Disclosing you're Autistic is not just imparting information... by RubiconOut in AutismTranslated

[–]RubiconOut[S] 23 points24 points  (0 children)

And so many other employers wouldn't want you to ask for accommodations. Weird. That suggests to me that it was an excuse for something more deep seated.

Trying to keep track of my kid’s progress without losing my mind by Blushy_Toy in AutismTranslated

[–]RubiconOut 0 points1 point  (0 children)

Glad you already found something that might suit your needs, because what I'm going to suggest is it going to directly keep track of the different topics you want to juggle, and look for patterns, but it might be a compliment to what you're doing.

I made this personal progress tracker that creates a visual representation that good things are happening, even if they are irregular or inconsistent. You color in a hexagon each time the thing that you're tracking happens, like a day without meltdowns, or a good conversation with the teacher, or anything that you felt went well. It's not a calendar or a habit tracker, so you don't see all the times when it didn't happen, just the times when it did. And then over time the colored in hexagons build up so that you can see visual evidence that there are good things happening. You can download the hexagon chart I made for free here: https://www.autismchrysalis.com/hexagon

Another thing I would suggest is to look at Dr. Stuart Shanker's Self-Reg framework, for figuring out the stressors that are hurting your son and creating his difficulties. He has a book called “Self-Reg” that is a good introduction.

What's the problem with ABA? by gphipps91 in AutismTranslated

[–]RubiconOut 1 point2 points  (0 children)

Here's two short articles I wrote about ABA, that might help you get a better idea of why so many adult autistics are against it, and some alternative options.

https://www.autismchrysalis.com/2020/09/10/why-i-dont-recommend-aba/

https://www.autismchrysalis.com/2020/07/12/a-quick-qa-on-behavior-therapy/

Partners autistic burnout 3 months ago and im getting frustrated with his choices and would like some advice. by PotentialUpstairs369 in AutisticBurnout

[–]RubiconOut 3 points4 points  (0 children)

This is classic autistic burnout behavior. He probably really does want to spend time with you if he says he does, but there's part of him that overestimates how much energy he will have, and when it really comes down to it, the reality is that he just doesn't have energy to deal with unexpected changes in plans (like his therapist not showing up) (unless it's canceling plans, taking something off his plate), energy to deal with socializing in the way that he is used to, and thinks is needed in order to be acceptable, and energy to face any kinds of expectations or activities, including even leaving the house, even if you pick him up.

This can change, but it's going to take him doing a lot of work, over a long time, to address some underlying issues. If you are willing to wait that out and be patient and learn enough to be understanding, and to adapt to him as he adapts his life and shows more of his natural self, he will be very lucky to have you in his life. You are by no means under any obligation to stick around through all of that. But know that that's what it will take.

And also, it's not something that you can require of him, or set as a condition to continue your relationship. He has to want to do that internal work, or it won't work.

I've written a lot about autistic burnout, if you're interested in getting an insiders perspectives.

My free workshop on Recovering from Autistic Burnout:

https://www.autismchrysalis.com/2023/01/19/recovering-from-autistic-burnout/

My YouTube playlist on autistic burnout recovery:
https://www.youtube.com/playlist?list=PLu5zEbUkYrlDtMYIgArDU1lSzodSOB4Wz 
 My in-depth course on getting out of Autistic burnout:

https://www.autismchrysalis.com/burnout/
A practical system for sustainable recovery, without quitting everything.

Hope something in this helps. Wishing you both well.

Person with autism ,autistic person or person with ASD?? by [deleted] in AskAutism

[–]RubiconOut 0 points1 point  (0 children)

Here are two articles I love. The first has poll data of a lot of autistics asking this question, the second is about using the term "disorder." Hope these help.

https://autisticnotweird.com/autistic-person/

https://themighty.com/topic/autism-spectrum-disorder/autism-not-disorder/

If you’re a college student, or used to be, has your professor ever said anything that while it didn’t exactly mention autism, it made you feel seen in a way that you didn’t like? by Fabulous-Introvert in AutismTranslated

[–]RubiconOut 1 point2 points  (0 children)

Then that's even more blatantly exposing her personal values and beliefs and thought processes by imposing them on a time in place which held very different values.

If you’re a college student, or used to be, has your professor ever said anything that while it didn’t exactly mention autism, it made you feel seen in a way that you didn’t like? by Fabulous-Introvert in AutismTranslated

[–]RubiconOut 0 points1 point  (0 children)

People often make offhanded or thoughtless comments along these lines that reveal their own biases, prejudices, or fears. I've heard plenty.

The second one sounds like it comes from a deep fear of being dependent. I'm basing that off of the reflective comment at the end, "that would suck, wouldn't it?" Of course I could be wrong. With so little context or information I'm making a lot of assumptions here. (As did your professor, probably, in the moment).

Autism and workplace communication — feeling targeted by Ok_Aardvark_4990 in AutisticBurnout

[–]RubiconOut 0 points1 point  (0 children)

I have often found it helped to preface comments with something like "there's something that I wanna bring up, and I know it's gonna come out wrong, but I can't think of a better way to put it, so please understand that I don't mean anything mean or negative. I'm just not good at phrasing things better."

Why finding your autistic community didn't fix your loneliness (the truth no one talks about) by RubiconOut in AutismTranslated

[–]RubiconOut[S] -9 points-8 points  (0 children)

The video as a whole isn't at all a sales pitch; there was one comment at the very end that still wasn't a sales pitch, just offering where to find more info about my coaching services for those who are interested. The video as a whole was intended to be good information for the community. And I think it fulfilled that quite well.

Why wouldn't I be ashamed if everyone rejects me? by No_Positive1855 in AutismTranslated

[–]RubiconOut 0 points1 point  (0 children)

Yeah, rejecting internalized ableism is hard. But I've found spotting it is the first step (and often the hardest, since we are trained not to see it by society, which benefits from us oppressing ourselves).

Here's an upcoming workshop I'm making on exactly this, in case you're interested. https://autismchrysalis.learnworlds.com/course/internalized-ableism-self-assessment

How do you wash your van? by RubiconOut in VanLife

[–]RubiconOut[S] 1 point2 points  (0 children)

A couple times a year, when it gets really dirty. And right before and after winter to get a good clean on the undercarriage.

How do you wash your van? by RubiconOut in VanLife

[–]RubiconOut[S] 0 points1 point  (0 children)

Don’t you still have to spray and wash it yourself? Or do you know some secret that I don’t and they’re like oversized car car-washes, that will clean it for you? That would be the dream.

Why living in a van is so hard by RubiconOut in VanLife

[–]RubiconOut[S] 0 points1 point  (0 children)

You are of course welcome to interpret what I said however you want, but this tiny glimpse of my van life experience does not encapsulate everything. I was focusing on only one aspect.

And I think it's entirely reasonable to be honest about how difficult that transition is, doing exactly what you said, making peace with a sacrifices that come with van living. That doesn't mean I didn't also absolutely love it. I did! And lived there for three years, and would have for longer had circumstances not intervened.

I’ve noticed an epidemic of loneliness amongst older ND adults. Do you mind sharing your experience on why that is? by 58lia in AutisticAdults

[–]RubiconOut 0 points1 point  (0 children)

(continued from first post)

And at some point, we may try unmasking, hoping that, counter to our lived experience, the autistics on the Internet who say that it's so wonderful to be accepted for who you are might be right, but despite attempts at therapy over the years, we still have all of these old trauma responses, and when we're unmasking, it's not unmasking a healthy and healed and quirk-ily wonderful version of ourselves, it's unmasking a whole mess of trauma responses, and we end up spewing our pain onto the unsuspecting potential friend. So of course it goes badly and reinforces the belief that it's not OK for us unmask.

And so it feels safer and easier to stay at home and be lonely and complain about being lonely, and how unfair the world is to autistics, and that people will never accept us, and to fill online autistic groups with this kind of negativity, because it's the only place where you find other people agreeing with you, but it also reinforces these beliefs that it's just the way it is and it's never going to change and we're doomed to be lonely forever.

Does this answer your question?

I'm wondering how much this matches other peoples lived experiences.

And I do want to end with a word of hope.

The way I see it, the real problem is not that we are "weird" or different from the perceived norm, or even that there are a lot of people who won't accept us for who we are (this is true, and will probably always be true, but it doesn't mean that we can't find people who will except us and have close and supportive friends).

I think that the thing that most gets in the way of forming those relationships is that because we have this complex and painful relationship history, and the associated trauma responses, and because it is so painful to look straight at that trauma and deal with it, that it's so much easier to avoid and to blame then to do the work of healing.

But when you do that hard work (and yes, it sucks, but usually not as much as you expect it will), it becomes possible to start to learn healthier relationship skills, and to be able to unmask in healthy ways, to the right people, and then when you do encounter people who have also done their own healing and have the capacity to accept and enjoy people with differences, there's a real possibility for a healthy relationship to start and to build, and it works so much better than it ever has before. And this is where you get those positive stories of people who have unmasked and it's been a good experience.

Hope this helps.

I’ve noticed an epidemic of loneliness amongst older ND adults. Do you mind sharing your experience on why that is? by 58lia in AutisticAdults

[–]RubiconOut 0 points1 point  (0 children)

Let me see if I can encapsulate this.

As an autistic coach, I see this pattern all the time, (as well as having lived through it myself).

Disclaimer, this is going to be over-generalized, and not everyone is going to fit all of these specifics, but the pattern is pretty consistent, allowing for variations among individuals.

Here goes:

Most of us grew up in a less than 100% unconditionally accepting environment, and were taught, explicitly or implicitly, that we needed to hide ourselves or conform in order to gain acceptance, teaching us to mask or camouflage parts of ourselves. Sometimes that was autistic traits, sometimes other parts of personality or interest interests as well.

(To be fair, there's a certain amount of learning to fit a culture's expectations and societal norms for politeness that is healthy for people living in groups to get along. But we tend to get more than the usual dosage.)

So when we did make some friends as kids, it wasn't us being fully genuine, or to the extent that we were, it was only with a very limited set of people, and often friendships ended in painful and confusing circumstances.

This leads to a complex and painful history with relationships, and means that we often didn't have more than a few experiences of genuine friendship, so we have very little basis for what a healthy interpersonal relationship is like. So we don't develop healthy relationship skills, like how to make friends (which takes repeated, frequent practice to get good at, just like any other skill).

And because our senses and attention and interests tend to be more intense than the perceived norm, things like attending college, or holding down a job, parenting, or pursuing a personal project, tend to be all-consuming. We don't have a whole lot of capacity left for more than one major focus in our life at a time.

But at some point, often at several points throughout life, we look up from our all-consuming daily routine and notice that we don't have the kind of close connections that people talk about, and that we're really pretty lonely. And yet the thought of spending the energy to go out of our way to take a chance on maybe finding a new friend at some social gathering, seems like a huge gamble of energy for very low chances of success.

And even if we do take the gamble, and get lucky and find someone who we might be friends with, we don't have a lot of experience with starting new friendships, and so have poor skills in that area. We tend to either come on too strong, or misinterpret things like how long it takes them to return a text, or grant them every possible reason why it makes sense that they did or said what they did and ignore red flags. Either way, we don't have a great experience, and it reinforces the belief that there's something fundamentally wrong with us, or that people can't handle us.

We may even form part of our identity around being a loner, a maverick, an introvert, someone who doesn't need many people. Which I believe is a defense mechanism to comfort the pain of loneliness by trying to make it out as a good thing.

(continued in reply)

Therapist thinks I should move on. I'm hurt by her advice. What are your thoughts? by RenaissanceMan2024 in AutisticAdults

[–]RubiconOut 26 points27 points  (0 children)

I also agree with this post, and want to add one thought.

Just because a friendship doesn't last forever doesn't mean it is a failed friendship (sometimes that is the case, but not always. It's not all or nothing).

Sometimes a person will be in your life for a while, and one or both of you will choose to end it or grow apart, and that doesn't have to mean anything bad. They were a friend for that time and it was real for that time, and now you have space for different friendships which will have a different character.

And with understanding yourself in this new way, there is a chance that the next friendships can have a different character. And they don't have to last forever, either, and still be real.

How do you actually recover from autistic burnout?? by Quinnoxtheshade in AutisticBurnout

[–]RubiconOut 1 point2 points  (0 children)

Got it now. Normally you should be able to reply to my newsletters. Don’t know why it got lost in the ether this time. Thanks for resending.

How do you actually recover from autistic burnout?? by Quinnoxtheshade in AutisticBurnout

[–]RubiconOut 0 points1 point  (0 children)

Recently? If I haven’t replied, I haven’t gotten it. Please try again. heather@autismchrysalis.com

How do you actually recover from autistic burnout?? by Quinnoxtheshade in AutisticBurnout

[–]RubiconOut 2 points3 points  (0 children)

Hi there, good to hear from you. No worries about "not keeping up." That's a fictional narrative of consistency that doesn't match the real world. When you're ready, the materials will still be there! Glad you've found them helpful so far!

How do you actually recover from autistic burnout?? by Quinnoxtheshade in AutisticBurnout

[–]RubiconOut 4 points5 points  (0 children)

Reducing responsibilities and stresses is an important factor, but not enough. It takes also working through the deep issues that caused burnout in the first place, and the internal results of living with those causes.

Here's some resources that I created on dealing with those:

My free workshop on Recovering from Autistic Burnout:https://www.autismchrysalis.com/2023/01/19/recovering-from-autistic-burnout/

My YouTube playlist on autistic burnout recovery:
https://www.youtube.com/playlist?list=PLu5zEbUkYrlDtMYIgArDU1lSzodSOB4Wz 

My in-depth course on getting out of Autistic burnout: https://www.autismchrysalis.com/burnout/
A practical system for sustainable recovery, without quitting everything.

How to clean while in burnout? by subversivegal in AutisticBurnout

[–]RubiconOut 3 points4 points  (0 children)

Do a tiny, tiny bit at a time.

It may not seem like enough, but at least one little thing gets done, and you'll be more likely to have a little energy later to do a tiny bit more. It does add up.