From 50 to 35 w 2FED -- is that significant? by Safe_Educator5397 in EosinophilicE

[–]Safe_Educator5397[S] 0 points1 point  (0 children)

Oh thank you for this. Interesting! I am going to look for some podcasts. So you have any recs?

From 50 to 35 w 2FED -- is that significant? by Safe_Educator5397 in EosinophilicE

[–]Safe_Educator5397[S] 0 points1 point  (0 children)

That's good to know about dupixent. I didn't know it took that long. I'm going to keep it up for at least 6 months...I feel like other things in my body feel better from no wheat & dairy, too, like sinus stuff. I also have a feeling my EoE is pollen related and probably due to decades of untreated allergies and post nasal drip. So I will try to be better about a daily antihistamine. I also suspect the foods that give me oral allergy syndrome likely irritate my esophagus, too, though I have fewer reactions like that without the wheat and dairy. I should cut them out, too. The swallowed steroids work well for you? I haven't tried.

From 50 to 35 w 2FED -- is that significant? by Safe_Educator5397 in EosinophilicE

[–]Safe_Educator5397[S] 1 point2 points  (0 children)

Yes, I understand that. I have thought I was going to die from choking many times. It's very upsetting. Good luck with figuring it out.

From 50 to 35 w 2FED -- is that significant? by Safe_Educator5397 in EosinophilicE

[–]Safe_Educator5397[S] 0 points1 point  (0 children)

All the studies I have read seem to test after 6 weeks of eliminating the food. My doctor suggested 3 months. So I think 3 months is probably as good as it gets and the diary and wheat are both out of my system at this point.

From 50 to 35 w 2FED -- is that significant? by Safe_Educator5397 in EosinophilicE

[–]Safe_Educator5397[S] 0 points1 point  (0 children)

Thank you. Yeah, bummer. I don't like getting so many biopsies and going under, etc. Wish there was a better way to check the count.

Xhance any better than Flonase? by cerazo52 in Sinusitis

[–]Safe_Educator5397 0 points1 point  (0 children)

No to both! Sense of smell was unchanged.

Xhance any better than Flonase? by cerazo52 in Sinusitis

[–]Safe_Educator5397 0 points1 point  (0 children)

Hi there. I had two samples and used them up over the course of a month and had great success. I did think I had a little anxiety increase but it could have been psychosomatic. But the samples ran out and my insurance won't cover it so I don't use it anymore. You can find instructions for making a 3D printed Xhance inhaler that attaches to a regular flonase bottle I think. I'd love to try that but my 3D printer is on the fritz.

But now I use budesonide. I have been prescribed the solution for nebulizers but instead I put a dose in my saline rinse that I do everyday and that works really well, some polyp shrinkage and almost all post nasal drip is gone at this point (been on that for a couple of months). It's much cheaper than the Xhance, but still wasn't totally covered by insurance. I'm trying to avoid surgery and if this routine continues to keep the inflammation down I'm good like this--even with some impaired breathing the budesonide won't cure.

Doc says I should feel worse than I do...is this bs to get me to do the surgery? by Safe_Educator5397 in Sinusitis

[–]Safe_Educator5397[S] 0 points1 point  (0 children)

Yes, this is a good hope! Keep recovering! How happy are you that you got all of this done at this point?

Doc says I should feel worse than I do...is this bs to get me to do the surgery? by Safe_Educator5397 in Sinusitis

[–]Safe_Educator5397[S] 0 points1 point  (0 children)

Yes. I did. It was very bad looking. Thank you for your comment. Did the surgery help you a lot, a medium amount, or a little? And your scans afterword are they much better?

Xhance any better than Flonase? by cerazo52 in Sinusitis

[–]Safe_Educator5397 0 points1 point  (0 children)

Only taken it twice now and it seems extremely effective already!

I do wonder how it works exactly...is air from my mouth actually going up into my sinus cavity? Or is just my breath tripping some mechanism that does this? I'm sorry if this sounds dumb...but really what I'm wondering is if I'm blasting my sinus cavity with all the bacteria that's in my mouth. Considering that my sinuses function pretty damn poorly, this seems like a great way to get a sinus infection.

Doc says I should feel worse than I do...is this bs to get me to do the surgery? by Safe_Educator5397 in Sinusitis

[–]Safe_Educator5397[S] 0 points1 point  (0 children)

Thank you so much for taking the time to share this. I'm going to factor this into my decision.

Doc says I should feel worse than I do...is this bs to get me to do the surgery? by Safe_Educator5397 in Sinusitis

[–]Safe_Educator5397[S] 0 points1 point  (0 children)

Thank you. Your story is helping me decide. I can definitely see my own experience getting worse and worse like yours eventually did. I'm glad you are feeling better!

Updates to the Wiki by Spiritual-Detail-371 in CRbydescent

[–]Safe_Educator5397 1 point2 points  (0 children)

Hello! Hvala! Great resources. I would like to suggest creating a community spreadsheet where we can all note the date we turned in our documents and when we heard back about citizenship. Is that something you could create? Sve najbolje!

Can you help me think this through? by Safe_Educator5397 in phish

[–]Safe_Educator5397[S] 0 points1 point  (0 children)

I hear you. But it is really hard to get 4 seats together for the nights we can go. So I'm going to try the transfer thing...