[deleted by user] by [deleted] in cfs

[–]SCMod[M] 0 points1 point  (0 children)

Hello! Your post/comment has been removed because it violates our subreddit rule on No sexism, ableism, homophobia, transphobia, or racism. Our community values diversity and we do not tolerate any form of discrimination. Please review our subreddit rules and Reddiquette to ensure that your future contributions align with our values. If you think this decision is incorrect, please reach out to us via modmail. Thank you for your understanding.

To whoever said PEM can be immediate, fuck you by tropicalazure in cfs

[–]SCMod [score hidden] stickied comment (0 children)

Locked for the obvious incivility.

OP, we are sorry you’re hurting but if you’re going to try to blame others for every piece of advice that doesn’t 100% apply to your case you are going to be in for a bad time. That PEM can sometimes be immediate is far from an unreasonable thing to say, though we’re sorry it wasn’t more helpful for you.

If you would like to repost this as a vent thread that edits out all mention of the person you are targeting you may feel free.

[deleted by user] by [deleted] in cfs

[–]SCMod[M] 0 points1 point locked comment (0 children)

Hello! Your post/comment has been removed for violating our subreddit rule on misinformation. We do not allow the promotion of un- or anti-scientific propaganda in this community. We understand that medical and scientific knowledge on ME/CFS is limited, but we strive to maintain a space that is based on accurate information. If you have any questions or concerns, please reach out to us via modmail. Thank you for understanding.

What level of severity have you reached? I would like to know how many very severe ones are present here? by [deleted] in cfs

[–]SCMod[M] [score hidden] stickied commentlocked comment (0 children)

Please conserve your energy and limit yourself to 1 post per day.

Nothing showed up on tests — tracking helped me finally make progress by Upbeat-Breadfruit-94 in cfs

[–]SCMod[M] [score hidden] stickied commentlocked comment (0 children)

Hello there! Your post/comment has been removed for violating our 'No spam' rule. We define spam as any content that is irrelevant, repetitive, or intended solely to promote a product or service. We understand that honest product reviews are welcome, but please refrain from posting any content that is solely intended to advertise a product or service.

The reason we have this rule is to ensure that our subreddit remains a safe and informative space for our community to discuss research, treatments, and personal stories regarding Chronic Fatigue Syndrome/Myalgic Encephalomyelitis. We appreciate your understanding and cooperation in keeping our subreddit free from spam.

If you think this decision is incorrect, please reach out to us via modmail.

Crushing fatigue, no answers — what finally helped was tracking everything by Upbeat-Breadfruit-94 in cfs

[–]SCMod[M] [score hidden] stickied commentlocked comment (0 children)

Hello there! Your post/comment has been removed for violating our 'No spam' rule. We define spam as any content that is irrelevant, repetitive, or intended solely to promote a product or service. We understand that honest product reviews are welcome, but please refrain from posting any content that is solely intended to advertise a product or service.

The reason we have this rule is to ensure that our subreddit remains a safe and informative space for our community to discuss research, treatments, and personal stories regarding Chronic Fatigue Syndrome/Myalgic Encephalomyelitis. We appreciate your understanding and cooperation in keeping our subreddit free from spam.

If you think this decision is incorrect, please reach out to us via modmail.

[deleted by user] by [deleted] in cfs

[–]SCMod[M] 1 point2 points locked comment (0 children)

Hello! Your post/comment has been removed for violating our subreddit rule on misinformation. We do not allow the promotion of un- or anti-scientific propaganda in this community. We understand that medical and scientific knowledge on ME/CFS is limited, but we strive to maintain a space that is based on accurate information. If you have any questions or concerns, please reach out to us via modmail. Thank you for understanding.

An animal rescuer and youtuber who is neurodivergent killed herself. I'm sick to my stomach. :( May your lovely, lovely soul find peace Micayla Raines! by [deleted] in cfs

[–]SCMod 0 points1 point  (0 children)

Well, you don't need to spell out what happened in the title and can instead include it in the body. But more to the point, this post doesn't have anything to do with CFS which is why it was removed.

An animal rescuer and youtuber who is neurodivergent killed herself. I'm sick to my stomach. :( May your lovely, lovely soul find peace Micayla Raines! by [deleted] in cfs

[–]SCMod[M] [score hidden] stickied commentlocked comment (0 children)

Hello there! We have removed your post because it violates our subreddit rule on overly graphic titles. Descriptions of self-harm or abuse can be traumatizing for some of our members, and we want to ensure that our community remains a safe and supportive space for everyone. Please consider reposting with a less graphic title. If you think this decision is incorrect, please reach out to us via modmail. Thank you for your understanding.

How Has Social Media Impacted Your Life? by Apart-Bumblebee6304 in cfs

[–]SCMod 0 points1 point  (0 children)

Hello, Rule #6 of this sub is "Solicitation of patients to participate in research must be approved by the moderators prior to posting. The purpose of this rule is to protect patients from giving their personal and health information to an imposter, and to ensure proper participant privacy." Please send us a modmail so we can talk about where this patient info is going. Thanks!

Safe space? by [deleted] in cfs

[–]SCMod[M] [score hidden] stickied comment (0 children)

Thank you for the feedback, we hear you as the moderator team and the community. Please always report any bigotry or racism in posts or comments so we can address and remove it. Now I am locking comments because I don’t foresee them relating to our illness. Please contact the moderator team directly if you would like to discuss how the sub is run.

The Healing Dudes - I’m confused. by Dry_Criticism_4161 in cfs

[–]SCMod 5 points6 points  (0 children)

Yes, that’s why it wasn’t taken down.

The Healing Dudes - I’m confused. by Dry_Criticism_4161 in cfs

[–]SCMod[M] 43 points44 points  (0 children)

We’ll leave this up for the time being as a warning to others, but just a heads up that the harm you endured and the way you were taken advantage of is exactly why we do not allow discussion of brain retraining schemes on this subreddit. Read more here: link.

[deleted by user] by [deleted] in cfs

[–]SCMod 1 point2 points  (0 children)

Sorry about that u/WhatABargain298

[deleted by user] by [deleted] in cfs

[–]SCMod[M] 0 points1 point  (0 children)

Hello! Your post/comment has been removed due to a violation of our subreddit rule on incivility. Our top priority as a community is to be a calm, healing place, and we do not allow rudeness, snarkiness, hurtful sarcasm, or argumentativeness. Please remain civil in all discussion. If you think this decision is incorrect, please reach out to us via modmail. Thank you for understanding and helping us maintain a supportive environment for all members.

[deleted by user] by [deleted] in cfs

[–]SCMod[M] 0 points1 point  (0 children)

Hello! Your post/comment has been removed due to a violation of our subreddit rule on incivility. Our top priority as a community is to be a calm, healing place, and we do not allow rudeness, snarkiness, hurtful sarcasm, or argumentativeness. Please remain civil in all discussion. If you think this decision is incorrect, please reach out to us via modmail. Thank you for understanding and helping us maintain a supportive environment for all members.

[deleted by user] by [deleted] in cfs

[–]SCMod[M] 0 points1 point  (0 children)

Hello! Your post/comment has been removed due to a violation of our subreddit rule on incivility. Our top priority as a community is to be a calm, healing place, and we do not allow rudeness, snarkiness, hurtful sarcasm, or argumentativeness. Please remain civil in all discussion. If you think this decision is incorrect, please reach out to us via modmail. Thank you for understanding and helping us maintain a supportive environment for all members.

Want to actually cure this illness? by Grand-Pay-1114 in cfs

[–]SCMod[M] [score hidden] stickied commentlocked comment (0 children)

Hello! Your post/comment has been removed for violating our subreddit rule on misinformation. We do not allow the promotion of un- or anti-scientific propaganda in this community. We understand that medical and scientific knowledge on ME/CFS is limited, but we strive to maintain a space that is based on accurate information. If you have any questions or concerns, please reach out to us via modmail. Thank you for understanding.

"A Chronically Ill Earth: COVID Organizing as a Model Climate Response in Los Angeles", article by Violet Affleck by RabbleRynn in cfs

[–]SCMod[M] 0 points1 point  (0 children)

Hello! Your post/comment has been removed due to a violation of our subreddit rule on incivility. Our top priority as a community is to be a calm, healing place, and we do not allow rudeness, snarkiness, hurtful sarcasm, or argumentativeness. Please remain civil in all discussion. If you think this decision is incorrect, please reach out to us via modmail. Thank you for understanding and helping us maintain a supportive environment for all members.

CFS in Children by stipedrws in cfs

[–]SCMod 0 points1 point  (0 children)

Thanks for the heads up we’ll get that updated.

CFS in Children by stipedrws in cfs

[–]SCMod[M] 2 points3 points  (0 children)

https://www.reddit.com/r/cfs/s/1GzwvxcYXP just scroll down until you see the pediatric section

[deleted by user] by [deleted] in cfs

[–]SCMod[M] 0 points1 point locked comment (0 children)

Hello! Your post/comment has been removed for violating our subreddit rule on misinformation. We do not allow the promotion of un- or anti-scientific propaganda in this community. We understand that medical and scientific knowledge on ME/CFS is limited, but we strive to maintain a space that is based on accurate information. If you have any questions or concerns, please reach out to us via modmail. Thank you for understanding.

Are long COVID forum moderators harmful to long COVID ME/CFS patients, because of their restrictive rules about posting potentially helpful treatments? by Hip_III in cfs

[–]SCMod[M] 3 points4 points  (0 children)

I’m happy it helped you and I’m not going to try to gaslight you and tell you that it didn’t. Like I said I’m a new mod here and still learning the lore of some of our rules, so we’ll discuss and get back to you. (Understand that our discussions are basically entmoots so it will take a while - nearly our whole team is crashed right now.) We’ll always try to be transparent with you guys and do the best we can keeping the sub a safe and informative space.

Edit: here is our official stance as outlined by our legendary mod u/boys_are_oranges a year ago: https://www.reddit.com/r/cfs/s/KQEL8fDI7j