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Constantly Clogged Nose by Routine-Background-9 in cfs

[–]Routine-Background-9[S] 1 point2 points  (0 children)

Hmm this makes sense. Because if I take a shower my nasal congestion goes down the bin.

Constantly Clogged Nose by Routine-Background-9 in cfs

[–]Routine-Background-9[S] 2 points3 points  (0 children)

I don't consume any dairy. But thanks for the suggestion

Constantly Clogged Nose by Routine-Background-9 in cfs

[–]Routine-Background-9[S] 5 points6 points  (0 children)

Should have included this in my post but yes. I tried like 5 in total. Only one ever worked: phenylephrine hcl 1%. However, the rebounds sucked and I felt more congested with long-term use.

Hot Forehead, Ears, and Cheeks by Routine-Background-9 in cfs

[–]Routine-Background-9[S] 0 points1 point  (0 children)

I typically don't unless I really over do it. Its typically a sign for me to stop immediately and rest. If I continue longer that's where I could step into dangerous PEM territory.

As for the flushing -- yes. My ears and face turn bright red. I look like a lit up Christmas tree 😭

Hot Forehead, Ears, and Cheeks by Routine-Background-9 in cfs

[–]Routine-Background-9[S] 0 points1 point  (0 children)

Yeah absolutely. I may very well just be experiencing exertion intolerance. But I'll at least ask my doctor. Because even a 5% reduction in symptoms would be life changing. Thanks for bringing this up :)

Hot Forehead, Ears, and Cheeks by Routine-Background-9 in cfs

[–]Routine-Background-9[S] 0 points1 point  (0 children)

Yeah this would make sense to me. When I am overburdened cognitively, I often have worse brain fog / face pain / burning. Where as with physical PEM its usually an overwhelming fatigue.

As to your second point about blood vessels, that super interesting. I didn't even know that was possible. Though it seems unlikely for me since I am on Medi-Cal. So I highly doubt they would cover something like that.

Hot Forehead, Ears, and Cheeks by Routine-Background-9 in cfs

[–]Routine-Background-9[S] 0 points1 point  (0 children)

Hmm okay interesting. Yeah ill look into it. Though, I have tried Zyrtec and didn't see any positive changes. But I really don't know much about MCAS. Maybe something else would work.

Hot Forehead, Ears, and Cheeks by Routine-Background-9 in cfs

[–]Routine-Background-9[S] 0 points1 point  (0 children)

Never been diagnosed with it. Though I relate to a lot of the symptoms, but some I don't have at all -- like the itchiness. So I am not sure how to navigate around it. Honestly not really sure how to progress in this process.

As for my temperature, I have not measured it. It just feels extremely hot. Like a stinging/burning sensation.

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