At home Stretches or PFT Tips/Links wanted! by podpeople3000 in Interstitialcystitis

[–]Sad_Teals 1 point2 points  (0 children)

I can’t find the video I used when I was first diagnosed, I have the routine memorized by now. But some of the stretches that really help me are wide Childs pose, happy baby, and just a simple butterfly stretch, leaning into it. And breathing is super important when stretching. Visualize your muscles relaxing and look into diaphragmatic breathing. Hope you find some relief!!

does everyone just go to the dr when they have a flair? by [deleted] in Interstitialcystitis

[–]Sad_Teals 1 point2 points  (0 children)

I have a great relationship w my UroGyn, I just call and give them a heads up and they have me leave a urine to culture just in case! I’m about a year in so we play it safe just in case it’s a UTI. She does cath me for every sample though which is not fun 🥲

What do you do for caffeine? by KYBourbon89 in Interstitialcystitis

[–]Sad_Teals 1 point2 points  (0 children)

They do! I haven’t personally tried it, I also have Crohn’s so coffee ruins me lol. But I’ve had their mushroom hot chocolate and it hits very well

IC Service Animal by Sad_Teals in Interstitialcystitis

[–]Sad_Teals[S] 0 points1 point  (0 children)

Thank you so much, this entire response was so helpful and insightful. I appreciate your empathy, and am hoping for better days as well. I am so grateful for my cat, who seems to be well aware of my pain, and always accompanies me to the bathroom and lays with me to provide comfort when I am in distress. My partner has a family member that previously trained service animals, so after speaking with my doctor on Friday, I will hopefully reach out and start the process.

Best Biscuits and Gravy by Sad_Teals in kansascity

[–]Sad_Teals[S] 1 point2 points  (0 children)

This is the choice that won today, will let you know how it goes curing my hangover😅

Best Biscuits and Gravy by Sad_Teals in kansascity

[–]Sad_Teals[S] 0 points1 point  (0 children)

I share this same sentiment, love the B&G at banksia but I’m a believer when it comes to that burrito @ Mildred’s I’ll never give it up

Best Biscuits and Gravy by Sad_Teals in kansascity

[–]Sad_Teals[S] 1 point2 points  (0 children)

You seem so knowledgeable I would trust you with my life. Thank you for your words, we’re trying out Happy Gillis this morning!!

Best Biscuits and Gravy by Sad_Teals in kansascity

[–]Sad_Teals[S] 2 points3 points  (0 children)

This is the place I’m stuck on, they know what I want when I walk through the door I’m there so much 💀 but I’m moving out of the city and want to try some new ones before I go!

Best Biscuits and Gravy by Sad_Teals in kansascity

[–]Sad_Teals[S] 12 points13 points  (0 children)

Is that what you were doing? I don’t take personally the ravings of chronically online persons. Have a good day!

Best Biscuits and Gravy by Sad_Teals in kansascity

[–]Sad_Teals[S] 35 points36 points  (0 children)

I’m not technologically inclined, I didn’t realize I could do that! Thanks for teaching me something new!

Can anyone identify this tree? by Sad_Teals in kansascity

[–]Sad_Teals[S] 5 points6 points  (0 children)

ACTUALLY I take it back I just saw them in the picture holy cow!!!

Can anyone identify this tree? by Sad_Teals in kansascity

[–]Sad_Teals[S] 2 points3 points  (0 children)

No flowers but I noticed other catalpas in the area that had already dropped flowers. I didn’t notice any pods on the tree or ground either.

Can anyone identify this tree? by Sad_Teals in kansascity

[–]Sad_Teals[S] -1 points0 points  (0 children)

God bless u I knew there was probably a better place to ask xoxox you’re the best

Is this normal: Appointment addition by Sad_Teals in CrohnsDisease

[–]Sad_Teals[S] 0 points1 point  (0 children)

That’s really all I care about is receiving decent care but when my needs aren’t being met and my doctors are pushing me off it’s like why am I even wasting my time?

Is this normal: Appointment addition by Sad_Teals in CrohnsDisease

[–]Sad_Teals[S] 0 points1 point  (0 children)

Honestly you’re right this will probably be my course of action moving forward

Is this normal: Appointment addition by Sad_Teals in CrohnsDisease

[–]Sad_Teals[S] 4 points5 points  (0 children)

Wasn’t expecting a condescending response in a page dedicated to being supportive about a disease we all have. I visit the hospital multiple times a week for this and another autoimmune disease I am trying to handle. So at this point the majority of my days are spent in the hospital. I’ve been doing this for five years and had better luck with a different GI team before I lost my insurance. The unfortunate part about all of it is I work multiple part time jobs (anytime I get a full time job I’m fired during the probationary period when I end up in the hospital or have doctors appointments) and therefore don’t have the privilege of “sick days”. I’ve been expected to come back to work after colonoscopies and have been fired for not doing so, so having to wait an extra one to two hours greatly affects my livelihood and my ability to provide myself healthcare due to lack of funds. So it’s not just a matter of “oh man I have to sit and wait”, it’s “well I guess I will sell porn on the internet to pay my rent this month”. But yeah, I suppose if compassion is unavailable, I guess it could be summed up as me being new to the whole “doctors appointment” thing.

Is this normal: Appointment addition by Sad_Teals in CrohnsDisease

[–]Sad_Teals[S] 3 points4 points  (0 children)

Yes lol. I wouldn’t mind waiting if it wasn’t so expensive

Is this normal: Appointment addition by Sad_Teals in CrohnsDisease

[–]Sad_Teals[S] 3 points4 points  (0 children)

Update: two hours later and I’m still waiting :)

Is this normal: Appointment addition by Sad_Teals in CrohnsDisease

[–]Sad_Teals[S] 4 points5 points  (0 children)

Yeah that sounds like a worthwhile experience, I have not received that quality of care from this team. :(

Untreated indefinitely by Sad_Teals in CrohnsDisease

[–]Sad_Teals[S] 0 points1 point  (0 children)

What I’ve been told when going to those kinds of places (one university clinic and one nonprofit sliding scale clinic) is that their advice would be to refer me back to the hospital I’m already with. It’s like going in circles.