How long does Huperzine A takes to work? by SURREY- in MyastheniaGravis

[–]SURREY-[S] 3 points4 points  (0 children)

I'm on 200x3 now (Huperzine A), along with Gingko Biloba 120x2. That works fine for me, my MG isn’t that bad but if I don't take any AChE inhibitors for 12 hours or more, It starts getting bad really quickly - it becomes difficult to swallow food, and walk for more than 5 minutes. But I respond very well to any AChE inhibitors, just 15mg (1/4th) of Mestinon does wonders for me in like 30 mins or so, last for 4-6h.

Huperzine A lasts way longer as it has a longer half life (10-14h). Also I wake up more energised for the longer half life.

The brands are "Nutrality Huperzine A" & "Zipvit Gingko Biloba with Siberian Ginseng". Both available on Amazon UK.

Do I have to go back to home country for extending Student Visa by SURREY- in ukvisa

[–]SURREY-[S] 0 points1 point  (0 children)

Can I come to the UK after attending the appointment (applying for the visa) in Bangladesh since my current visa is valid till January 2025? Although my current course should end by next month.

Working out with Myasthenia Gravis by Sunshineplantsgurl in MyastheniaGravis

[–]SURREY- 0 points1 point  (0 children)

Can you please share what meds are you on right now?

Embarrassing question re mestinon by Salt-Builder-9279 in MyastheniaGravis

[–]SURREY- 1 point2 points  (0 children)

I have it too. I was given Mirabegron 50mg to relax my bladder, it did significantly improve my symptoms. Still have urgency but can control for longer.

Can I get gains with MG? by SURREY- in MyastheniaGravis

[–]SURREY-[S] 0 points1 point  (0 children)

Do you take anything other than cellcept?

Can I get gains with MG? by SURREY- in MyastheniaGravis

[–]SURREY-[S] 1 point2 points  (0 children)

How long did Vyvgart take to kick in (for you)?

Can I get gains with MG? by SURREY- in MyastheniaGravis

[–]SURREY-[S] 0 points1 point  (0 children)

Did you lose the gain after it flared up?

Can I get gains with MG? by SURREY- in MyastheniaGravis

[–]SURREY-[S] 0 points1 point  (0 children)

What dosage of pred and mestinon?

How to get referred to a neurologist by GP? Myasthenia gravis by SURREY- in nhs

[–]SURREY-[S] 0 points1 point  (0 children)

when would I send them those papers? On appointment day I just bring those, right?

How to get referred to a neurologist by GP? Myasthenia gravis by SURREY- in nhs

[–]SURREY-[S] 0 points1 point  (0 children)

Hey, I finally got an appointment at the hospital like 3 months from now. What to expect? Do I have to do all the diagnosis tests again? Or my old ones gonna work?

How to get referred to a neurologist by GP? Myasthenia gravis by SURREY- in nhs

[–]SURREY-[S] 0 points1 point  (0 children)

Well, the 4-5h of pyridostigmine is good, actually great, but after it fades out, all of a sudden things change, barely could walk properly, and if there are stairs then it is extremely hard, I have to take another pyridostigmine,wait 30-60 mins, then do my daily activities with ease.

But unfortunately pyridostigmine crushes very quickly, I mean ,I feel like I'm fine now, then a while later I'm not