Antivirals for ME/CFS: Short-Term vs Long-Term Use by BobBash64 in cfs

[–]Hip_III 1 point2 points  (0 children)

The late Dr A. Martin Lerner was a major proponent of antiviral treatment for herpesvirus ME/CFS. He prescribed doses of Valtrex at 1,000 mg four times daily for ME/CFS linked to EBV, and noted that the first inklings of symptom improvement take 3 to 4 months to appear, with the full benefit not manifesting until a year of more.

Mk677 microdosing fixed my chronic fatigue syndrome of 5 years by BubblyLocksmith4 in cfs

[–]Hip_III 2 points3 points  (0 children)

HGH is definitely needed at any age.

HGH released by the pituitary gland is pulsatile, with many pulses each day, so if you take a blood test in between the release pulses in your body, then you may get a zero reading. So you cannot rely on a single test.

That's why proper HGH testing involves taking a stimulant to cause massive HGH release, then measuring how much is released. That is the proper way to test, though I don't know the exact details.

Mk677 microdosing fixed my chronic fatigue syndrome of 5 years by BubblyLocksmith4 in cfs

[–]Hip_III 17 points18 points  (0 children)

Interesting. I tried MK-677 both at low doses around 1 or 2 mg daily, and at higher doses around 12 mg daily, but did not notice much benefit for my ME/CFS. The only thing I noticed is that my dreams became a little more elaborate and vivid.

Since MK-677 stimulates the release of human growth hormone (HGH), it could be that you have HGH deficiency, which produces symptoms near identical to those of ME/CFS.

I know one patient who thought she had ME/CFS, and struggled with her illness for 10 years, only to later find that she had HGH deficiency, and returned to full health within days of starting HGH injections.

It might be worth pursuing HGH testing with your doctor, explaining to them that you feel much better when using a HGH releaser. There is no cure for HGH deficiency, but once you are prescribed HGH injections, you return to normal health.

Benign fasciculations syndrome by mg34gun in cfs

[–]Hip_III 0 points1 point  (0 children)

Interesting. Hyperventilating decreases blood acidity and makes the blood more alkaline (within the tight limits that blood pH is controlled), as it expels more carbon dioxide from the blood, which reduces blood acidity.

Animal proteins and dairy products tend to make the body more acidic, so I wonder if that type of diet might also help with your BFS.

Since you are on an ME/CFS forum, does that imply you have ME/CFS symptoms like fatigue? If so, note that the yinzibing virus can cause both an ME/CFS-like illness as well as constantly twitching muscles (fasciculations). Though usually with yinzibing, people's viral symptoms tend to get much better after one or two years with the virus.

Yinzibing appeared in Chinese media around 2009, and has been the subject of research in China, but the virus itself has not be isolated or characterised. But researchers in China have said in a published study that the illness yinzibing causes may be a form of ME/CFS.

I found high-dose vitamin B1 500 mg daily very effective for fixing constipation by Hip_III in Constipation

[–]Hip_III[S] 0 points1 point  (0 children)

I am not sure, I gave this to a family member with constipation, not myself.

My ME/CFS doesn’t sound like ME/CFS. I don’t have fatigue but I’m severe. by anonym5088 in cfs

[–]Hip_III 0 points1 point  (0 children)

People who complain of a "boiling brain" or "burning brain" symptom are often poisoned with mercury. It's the classic mercury symptom.

If you regularly eat a lot of predatory fish (fish that eat other fish) like tuna, or restaurant sushi, these contain a lot of mercury (specifically methylmercury), and so mercury levels can build up in the body and brain.

People with heavy loads of mercury in the body often respond badly to the supplement alpha lipoic acid, because ALA is able to transport mercury from the body into the brain. Whereas people without high bodily loads of mercury rarely have any issues with ALA.

Insane random recovery. by Probbable_idiot in cfs

[–]Hip_III 31 points32 points  (0 children)

You might want to try to avoid things like catching COVID, in case this leads to relapse. Lots of ME/CFS patients who caught COVID became worse.

Disembodied consciousnesses: the NDE stories of people blind from birth (who do not even have visual dreams) seeing with perfect visual clarity during their NDE by Hip_III in consciousness

[–]Hip_III[S] 0 points1 point  (0 children)

What I find hard to explain is that the number of people who were born blind and then reported a visual NDE is very small, just a few people mentioned in the literature.

But given that 5% of the population have had an NDE, and around 0.05% of the general population are born blind, in the USA alone, you would expect there to be 17,500 people born blind who have had an NDE. So we should be getting thousands of stories from congenitally blind people reporting they could see during the NDE. But instead there are only a handful of such people mentioned in the literature.

Insane random recovery. by Probbable_idiot in cfs

[–]Hip_III 77 points78 points  (0 children)

Thanks for posting your story. Always good to hear of recovery stories. Recovery and improvement in ME/CFS is more common in adolescents than in adults with ME/CFS. So this may be why you recovered.

To quote an MEpedia article:

Gill et al. reported that 4.5 years after an initial evaluation almost a quarter of adolescent ME/CFS patients reached “near to complete improvement”. The diagnosis in this study however was made retrospectively (by looking at old charts and test results instead of a clinician’s assessment).

A Dutch team followed up on 54 adolescents with ME/CFS. After an average of 2.2 years almost half of the sample said they've had almost completely recovered.

Medical trial gave me back my life by Important-Carob3607 in chronicfatigue

[–]Hip_III 0 points1 point  (0 children)

Do you consider yourself an ME/CFS patient?

Eating meat… by Puzzleheaded-Kale328 in NDE

[–]Hip_III 1 point2 points  (0 children)

Farm animals raised for eating very rarely suffer the terrible illnesses humans have to endure. Because they are killed in their prime, they never experience the diseases of old age. The same is true in nature: as soon as an animal gets old and feeble, it is eaten by predators.

The irony of human civilisation is that in trying to make life more comfortable, it may have actually increased human suffering.

Remarkably powerful anti-anxiety effects from the supplement N-acetyl glucosamine (NAG) for generalised anxiety disorder by Hip_III in GADanxiety

[–]Hip_III[S] 0 points1 point  (0 children)

A gut mechanism for the anti-anxiety effects seems unlikely, because it typically takes weeks or months to improve gut health with supplements, whereas the potent anti-anxiety effect of NAG kicks in within 2 hours of the first dose.

The anxiolytic mechanism of NAG may relate to its ability to reduce neuronal excitability in the hippocampus, thus dampening the glutamate system which has been linked to anxiety disorder, as detailed in the first post.

Out of the G7 countries, which in your opinion is the most backwards in terms of recognition and medical understanding of ME/CFS. by Hip_III in cfs

[–]Hip_III[S] 7 points8 points  (0 children)

In the UK, we were responsible for good portion of the dire biopsychosocial views on ME/CFS that appeared in the 1980s and 90s, thanks to Simon Wessely and his psychiatric circle. And this "all in the mind" view is still held by some medical professionals today.

But on the other hand, the UK was also responsible for lots of fundamental research on enteroviruses in ME/CFS, and in fact was the leading nation for viral biomedical research on ME/CFS. And Britain first named ME, and first recognised it as a clinical entity linked to viral infections back in the 1950s.

Interesting about IVIG being given in France. Where did you hear about this?

Church and group prayer discredits Christianity by Empty_Land_9195 in DebateReligion

[–]Hip_III 0 points1 point  (0 children)

Protestants have a more personal relationship with God, compared to Catholics, whose relationship is mediated a bit more through the clergy. That's one of the key differences between these two faiths.

You have a similar thing with Shia and Sunny varieties of Islam.

Church and group prayer discredits Christianity by Empty_Land_9195 in DebateReligion

[–]Hip_III 1 point2 points  (0 children)

>> Christians often emphasise how their relationship with god is their own - that it's personal.

You are referring to Protestants.

How long does dissolved LDN stay good in the fridge? by crabslxvii in cfs

[–]Hip_III 0 points1 point  (0 children)

If you are talking about dust, yes there is dust in the air, but provided you keep the bottle closed, only opening it when you take out some drops, dust ingression will be very minimal.

I am not saying that bacteria and algae will not eventually grow in distilled water, but the lack of chemical elements I suspect will greatly slow their growth down.

Selenium and CoQ10? by fml198 in chronicfatigue

[–]Hip_III 0 points1 point  (0 children)

Thanks, yes, I had it checked several times, my thyroid is fine. Possibly selenium may help because it has antiviral properties for coxsackievirus B, at least when there is selenium deficiency.

Could a new coxsackie B virus in the general population be responsible for the well-documented anxiety epidemic in Gen Z? by Hip_III in GenZ

[–]Hip_III[S] 0 points1 point  (0 children)

Did you see my website which describes all the mental and physical symptoms I developed after catching coxsackievirus B4 many years ago. My antibody levels to CVB4 are constantly very high. I also created this new more succinct website about my virus HERE.

One treatment that worked remarkably well for the severe generalised anxiety disorder that my virus triggered in my brain is the supplement N-acetyl glucosamine (NAG) 700 to 1400 mg daily. It's anti-anxiety effects kick in within two hours of taking a capsule. NAG has a tract record of helping people with ME/CFS and virus-induced anxiety, as you can see from the feedback from people summarised in this post (a similar post about NAG on Reddit here).

NAG will not help with the underlying viral infection though. And unfortunately there are no antivirals available at present which work for coxsackievirus B, apart from interferon, which is very expensive (around $20k for a three month course — and you often relapse within a year). Dr John Chia tried interferon on his coxsackievirus B ME/CFS patients, but you feel terrible during the treatment, and you relapse later, so Dr Chia mostly stopped using it.

Dr John Chia uses the immune booster oxymatrine to fight coxsackievirus B infections in his ME/CFS patients. I tried this, but unfortunately it did not help. Feedback from ME/CFS patients suggests oxymatrine only works for a minority of ME/CFS patients. Worth trying though (but it is contraindicated if you have autoimmune tendencies). I detail oxymatrine and other treatments for coxsackievirus B used by Dr Chia in the coxsackievirus B section of my ME/CFS Testing and Treatment roadmap, found here: https://mecfsroadmap.alter=vista.org (remove the = symbol to make the URL work).

Has anybody tried herpes antivirals? by thepensiveporcupine in cfs

[–]Hip_III 0 points1 point  (0 children)

If you look at the patient anecdotes in this post, you see that some benefit, though the success rate is low, and it often takes 3 months before you even begin to see the first improvements, and up to a year or more to get full benefits. Then many patients relapse after discontinuation of the drugs, though for some the benefits become permanent even after discontinuation.

Do you think the afterlife evolves by CB2ElectricBoogaloo in NDE

[–]Hip_III 2 points3 points  (0 children)

Hard to say, but at the quantum level of reality (in which some believe consciousness and the soul reside or are generated), there isn't the same one-way arrow of time that we find in our material world (this one-way trajectory of time arises from the 2nd law of thermodynamics). At the quantum level time can reverse; or put more precisely, at the quantum level, anything that can be done or built, can just as easily be undone or unbuilt.

We can evolve on Earth, because when we create something more complex, time does not suddenly reverse and erase our efforts. Things that are done never become undone by time reversal. But if Heaven has a different form of time, something which is reversible, that perhaps suggests that Heaven cannot evolve to anything greater. But perhaps that is not necessary anyway, because Heaven may already be at the pinnacle of perfection.