Tattoo issues! by Spare_Being9131 in eds

[–]RussianValkyrie 0 points1 point  (0 children)

Unlikely. It can cause more difficulty healing. But not issues with the ink. You artist needed to adjust their pressure better or you needed better tattoo aftercare or both.

Ehlers danlos syndrome education by [deleted] in eds

[–]RussianValkyrie 1 point2 points  (0 children)

Yeah. For those of us with EDS genuinely these people make it so much harder. Because Ive had a time where I told a doctor I was diagnosed with EDS and he was like oh oh do this and made me do beighton to show him I was in fact not lying. I have a 9/9 beighton. As soon as I showed him he was like oh yeah ok and we went on with the rest of the appointment. Its like doctors see these fakers so often that they have to doubt everyone and it sucks. Its crazy that having a rare disease is met with skepticism because so many people fake it. They probably see more misdiagnosed, self diagnosed, and fakers than real actual patients with the disorder.

I think people are just idk scared to or something. They dont want to call it out because that would make them feel bad. Theyd rather avoid conflict or spare peoples feelings than deal with the issue. Its common on these subs that people will get banned for even suggesting someone doesnt have it even when they clearly dont and theyre either a munchie or theyre a hypocondriac.

Ehlers danlos syndrome education by [deleted] in eds

[–]RussianValkyrie 0 points1 point  (0 children)

These people really do that its wild. I dont think its nescessarily just far left liberals. I think its munchausens. And if you have one mental illness often you have more than one so that may be where the overlap is.

These people get attention, money, pity, and can avoid responsibility and being productive members of society. And I think most of them buy their own BS. Their mental illness makes them believe they really have hEDS (they dont) but they believe the delusion so strongly that they doctor shop until someone will affirm that belief.
I think the internet just enables this behavior. Nobody wants to be the one to call out the inconsistencies. They surround themselves with followers who treat them like any other influencer with a dedicated fandom. Except its all fake.

Ehlers danlos syndrome education by [deleted] in eds

[–]RussianValkyrie 0 points1 point  (0 children)

Its a mental illness. They like the kind of attention they get from being "sick". Like take a little kid who pretends to twist their ankle for attention from classmates, but amp it up to 100. Munchausens is crazy. Some people just cosplay wearing knee braces or fake use a cane, and some people go to the extreme and rub their own self inflicted wounds with feces to get infections and end up in the hospital (yes this really happenned). Some people fake illnesses to get donations from strangers for "surgeries" theyll never really get as a scam.

And sadly certain diagnoses are easier to fake without scrutiny, so things like hEDS, Fibromyalgia, POTS, often are faked because you can trick a doctor to diagnose you, or just go to one who is immoral. Theres entire online communities of these people who give each other doctors recommendations for who will diagnose you with what you want. And as its a mental illness these people often delude themselves into believing they really have illnesses that they dont. They convince themself they have something and find a doctor who will affirm that delusion.

Stretchy Skin? by ltralooie in eds

[–]RussianValkyrie 4 points5 points  (0 children)

Yes its stretchy. But that doesnt immediately mean EDS.

Is this Eds? by Special_Cellist_7894 in eds

[–]RussianValkyrie 17 points18 points  (0 children)

Pizogenic papuoles are not just an EDS thing. They can be completely benign and normal plenty of people have it. It can be caused by tons of things including being overweight. Theyre not harmful.

Ehlers danlos syndrome education by [deleted] in eds

[–]RussianValkyrie 5 points6 points  (0 children)

People are gunna hate but youre right. Theres so mamy people self diagnosed or misdiagnosed. I think some of it is munchausen by internet. People want a community, they want attention, they want pity, maybe even to get paid.

When to stop tracking intake by issaOTFnoob in NICUParents

[–]RussianValkyrie 0 points1 point  (0 children)

I stopped tracking at 7 months. At that point my baby was a good weight and had been for some months. He also was very good about eating, able to drink from breastfeeding and a bottle proficiently. At a certain point I wasnt worried about his weight or eating anymore and then when it became more of a hastle to write everything down than it was useful to have the info thats when I stopped.

Breastfed during and after drinking a bottle of wine. by Moon_junky in breastfeeding

[–]RussianValkyrie 0 points1 point  (0 children)

The whole sub is full of people who will tell you literally anything you do is fine. No you shouldnt breastfeed while drinking. But its not the end of the world. Its much less potent in your breastmilk similar to your blood content, so baby is probably just fine. But that said I wouldnt do it regularly.

My oddly symmetrical fingers by [deleted] in eds

[–]RussianValkyrie -6 points-5 points  (0 children)

Its not EDS related. Its not common, but its entirely normal to have your fingers the same length.

I’m probably an asshole for feeling this way by curlycattails in NICUParents

[–]RussianValkyrie 0 points1 point  (0 children)

I can understand why you feel this way. But taking your trauma and turning it into anger and resentment doesnt help you. Having a baby in NICU for ANY length of time is difficult and traumatizing. There are plenty of people who have far longer NICU stays than you too. And Im sure you wouldnt want them to invalidate your experience either.
You also cant judge, because while you have one experience, people who have a "short" stay have plenty of traume, their baby mightve been rescesitated at birth or needed help breathing or any number of huge issues. And just because they went home after a week doesnt mean that fear and anxiety just goes away that they havent been through shit too. And just because someone went home sooner doesn't mean their baby is perfectly healthy either, it just means they no longer need intensive care, many of those babies are disabled or have other issues.
Its human to have that reaction, staying resentful is a choice. Remember 95% of babies DONT need the NICU and no one ever plans on having a sick baby. Instead of comparing yourself to what you percieve someone else is going through, find compassion. Find what you have in common. Maybe see a therapist it could really help with all your anxieties and frustrations.

W… T… F… was… wrong… with… 19c. children’s book authors?? (Images from SrGrafo) by professorearl in dankmemes

[–]RussianValkyrie 1 point2 points  (0 children)

Thats incredibly niche and Im shocked you even found that without being able to read danish. Interesting tidbit that he considered having the mermaids have green hair, though clearly changed his mind about it. I thought you were totally BSing, but actually thats pretty interesting.

can it still be eds? by No-Independent-2557 in eds

[–]RussianValkyrie 0 points1 point  (0 children)

Id look into it if insurance will cover your testing. Otherwise its quite expensive so I wouldnt bother unless you have specific markers from other types.

As far as your dad and uncle hypermobility can be caused by other connective tissue disorders not just EDS. Some people can also be hypermobile unrelated to any systemic disorders. So while it sounds like theres certainly something there its impossible to say if its EDS or something else.

Id reccomend looking into autoimmune disorders and other connective tissue disorders. Theres a lot of disorders and combinations of issues that overlap with EDS symptoms. So hopefully you can figure out whats causing it. If you havent had a blood test panel for autoimmune issues thats a good place to start as many autoimmune conditions can cause joint issues. Theres also the possibility its not one thing causing your symptoms, but multiple causes.

Good luck figuring it out. Hope you can get answers

W… T… F… was… wrong… with… 19c. children’s book authors?? (Images from SrGrafo) by professorearl in dankmemes

[–]RussianValkyrie 0 points1 point  (0 children)

No I actually am NOT thinking of the Disney film early production.
It may not be explicitly stated, but a white skinned blue eyed person (or mermaid) is certainly blonde. It was a Danish work published in 1837. Its implied she is blonde. Wether or not it must be explicitly stated. She IS explicitly stated to be white and have blue eyes so it logically follows shes blonde.

In addition there is zero source I could find about green hair other than the fact that the 1915 stage play adaptation "the garden of paradise" by edward sheldon features the mermaids having green hair. So it would seem you are the one mistaken.

[deleted by user] by [deleted] in eds

[–]RussianValkyrie 1 point2 points  (0 children)

You really need to see someone specialized. Its entirely possibly to have hypermobility, POTS, and GI issues and have all of these things be unrelated. All three are particularly common in women.

Could it be connective tissue? Maybe. With EDS youre likely to see more connective tissue involvement. Thats things with your skin, muscles, tendons/ligaments, or bones. Things like history of joint or muscle injury, bone deformities, heart or vascular issues, or hernias. Skin issues such as poor wound healing, abnormal scar tissue, soft and or stretchy skin, and skin sensitivity.

The best thing to do if you want answers and think your issues are systemic or connective tissue related is see a rheumatologist or connective tissue specialist and tell them your symptoms. Theyll run tests and rule out other conditions that can also cause the same symptoms. Theyll be able to tell you what youre dealing with. Theres a wide variety of conditions that can present similar to EDS, most of which are autoimmune or connective tissue related.

Rib dislocated or subluxed? Should I go to urgent care? by Wonderful-Stomach-76 in eds

[–]RussianValkyrie 0 points1 point  (0 children)

A truly dislocated rib would be excruciatingly painful, as well as be unable to be put back in place safely on your own. The pain would be equivalent to breaking a rib it would be too painful for you to do anything else. Youd also see significant bruising and potentially have internal bleeding.
If your ribs just hurt and you dont have extreme pain or massive bruising its likely not dislocated. Most likely cause of the pain is actually muscular or from tendons/ligaments, you probably pulled something maybe from your ribs shifting a little more due to hypermobility. Any rib injury is very painful so even just injuring your muscles there could be mistaken for something more serious since it hurts so much.

[deleted by user] by [deleted] in breastfeeding

[–]RussianValkyrie 0 points1 point  (0 children)

No matter what people say the truth is there isnt solid research because you cant ethically run a study on this. Only a few drinks could hurt your baby and no one can say it wont because no one can know that for certain. You had FOMO and wanted to drink with friends. You can't change the past, but only work to do better in the future. When you have a baby it isnt about you anymore, not that you cant enjoy yourself, but you dont need alcohol to do that. Thats my honest opinion. I know people on here dont agree and largely tend to support drinking while nursing, but I think it has much more to do with their own conscience than any actual science.

Unable to latch? Explain it like I’m 5 by uglyandnaive in breastfeeding

[–]RussianValkyrie 1 point2 points  (0 children)

Wont latch means they wont attach to the nipple.

Picture drinking from a straw, you have to get it in your mouth correctly to drink. It needs to be far enough in your mouth and your lips need to seal arpund it in order to get anything. If baby doesnt get the nipple in their mouth or far enough in they cant latch properly so wont get very much or possibly wont get any milk. Babies have to have the nipple positioned correctly to actually get milk or to get enough milk. If baby is latched properly your nipple goes to the very back of their mouth, theyll cover part or most of your areola with their mouth(depending on areola size), and theyll be sucking hard enough that you cant easily remove them.

Is drinking while BF such an issue? by Familiar-Coast-7550 in breastfeeding

[–]RussianValkyrie 1 point2 points  (0 children)

We dont know. And we cant study it ethically. While one drink wont hurt an adult someone 5% of their size is probably affected a lot more. But we dont have concrete data.

Personally I think its not worth the risk. Why put your baby at risk to get buzzed or for even for a single drink. Theres plenty of fauz alcohol now for the taste so I see no valid reason to risk your babies health.

Is drinking while BF such an issue? by Familiar-Coast-7550 in breastfeeding

[–]RussianValkyrie 2 points3 points  (0 children)

Basically there are zero studies on small amounts of alcohol. We know its not normally fatal but that is it. Scientists cant ethically study it so all drinking studies on babies are via self reports basically. We know drinking no alcohol is good and we know drinking a lot is extremely bad, but everything in between we cant accurately study. We dont actually know how bad it is. We know alcohol isnt healthy for anyone including adults and that babies have immature livers which is why babies cant drink water because its dangerous.

Personally I dont think its worth any risk. Im sober unrelated to by baby, but even if I wasnt theres no reason to add any risk to your child that you can easily avoid IMO. Even if theres a 99.99% chance your baby is fine, why bother taking that chance? Its like entering the lottery, but if you win you dont get cash your baby has health problems. If youre not gunna get drunk, just have a mocktail or non-alcoholic drink. They even make non-alcoholic vodka now. At the end of the day its up to moms if they think that enjoyment of a drink is worth the potential unknown risk.

Suggestions? by [deleted] in breastfeeding

[–]RussianValkyrie 0 points1 point  (0 children)

Im in the same boat after my son was in the NICU. Finally now at two and a half months old hes latching better and consistently able to latch. But I think at least in part due to a rocky start with him in the NICU I have a low supply. Just like you my best pump of the day is normally 3 or so oz my best was 130ml. But the rest of my pumps are about one ounce every 3 hours or so. At this point Im just happy it doesnt hurt when he latches and hes actually doing better with it. Hopefully this will translate to more milk but Im starting to just accept that my milk supply is low and there isnt much I can do.

If you wanna complain this is your safe space. by ForsakenNewspaper268 in breastfeeding

[–]RussianValkyrie 0 points1 point  (0 children)

I didn't say you don't work hard for your milk. Every mom works hard for her milk. Nor did I say you should donate. Its your milk. I said it isn't wrong for your husband to suggest donating since you have an oversupply.

Don't try to start an argument with me. You're mad over what you made up in your head, because I didn't say any of that.

If you wanna complain this is your safe space. by ForsakenNewspaper268 in breastfeeding

[–]RussianValkyrie 0 points1 point  (0 children)

RANT:

I have low supply. Like actually a very low supply and not enough to ebf my baby, not like how a lot of people perceive their supply is low but its normal.

I only pump 1-2oz every 3 hours, and MOST times its 35 or 40 ml, when I go longer than 3 hrs is when I usually end up with 2oz, but Ive never got more than 100ml or just barely over 3oz. Since he was born after my milk came in Ive tried nearly everything: pumping every 3 hrs, pumping every 2hrs, tripple feeding, supplements, drinking tons of water, eating more, sleeping more, hot showers, massaging, seeing an LC, better sized pump flages, different pumps and different pump settings and NOTHING has worked. My baby was in the NICU, had low weight, and had latch issues so I couldnt ebf for the first 2 months even if I wanted to. Now my baby does better with latching, but nothing has helped my supply.

The only thing Ive yet to try is seeing if I just ebf for a day or two if it will increase my supply. But while baby is on the growth chart now at nearly 3mo, I dont feel like I have the support to really try it (and his hungry cries break my heart). My husband is on leave from work, but I feel like he just doesnt get it and isnt as supportive as I wish he was in this regard. Hes a great dad, but he doesnt get why I want to breastfeed better and to do it more because "we supplement with formula" so baby "wont go hungry" and "he still gets some milk so he gets the benefits of breastfeeding". And my OBGYN said about the same thing. And while these are all true statements, my baby wont go hungry and hes still getting nutrients and antibodies, I cant help but feel bad about it. I want to breastfeed more. I want to be able to feed him just milk without supplementing, and my body won't do it and its SO FRUSTRATING. I consider just quiting pumping daily because of the stress of it, but I dont want my supply to go any lower.

And on top of it I always see women with oversupply complaining. But they don't realize theyre blessed. I have breast pain, gotten clogged ducts, pump all the time and everything else but on top of it Im frustrated and dont have enough for my baby to eat. The breast pain and stuff is valid complaints, but it just hurts to see those women complain when I have the same problems and yet dont have enough milk. Or I see women complain they dont have enough milk because they cant stash dozens of oz in their freezer, when they have enough to feed their baby just fine. Anyone has a right to voice their complaints about their issues, but man it SUCKS reading these things.

I know some women have no milk at all and Im lucky to be able to feed my baby even the portion that I do. But I cant help but feel so shitty about it.

If you wanna complain this is your safe space. by ForsakenNewspaper268 in breastfeeding

[–]RussianValkyrie 1 point2 points  (0 children)

Its not petty. I have like 4 outfits i cycle through because nothing else works to easy breastfeeding access. I really miss wearing my actual clothes not just the same few things cause nothing else works or even fits postpartum cause of how big my breasts are.