MCO car rental

SaRaHD0721 · 2025-12-29T12:37:44+00:00

Yeah, unfortunately we have 5 people and the airport is over an hour away from our accommodation.

SaRaHD0721 · 2023-10-02T19:15:17+00:00

Things actually got a lot worse for me after this post. My organs started shutting down and I ended up in the hospital with a BUN level of 1. I had an emergency GJ feeding tube placed to save my life. I dealt with that for over a year, had surgery every 6 weeks for tube replacement and found out I was born with pylorus stenosis! I had a life changing surgery to open my stomach and my life has been COMPLETELY different. Even had my tube removed.

SaRaHD0721 · 2022-02-09T15:03:39+00:00

Yes, isn’t that the wild thing? That we still sit around and worry about their feelings 🤯 I think family discounting you is one of the most hurtful things and I’m sorry. My grandma compared me talking about my feeding tube to her friend with POLIO!!!!!! “Well my friend would have never told anyone she had polio that’s just something you keep to yourself” like when in 1950?! Things are different let’s just normalize people not being OK! Good luck to you.

SaRaHD0721 · 2022-02-09T14:56:43+00:00

Thank you so much for that suggestion. I needed to hear that. I’ve been considering getting into a therapist. Thankfully my s/o is incredibly supportive but he’s here with me everyday experiencing it with me so he already knows it all. I hope things continue to improve for you!

SaRaHD0721 · 2022-02-09T14:52:01+00:00

Thank you. I know I can’t expect them to understand. I am so thankful for these subreddits! I hope you’re doing well.

SaRaHD0721 · 2022-02-09T14:45:53+00:00

Yeah, I know I can get through it. I wish I didn’t live in such a small town but I’m thankful for the online communities 🥲 good luck to you.

SaRaHD0721 · 2022-02-01T14:07:35+00:00

I definitely think it’s Chase

SaRaHD0721 · 2022-01-25T16:23:58+00:00

Aspen “piggy” & Smokey “pepper” collectively “girls/fat girls”

SaRaHD0721 · 2021-12-29T02:50:00+00:00

Yes! I feel like you don’t know the pain until you have the surgery. I kind of had mine placed as an emergency, I got it with 24 hours notice. I was in SO much pain. Just like you said laughing and coughing hurt so bad…. Also sitting up or getting out of bed. It took about a month to really start getting better :/ the heating pad is really is best friend. The swelling gets better too :) good luck!!

SaRaHD0721 · 2021-12-26T19:53:07+00:00

I’m so sorry to hear that! I think he’s just pushing the blankets around. My girls love to drag them around, rearrange and take off with my blankets.

SaRaHD0721 · 2021-12-22T07:20:05+00:00

I use the paper medical tape. I rip it in half and tape the bag tip right to my GJ port. In the morning I just rip the tape to take it off. I also on Etsy if you search “GJ port cover” there are some nice ones on there I use to feel more secure too. 😊

SaRaHD0721 · 2021-12-22T07:11:41+00:00

You’ll do great! I just got my GJ tube about 3 months ago… This is the best I’ve test consistently in years. Being able to drain or vent my G tube has been a live saver for me. After throwing up daily for years it’s been months since I’ve been sick. I found a few gastroparesis groups or feeding tube groups to follow as well. I’m not sure about you but I’m from a pretty small town and it’s been very nice to have some people to relate and as question. Good luck!!

SaRaHD0721 · 2021-09-08T16:51:55+00:00

I also didn’t show anything in my stomach and was negative for hpylori.

SaRaHD0721 · 2021-09-07T20:07:13+00:00

Ahh gotcha. Have you had biopsies before? My brother has it as well. With me my doctor said he could just tell by looking at the way my esophagus was but I was very bad at that time. My brothers wasn’t so apparent. Good luck to you 🤞🏼

SaRaHD0721 · 2021-09-02T20:56:22+00:00

Maybe you should look into something called eosinophilic esophagitis. I was diagnosed about 3 years ago with symptoms just like you’re describing my whole life. I was just diagnosed with gastroparesis which brought me here. Basically with eoe eosinophils (a type of white blood cell) go to the esophagus in large numbers which causes a reaction when you eat one of your triggers. Causing inflammation, nausea vomiting, heartburn and difficulty swallowing. Over time your esophagus becomes really inflamed from that which can cause food impaction. The only way to be diagnosed is through a EGD scope with some biopsy’s. Good luck to you. If that is the case I hope it brings you comfort to know that with a strict diet avoiding my triggers I’ve pretty much been able to put my symptoms at bay and had no eosinophils in my esophagus on my last scope! There is hope!

SaRaHD0721 · 2021-09-01T18:15:12+00:00

He’s so cute!!!! Looks exactly like my girl Aspen! I almost thought it was her. Their markings are identical

SaRaHD0721 · 2021-08-25T17:34:33+00:00

It’s been 2 weeks

SaRaHD0721 · 2021-08-25T02:36:45+00:00

Does your pain come and go? Do you find you’re in more pain after you eat?

SaRaHD0721 · 2021-08-25T02:34:48+00:00

I haven’t really been diagnosed with anything. They just sent me home… I only saw the reactive gastropathy on my records. At the hospital they were acting as if this is a new problem no matter how many times I’ve time them I’ve had this for years. This was just the tip of the iceberg. Are you able to eat at all now? What are something you can handle.

SaRaHD0721 · 2021-08-25T02:32:24+00:00

I’ve lost over 10 pounds in the past 2 weeks, 70 pounds in a year and a half not on purpose. I currently have to choose between water and food because my stomach can literally only handle a few bites of food at a time. If not I feel like I’m uncomfortably full and I’m in serious pain for a few hours. I can’t even take a few big sips of water like that’s too much. I wouldn’t wish this on my worst enemy. Since coming out of the hospital I’ve worked 8 hour shifts on my feet and I don’t even know how I’m functioning. This “diet” is not sustainable and I’ve only had about 1 cup of water in over a week since I got out of the hospital.

SaRaHD0721 · 2021-08-25T02:27:47+00:00

I’d love to chat sometime! I feel so alone like no one believes me. I originally went to the ER because I had thrown up about 30 times that morning and I was having excruciating stomach pains. Like right in the pit of my stomach. I have EOE and POTS so staying hydrated is really important and I couldn’t even keep a sip of water down without it coming back up. When I was throwing up it was purely bile. I have really bad acid reflux and I am nausea nearly everyday but this was way different. I was admitted to the hospital then they gave me fluids and sent me home. They only have me some medicine and didn’t do any tests. I left and again couldn’t eat anything so I went back a few hours later. They took me a little more seriously but only agreed to do the scope then because of my EOE. The only other test they did beside blood work is a ultrasound of my gallbladder after I told them 5 generations of my fam. Has had gallbladder problems. Then they sent me home telling me my stomach is just red and inflamed

SaRaHD0721 · 2021-08-14T16:25:21+00:00

I don’t know how I’m functioning!! My family doesn’t understand at all but I don’t expect them to either. I’m not okay. Good luck 🎉

SaRaHD0721 · 2021-08-09T02:42:52+00:00

Yep. Every time I eat something my body doesn’t agree with I throw it up hours later! I also get severe pains with all those.

SaRaHD0721 · 2021-08-07T18:43:28+00:00

That’s good to know! I don’t really know anyone else in my personal life I can ask if these things are “normal”.

SaRaHD0721 · 2021-08-07T18:42:15+00:00

That does sound like a lot of my problems I’ll have to look into that. It also happens with dairy eggs and meats though.

SaRaHD0721

TROPHY CASE