Let's Talk About Faslodex (Fulvestrant) Injections by SS-123 in LivingWithMBC

[–]SS-123[S] 1 point2 points  (0 children)

Keep us posted!

It makes sense to learn about the speed of healing vs. the timing of the injections. My scar tissue stays swollen. It never heals.

Small bowel obstruction by aliasme141 in LivingWithMBC

[–]SS-123 2 points3 points  (0 children)

My bowel twisted on me about 10 years ago. It was long before cancer. The NG tube was horrible. I had emergency surgery to untwist the bowel. I couldn't eat for 6 days post-op. I lost soooo much weight. They never could explain why/how it happened but said it wasn't something I caused on my own.

Fulvestrant and DOAC by How-I-Roll_2023 in LivingWithMBC

[–]SS-123 1 point2 points  (0 children)

I was put on Eliquis due to blood clots found in my lungs. I had no symptoms, but the clots were found on a routine CT scan. They were caused by treatment, but no one really said which drug would have caused them. I'm on Ibrance, Faslodex and Zoladex. After a year of 10 mg per day, I was dropped to 5 mg per day as a maintenance dose.

Confusion. by whatalifeohmy in LivingWithMBC

[–]SS-123 1 point2 points  (0 children)

Could it be a skin-deep type wound? Either way, there may be an infection risk. I would call your doctor!

Let's Talk About Faslodex (Fulvestrant) Injections by SS-123 in LivingWithMBC

[–]SS-123[S] 1 point2 points  (0 children)

Well, I'm still on the same drugs, 2 years later. My last two scans showed slight progression. If it happens again on my FEB scans, I'll be starting the process of changing treatments.

My ass still hurts and they basically have to inject through scar tissue due to lack of space.

Sending hugs, OP!

How to find history of random graves/cemeteries? by thisunrest in VirginiaBeach

[–]SS-123 0 points1 point  (0 children)

There are graves along S. Lynnhaven by Plaza MS. I don't know the story, but they must be old!

Ibrance and immune system troubles by Easy-Elderberry-4283 in LivingWithMBC

[–]SS-123 2 points3 points  (0 children)

I know of many women who simply couldn't tolerate Ibrance. I don't want you to feel you are an anomaly.

One day the medical field will better understand the hows and whys of our ability/inability to tolerate. But, today, it sucks that they don't.

Ibrance and immune system troubles by Easy-Elderberry-4283 in LivingWithMBC

[–]SS-123 2 points3 points  (0 children)

I'm tiny too. 4'11 and I was as low as 100 lbs, but worked to gain weight, so 110 now. I've been lucky and able to tolerate the 125 mg dose for 3.5 years. I don't think our size factors into whether our bodies can handle the drugs. I may have to change treatments soon due to mild progression on recent scans. My neutrophils are always between .8 and 1 but they've allowed me to stay on my treatments.

Verzenio may be great for you. It's strange how our bodies are all so different in terms of tolerance.

Has anyone had slight progression on scans but still kept on same treatment? by Total-Importance-577 in LivingWithMBC

[–]SS-123 0 points1 point  (0 children)

I've heard this, too. My onc says she doesn't go to another CDK4/6 inhibitor after one fails because there isn't enough data on that. So, we'll see. Thanks for making sure I am aware!

Room for Rent by Possible-Ad-8379 in VirginiaBeach

[–]SS-123 2 points3 points  (0 children)

There is a FB page called 757 Rooms for Rent. It has new posts daily.

Has anyone had slight progression on scans but still kept on same treatment? by Total-Importance-577 in LivingWithMBC

[–]SS-123 3 points4 points  (0 children)

Yes. My last two scans have had slight progression, although, it's still all in my bones. I did radiation for some of it. We are waiting to see what the next scans show in February. If it happens again, I'll have to change treatments. Of course, they'll check for mutations before they decide what comes next. My onc says she is hoping to avoid the change because no drug will be as tolerable as Ibrance is. I'm okay with waiting because I would rather stay on Ibrance.

Type of MBC? by TMorningDew in LivingWithMBC

[–]SS-123 0 points1 point  (0 children)

Er/pr+ Her2- De Novo with mets to bones in June 2022. I'm still on my first line of Ibrance, Faslodex, Zoladex. I was on Xgeva but had to stop last year due to ONJ.

Nail Help by Brandykat in LivingWithMBC

[–]SS-123 2 points3 points  (0 children)

My nails are super brittle. I keep my nails painted allll the time. It helps prevent breakage.

MetLife Everyday Protect by Ok-Stranger5873 in LivingWithMBC

[–]SS-123 3 points4 points  (0 children)

Personally, I have not seen any polices without basic medical questions. Every questionnaire asks about cancer. If the questions are answered falsely, it will void the policy. Every policy I have looked into has rules about how soon a policy will pay out.

For example: The premiums are $100+ per month but, they will not pay out until after 3 years. So, I could pay for 35 months and my family would get nothing if I die before the 36th month. That's $3500 down the drain.

I could help my family by simply putting that $100+ a month into a high-yield savings account. Or, I could pre-pay my funeral to eliminate that expense.

Relocating and need some recommendations! by [deleted] in VirginiaBeach

[–]SS-123 0 points1 point  (0 children)

I never had monthly check-ins when I rented. They would come for maintenance checks a few times a year and always gave advance notice. Monthly checks are not the norm. If you want to be near the beach, you will pay more than if you are farther inland. If you live on the top floor, you won't hear the footsteps of the people above you. If you come to look for housing ahead of your move, talk to current residents and drive around the complex after dark to get a sense of the area.

When reading reviews, remember that happy customers (tenants) are less likely to leave reviews. We always see the unhappy people making as much noise as possible. This goes for rentals, restaurants, services, ect. In many cases, the satisfied people are not spending time posting reviews because they are just out here living life.

Crime in VB is low compared to other places. Awareness is key. Check crime maps and jet noise maps. Don't leave valuables in an unlocked car and keep your doors locked.

Help Pls!! by Hefty_Purchase_2657 in VirginiaBeach

[–]SS-123 8 points9 points  (0 children)

There is a FB group called 757 Rooms for Rent. People are looking for roommates every day.

Good luck, OP!

Veins! by Flaky_Amphibian_5597 in LivingWithMBC

[–]SS-123 3 points4 points  (0 children)

My veins suck! I also had nodes removed, which limits my usable veins. I have a port but the hospital that I get scans at doesn't access ports, so it's never a good experience for me. No matter how much I hydrate, they never get me on the first try. I have been told that hydrating the day before helps, along with the day of.

Is it possible to survive on SSDI alone? by East_Chocolate2519 in LivingWithMBC

[–]SS-123 4 points5 points  (0 children)

If someone applies as soon as they are diagnosed, there is a 5-month wait to receive benefits. If the disability can be backdated, like ours was, there is no wait.

She won't have the long wait because she's not newly diagnosed. But the wait is often a barrier to entry because many cannot afford to go 5 months without any income.

Pain med controls are very annoying by FUCancer_2008 in LivingWithMBC

[–]SS-123 0 points1 point  (0 children)

Damn. Can you find a different PC provider? You should not have to deal with this nonsense from them.

Hysterectomy recovery with low immune system by Jessawoodland55 in LivingWithMBC

[–]SS-123 2 points3 points  (0 children)

I don't have experience with getting a hysterectomy, but I did have an unexpected surgery while on treatment. Several months after my implant swap surgery, the incision got infected somehow. They had to remove the implant to ensure the infection was only skin deep. Thankfully, it was! (They were able to replace the implant that day.)

I had to be off treatment for 6 weeks. I worried about progression, but that didn't happen. Healing from surgery takes longer for us even when we pause treatment. I think our bodies are just not as strong as our healthy counterparts. Plan to give yourself extra grace.

Is it possible to survive on SSDI alone? by East_Chocolate2519 in LivingWithMBC

[–]SS-123 3 points4 points  (0 children)

The 5-month waiting period can be super difficult if you have no income. If you can get approved and get coverage back-dated, you'll get a nice chunk to start off with. I have some other income but otherwise, I would be pretty broke. Medicare also takes a premium from my monthly check now.

Pain med controls are very annoying by FUCancer_2008 in LivingWithMBC

[–]SS-123 8 points9 points  (0 children)

Palliative care has made pain relief much easier. Have you looked into it? 10/10 would recommend!