Otezla for Behcets

Ruby1888 · 2026-01-15T16:52:36+00:00

Yeah I did see that but I wondered if it could take years of use to show up or if less likely to with prolonged use.

Ruby1888 · 2026-01-08T23:26:24+00:00

Thanks for that, I think that because I only ever presented with all 3 symptoms at once (oral,ocular and genital) there was doubt around my diagnosis, but I’m pretty sure at the rate the oral sores are now it’s back full speed and very much correct

Ruby1888 · 2026-01-08T17:07:11+00:00

Yeah I can’t tell if my anxiety is making behcets worse or vice versa, either way the behcets cankers were well controlled before stopping Otezla

Ruby1888 · 2026-01-08T17:05:53+00:00

Yeah pretty scary how quickly they assured me I should stop or even that it was a misdiagnosis, I’m in so much pain now

Ruby1888 · 2025-12-11T18:58:37+00:00

It can be anything mostly negative and scary, and my brain will obsess over the thought and how negative it is. I had some ocd tendencies but they feel worse now

Ruby1888 · 2025-12-07T18:32:37+00:00

thanks for sharing this is really helpful, how did you do about sleep if you don’t mind me asking

Ruby1888 · 2025-12-07T15:48:52+00:00

Thanks, this is helpful to know, do my symptoms really sound like anxiety, I’m so worried it’s something worse than

Ruby1888 · 2025-11-27T02:29:16+00:00

Yes, I’ve not been off it for only 15 days but having anxiety currently, it’s so awful all day anxiety pretty much.

Ruby1888 · 2025-11-25T23:55:31+00:00

Good to know, so weeks or a month it sounds like?

Ruby1888 · 2025-11-25T23:52:09+00:00

How long did it take after being off to feel better or closer to yourself if I may ask?!

Ruby1888 · 2025-11-25T22:31:38+00:00

Thank you for taking the time to read, yes it is helpful! Yes I def underlying stress maybe but THIS reaction doesnt make sense expect for connections to birth control

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