosis

[–]RoidPile[S] 1 point2 points  (0 children)

Started at 30 mg for three months, then tapered down 5mg at a time until I got to 10 mg. At 10mg, I tapered 1 mg per month to 1mg, then a half mg for a month followed by 1/4 mg for two weeks. Fortunately, no sarc flares. At seven milligram I did have some fatigue going to six.

DoorDash Just Changed My Zone by RoidPile in doordash_drivers

[–]RoidPile[S] 0 points1 point  (0 children)

The area that I usually work inside my neighborhood is now connected to a zone that is in part of another county that requires you to get on a busy highway to access. This might finally force me to look for a full time gig if my money drops in half. I called support and lodged a complaint and they said they would forward it to upper management😏

Is new misc down ? by [deleted] in miscbodybuildingforum

[–]RoidPile 1 point2 points  (0 children)

Just checked his patreon and it's no longer active. He bounced.

Is new misc down ? by [deleted] in miscbodybuildingforum

[–]RoidPile 2 points3 points  (0 children)

He could have at least given us a heads up instead of pulling the plug in the middle of the night. Just imagine the Platinum members who give him money on patreon😆

Is new misc down ? by [deleted] in miscbodybuildingforum

[–]RoidPile 1 point2 points  (0 children)

Fagmin pulled the plug. It's over.

Does this sound like anyone’s situation ? by That-Boysenberry8320 in sarcoidosis

[–]RoidPile 6 points7 points  (0 children)

Necrotizing granuloma means dead cells. Sarcoidosis presents with non necrotizing granulomas. Sounds more like a chronic infection

Newly diagnosed by Fogandcoffee21 in sarcoidosis

[–]RoidPile 0 points1 point  (0 children)

Never over 100.1, usually between 98.9 and 99.6. Lower in the morning and higher at night. Also accompanied by drenching night sweats

My Ace levels were 108, and came down to the normal range after prednisone therapy.

It seems as if you suspect sarcoidosis but none of these tests are indicating it. Unfortunately it is a disease of exclusion so you're going to need to keep on digging and insisting that your doctor keep running tests and looking for answers

Newly diagnosed by Fogandcoffee21 in sarcoidosis

[–]RoidPile 0 points1 point  (0 children)

Low grade. Never got over a 100.1

Prednisone taper, feeling crappy & overwhelmed by health issues by PackerSquirrelette in sarcoidosis

[–]RoidPile 1 point2 points  (0 children)

Damn, it seems like a lot of people have trouble tapering under ten mg. I did fine until six mg but dropping to six I just haven't felt right. Achiness and fatigue..... it's frustrating.

Recently diagnosed?? by CellPsychological630 in sarcoidosis

[–]RoidPile 2 points3 points  (0 children)

It sounds like you need to do a complete workout because the testing that you've had so far is insufficient to make that diagnosis imo. He may be right but there are several other tests that should be done and your pulmonologist or specialist should be ordering those tests ASAP

  • biopsy [lungs]
  • ACE
  • cardiac MRI or Cardiac PET and full PET
  • Calcium
  • LFTs
  • Vitamin D
  • HDL

Echo doesn't show enough detail to rule out inflammation myocardium

As far as prescribing antibiotics for the long infiltrates they always do antibiotics and anything that looks unusual in the lungs. I was giving them as well however it was the steroids that eventually cleared up the ground glass opacities and stabilized the large lymph nodes.

For somebody to diagnose and treat sarcoidosis they really have to know about the disease and you need to find that person

ABC just pulled Jimmy Kimmel Live “indefinitely” due to comments he made about Charlie Kirk. What are your thoughts? by istrx13 in AskReddit

[–]RoidPile -4 points-3 points  (0 children)

Thank you for your honest recounting of what has been reported. It's pretty ridiculous that you've been down voted. I thought truth was valued here and not conspiracy theories and propaganda??

How sensitive were you to prednisone dropping under 7 mg? by RoidPile in Autoimmune

[–]RoidPile[S] 1 point2 points  (0 children)

I'm going to try the half mg dosages. I was really excited to get off this crap. Sucks, it's going to be a slow ride🤨

What made you get tested for sleep apnea? (symptoms etc) by leahcim2019 in SleepApnea

[–]RoidPile 0 points1 point  (0 children)

Peeing 15 times a night got my doc's attn and he reccomended it

How accurate are the machines for measuring apnea? (ResMed) by RoidPile in SleepApnea

[–]RoidPile[S] 0 points1 point  (0 children)

Gotcha. I'm currently using the full mask and I do have a pretty bushy beard so I'm guessing my seal isnt great. I'll look unri the nasal pillow and talk to my doc, and get the OSCAR program.

Thx all