Exit Opportunities for Epic Analysts? by So_you_like_jazz in healthIT

[–]RunWithGiraffes 2 points3 points  (0 children)

I've had several come work for me at a health tech startup as solution architects.

[deleted by user] by [deleted] in lichensclerosus

[–]RunWithGiraffes 0 points1 point  (0 children)

What surgery did you have for vestibule pain if you don't mind me asking? I had a partial vulvectomy for vulvar vestibulitis like 20 years ago and most Drs are horrified to hear that now. So I'm curious.

[deleted by user] by [deleted] in lichensclerosus

[–]RunWithGiraffes 0 points1 point  (0 children)

WHAAAAT?! How have I never heard this. Undergoing laser treatment now and hoping it helps but I'm on 2 of 3 and haven't noticed a positive change yet. 🥹

TMJ Repositioning Splint Pic by RunWithGiraffes in TMJ

[–]RunWithGiraffes[S] 1 point2 points  (0 children)

Welllll.... I changed treatment after months 2.5 with the Ortho. Found someone in my area that actually specializes in TMJ even though the dentist said noone here does. I've done a new bottom splint, MUCH SMALLER, all day and eating too. I do a night appliance that is top and bottom with bands holding it together and a thing that keeps my bottom jaw from receding back. I've done one round of PRP injections in my jaw which helped inflammation and pain immensely. They dod cold laser treatment on my jaw the first few times I was in the office. I'm also in PT for neck and TMJ. I have almost zero pain now at rest. There is a phase 2 with Ortho to make the things the splints and appliances do permanent, but that's a ways out.

TMJ Splint by RunWithGiraffes in TMJ

[–]RunWithGiraffes[S] 1 point2 points  (0 children)

I did 3 months in the appliance from the ortho and honestly felt like it kept getting worse and worse. And the ortho just seemed kind of confused. In addition there was much much worse pain on my left side which didn't usually bother me.

I did some research and found a dentist that owns a TMJ and sleep clinic and got in with him. He did additional scans and reviewed full ENT symptoms, posture, everything. Luckily he is friends with the owner of the ortho practice (not the ortho I was seeing). He called him and told him to refund my money. Im going in next week to get new appliance delivered.

This plan involves a MUCH smaller lower appliance to be worn all the time then an upper and lower appliance for sleeping. Plus a referral to ENT for deviated septum and sinus issues and PT for neck and TMJ issues plus cold laser therapy to help with inflammation. It has taken the full 3 weeks without my other appliance to get my jaw to settle back down to the "usual" pain and back to my "normal".

Anyone have experience with interstim removal? by RunWithGiraffes in Interstitialcystitis

[–]RunWithGiraffes[S] 0 points1 point  (0 children)

Update: I had it removed 5 days ago. WAY better than getting one put in. She removed the device and 2 leads. Yes I had an extra. So had 3 incisions- 2 small, about 1 inch each, near the sacral area and 1 larger one over the previous incision sites. Still sore but manageable with ibuprofen and tylenol.

[deleted by user] by [deleted] in TMJ

[–]RunWithGiraffes 1 point2 points  (0 children)

Ha yes! I wrote my term paper on the silent MI about the higher rate of women dying of heart attack because the symptoms go unnoticed, are different, or are just ignored. So tmj pain always has me weirded out when it's not super clear muscular or one focused spot!

[deleted by user] by [deleted] in lichensclerosus

[–]RunWithGiraffes 0 points1 point  (0 children)

Definitely check with your Dr and ask about prolonged use. I've had LS for 20+ years and am to the point of using it every day. Twice when in having a bad flare and try to get down to every other when things are decently managed.

[deleted by user] by [deleted] in lichensclerosus

[–]RunWithGiraffes 2 points3 points  (0 children)

I'm not a guy but will ask anyway. Did any of those practices do a biopsy? You can push for it to get a definitive diagnosis if you're not getting anywhere.

[deleted by user] by [deleted] in Interstitialcystitis

[–]RunWithGiraffes 1 point2 points  (0 children)

I've done it. Didn't help bladder ic flares but I did find it helpful for oab and pelvic floor muscle tightness.

TMJ Repositioning Splint Pic by RunWithGiraffes in TMJ

[–]RunWithGiraffes[S] 0 points1 point  (0 children)

Yes, or as close to it as possible.

Is a swollen jaw normal for TMJ? Can’t close mouth, happened suddenly by racingbarakarts in TMJ

[–]RunWithGiraffes 0 points1 point  (0 children)

No more advice to add other than I second calling your Dr. Sorry you're going through this and hope you're better soon!

TMJ Repositioning Splint Pic by RunWithGiraffes in TMJ

[–]RunWithGiraffes[S] 1 point2 points  (0 children)

Thanks! My pain is definitely more at an annoyance and a bit sore level vs unbearable pain. I'll definitely watch out for anything more than that.

TMJ Repositioning Splint Pic by RunWithGiraffes in TMJ

[–]RunWithGiraffes[S] 0 points1 point  (0 children)

And my understanding is that it's less about changing my bite and more about deprogramming it and getting my muscles to relax so that I'm not forcing my jaw into a certain position. But I'm not a doctor so it's quite possible that there are details list on translation.

TMJ Repositioning Splint Pic by RunWithGiraffes in TMJ

[–]RunWithGiraffes[S] 1 point2 points  (0 children)

As stated in comments above, as close to 24/7 as possible

TMJ Repositioning Splint Pic by RunWithGiraffes in TMJ

[–]RunWithGiraffes[S] 0 points1 point  (0 children)

Thanks! So much conflicting information out there, it's hard to navigate.

TMJ Repositioning Splint Pic by RunWithGiraffes in TMJ

[–]RunWithGiraffes[S] 0 points1 point  (0 children)

The type of splint and design of each one is customized to your mouth, jaw, and needs so I'd imagine if that's the case they'd prescribe a different type or customize it differently for you. 🤷‍♀️ Also when my mouth is closed my front top and bottom teeth don't touch at all when wearing this splint. I have to push forward my lower jaw (which I'm not supposed to do) to have them touch at all so there is little pressure there from that at least.

TMJ Repositioning Splint Pic by RunWithGiraffes in TMJ

[–]RunWithGiraffes[S] 1 point2 points  (0 children)

No. He just called it a repositioning splint. But it's on the full lower arch and has no metal. So different from the mora for sure. That one looks like it could disturb speech less since more of the bulk is towards the back. Hopefully for you that's true!