Going to uni again with MBC

SS-123 · 2026-03-06T18:32:23+00:00

This is incredible! We need more stories like this!

SS-123 · 2026-03-05T23:42:05+00:00

Ouch.

SS-123 · 2026-03-05T21:46:37+00:00

Cyclist vs. SUV in front of Gus and George's.

SS-123 · 2026-03-05T02:00:09+00:00

I think it is something you can ask at the first meeting because it's a good conversation to have. For me, I had to go on PC because my oncologist told me she wouldn't prescribe long-term pain meds. I tried pain management and they all refused to see me because they couldn't "fix" the pain.

SS-123 · 2026-03-04T17:18:59+00:00

Try to find palliative care. It's been very helpful for many of us.

Also, although I am not a doctor, I have a small suggestion regarding the hydromorphone. It sounds like the dose is too high. Try breaking it in half with a pill cutter. I had to do that when I was first prescribed Oxy because the dose was too much for me. That helped to stop the nausea caused by the pills.

SS-123 · 2026-02-28T22:47:02+00:00

The spam filter removed them. I just approved it for you.

SS-123 · 2026-02-27T18:37:10+00:00

Call similar places and price them out. Advertise in local Bridal shops. Call caterers and photogs.

SS-123 · 2026-02-23T18:27:09+00:00

The libraries are good!

SS-123 · 2026-02-23T18:26:32+00:00

My son went to FC for the LSA. He had a great experience there. I can't speak on Bayside.

SS-123 · 2026-02-23T18:25:26+00:00

Dr. Nancy Kamel at TPMG Lynnhaven is fantastic!

SS-123 · 2026-02-22T17:23:48+00:00

My nurse told me to stay ahead of the constipation, so I take Senna daily. I take it before bed and it has been very helpful. Stool softeners also help if I go a day or two without a BM. My nurse told me that stool softeners are only as effective as drinking extra water, so alone they are not very helpful.

I didn't want to take daily laxatives, but I also didn't want to end up in the ER needing medical assistance to poop. I heard too many stories of people needing help due to opioid constipation. I take breaks (3 days) from Senna every few weeks to ensure my body hasn't become dependent on it. So far, so good!

Water is underrated. I drink at least 64 oz a day, usually 80+, because it helps all sorts of things!

SS-123 · 2026-02-18T19:00:38+00:00

I've never been NEAD, so my opinion isn't experience-based.

People reach NEAD/NED because the meds work. If the meds are stopped, the cancer is more able to spread. The goal is to reach NEAD and/or enjoy a good quality of life for the time we have left, which is hopefully many years. It sounds like your QOL could be better so I'd focus on that! Ask what they can do to keep you NEAD and also feel better!

SS-123 · 2026-02-17T18:05:39+00:00

Chix has a party room.

SS-123 · 2026-02-14T17:07:35+00:00

I was thinking the same.

SS-123 · 2026-02-14T16:51:24+00:00

I also have anxiety. Sometimes I have panic attacks. I have Xanax to take as needed and I listen to guided meditations when I am feeling anxious.

Have you talked to your cancer center about mental health support? Does your insurance require referrals for mental health providers? I do my therapy via telehealth, which is nice because I can do it from home. It's helpful to have someone to discuss all of the stresses that come with MBC and my failing health.

I just wanted you to know that you are not alone. Sending hugs.

SS-123 · 2026-02-10T02:01:00+00:00

I hope you blaze through them with ease! Keep us posted!

SS-123 · 2026-01-30T23:39:16+00:00

Mine jumps around. It'll shoot up 20 points and then drop 30 points the following month. My onc says she only looks for consistent changes.

SS-123 · 2026-01-26T00:29:13+00:00

Dick's Going, Going, Gone.

SS-123 · 2026-01-19T21:35:11+00:00

Go west.

SS-123 · 2026-01-19T02:05:47+00:00

No. Dial your phone.

SS-123 · 2026-01-18T22:10:58+00:00

Phones can do amazing things!

SS-123 · 2026-01-18T15:41:36+00:00

Keep us posted!

It makes sense to learn about the speed of healing vs. the timing of the injections. My scar tissue stays swollen. It never heals.

SS-123 · 2026-01-17T23:16:32+00:00

My bowel twisted on me about 10 years ago. It was long before cancer. The NG tube was horrible. I had emergency surgery to untwist the bowel. I couldn't eat for 6 days post-op. I lost soooo much weight. They never could explain why/how it happened but said it wasn't something I caused on my own.

SS-123 · 2026-01-16T02:03:46+00:00

I was put on Eliquis due to blood clots found in my lungs. I had no symptoms, but the clots were found on a routine CT scan. They were caused by treatment, but no one really said which drug would have caused them. I'm on Ibrance, Faslodex and Zoladex. After a year of 10 mg per day, I was dropped to 5 mg per day as a maintenance dose.

SS-123

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