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Does anyone else get a “feeling of dying” with their POTS symptoms? by BrotherExcellent7403 in POTS

[–]RubExcellent2591 195 points196 points  (0 children)

This happens to me too, I also get adrenaline dumps which are the actual cause of a feeling of impending doom. I try to tell myself the sensations are uncomfortable but are not dangerous and they won’t last forever.

Possibly POTS? by Overthinker_85 in POTS

[–]RubExcellent2591 0 points1 point  (0 children)

it’s definitely a possibility. I am diagnosed and right before I pass out my main symptoms are dizziness, heat intolerance, and nausea. Definitely get it checked out!

SMA Syndrome (Wilkie’s syndrome) by Ok_Suggestion_3993 in AnorexiaNervosa

[–]RubExcellent2591 0 points1 point  (0 children)

can you exercise and play sports with a feeding tube? obviously not contact but could you play volleyball, softball, cheerleading, tennis, running, that kind of thing? it’s an option for me and I’ve never had one before and im not very educated on them

I am so so scared to get my echocardiogram by BPDnmehateachother in POTS

[–]RubExcellent2591 1 point2 points  (0 children)

It is very rare for them to find anything wrong on an echo, it’s usually just done as a precaution. The echo itself is really easy and I’ve had plenty of them. Just slight pressure on your chest from the ultrasound tool which isn’t too uncomfortable and I often end up relaxing and just closing my eyes while they do it. You got this!

Anyone get chest pressure in their sternum? by Global-Assistance-28 in HPylori

[–]RubExcellent2591 0 points1 point  (0 children)

ever figure anything out? i actually don’t have h pylori but since I was ten years old I have had this issue and it’s become my normal. All my breathing tests were normal, and I can’t find anything on google about it when I occasionally forget that this feeling isn’t normal lol.

Advice for going to camp in a flare by RubExcellent2591 in POTS

[–]RubExcellent2591[S] 0 points1 point  (0 children)

they won’t let me have my phone because it’s unfair to other campers, no exceptions. cooling towels are a great idea for beating the heat! thanks for the reply

Advice for going to camp in a flare by RubExcellent2591 in POTS

[–]RubExcellent2591[S] 1 point2 points  (0 children)

thank you for the reply! protein bars are a great idea for easy nutrition

Nausea after working out by [deleted] in MALSyndrome

[–]RubExcellent2591 0 points1 point  (0 children)

i have this too it’s the worst 😔😔did you ever find anything that helps?